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Unexplained vertigo
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
sunmoon_
in
LUPUS UK
8 months ago
bleed in eye
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
Eastwood1
in
Pain Concern
8 months ago
How do I tune this out?
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
ViolinP
in
Tinnitus UK
8 months ago
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Update 7.7.5 = Benign
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
hunter5582
in
MPN Voice
6 months ago
Feeling thoroughly miserable - full time musician, first time tinnitus
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Fulltimemuso
in
Tinnitus UK
8 months ago
Hydroxychloroquine not made a difference
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
DogsMakeLifeGood
in
LUPUS UK
8 months ago
biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
8 months ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
8 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
8 months ago
Warfarin not raising inr....why?
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
Charts
in
Hughes Syndrome APS Forum
8 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
5 months ago
Old Musician With Tinnitus.
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
VonAdder
in
Tinnitus UK
8 months ago
Heart Calcium Score scan scare
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Slickrock
in
Anxiety Support
8 months ago
Cystitis post endometriosis surgery
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Ayesfreen
in
Endometriosis UK
8 months ago
MAJOR CANCER CURE! (yeah, I know it's not PD)
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
PDWarrior1900
in
Cure Parkinson's
8 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
5 months ago
IBS and wind
I have had IBS for years and I am really suffering at the moment not only with the unpredictability of BMs but also terrible bloating and wind. It seems to be worse as soon as I go out shopping or to social events. I wonder if anxiety is partly to blame. I keep a food diary and am really careful
I have had IBS for years and I am really suffering at the moment not only with the unpredictability of BMs but also terrible bloating and wind. It seems to be worse as soon as I go out shopping or to social events. I wonder if anxiety is partly to blame. I keep a food diary and am really careful
Starry56
in
IBS Network
6 months ago
Hyperhomocysteinemia or lack of vitamin 12
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
BK47
in
LUPUS UK
8 months ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
8 months ago
PiP - Aids being 'prescribed'
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
Alanna012
in
Fibromyalgia Action UK
8 months ago
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