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Experiences with
Abdominal hysterectomy
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what benefits would I get giving up work?
I was diagnosed with ovarian cancer stage 3 in may 2021 I underwent a hysterectomy followed my chemo and in nov 2021 was told I was in remission. I am on PARPS treatment now and when I asked of the chances of the Cancer reoccurring I was told 75%. I am back at full time work now and am 62 years old.
I was diagnosed with ovarian cancer stage 3 in may 2021 I underwent a hysterectomy followed my chemo and in nov 2021 was told I was in remission. I am on PARPS treatment now and when I asked of the chances of the Cancer reoccurring I was told 75%. I am back at full time work now and am 62 years old.
Jingles6
in
My Ovacome
2 years ago
introducing myself to share uterine cancer support
hi I was diagnosed in march 2022 had my hysterectomy June 2020 (not key whole too complicated) I have been told that the cancer was taken and I only need to watch for any symptoms. My cancer was at the first stage so I count myself lucky but I feel very upset and cry when I hear of others with the condition
hi I was diagnosed in march 2022 had my hysterectomy June 2020 (not key whole too complicated) I have been told that the cancer was taken and I only need to watch for any symptoms. My cancer was at the first stage so I count myself lucky but I feel very upset and cry when I hear of others with the condition
Webbkaz
in
SHARE Uterine Cancer Support
2 years ago
Zoladex worth it?
Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I currently have the coil and take desogestrel continuously. I saw my consultant yesterday who said i need a hysterectomy and probably some bowel work. They want to start me on zoladex while i wait. At the moment i am having
Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I currently have the coil and take desogestrel continuously. I saw my consultant yesterday who said i need a hysterectomy and probably some bowel work. They want to start me on zoladex while i wait. At the moment i am having
Saff21
in
Endometriosis UK
2 years ago
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Hysterectomy
hi everyone. I’m am looking for some advice please. So my partner who had stage 4 endometriosis, has had to undergo a full hysterectomy to get rid of this horrible condition. She had a laparoscopy which diagnosed this condition. During the laparoscopy they saw that the endometriosis was also growing
hi everyone. I’m am looking for some advice please. So my partner who had stage 4 endometriosis, has had to undergo a full hysterectomy to get rid of this horrible condition. She had a laparoscopy which diagnosed this condition. During the laparoscopy they saw that the endometriosis was also growing
Helpwithpain1984
in
Endometriosis UK
2 years ago
Post menopausal endo?
Does anyone have any experience of going through the menopause and finding relief from endo? My current GP wants me to come off the pill due to high risks at my age (I have been on the pill for 31 years - purely to keep endo symptoms at bay somewhat). They tell me that they won't know if I have gone
Does anyone have any experience of going through the menopause and finding relief from endo? My current GP wants me to come off the pill due to high risks at my age (I have been on the pill for 31 years - purely to keep endo symptoms at bay somewhat). They tell me that they won't know if I have gone
MiniTina
in
Endometriosis UK
2 years ago
Advice for living with Hysterectomy
Hi ladies, I am 18months post surgery but am really struggling with my mental health, I don't feel myself, feel angry and irritable all the time and have a disconnect with life which is not good when you are raising 2 children under 10. Is there anything anyone can recommend. I feel as if the aging
Hi ladies, I am 18months post surgery but am really struggling with my mental health, I don't feel myself, feel angry and irritable all the time and have a disconnect with life which is not good when you are raising 2 children under 10. Is there anything anyone can recommend. I feel as if the aging
Gems1982
in
Healthy Happy Woman
2 years ago
Is anyone positive about prolapse surgery?
I have had probs since the birth of my first baby, who is now 56! I had another 3 big babies after her. I never really had any advice and had vaginal hysterectomy after my last baby and then another repair 10 years later. For the past 3/4 years have had several pessary fitted some fine and others not
I have had probs since the birth of my first baby, who is now 56! I had another 3 big babies after her. I never really had any advice and had vaginal hysterectomy after my last baby and then another repair 10 years later. For the past 3/4 years have had several pessary fitted some fine and others not
Stone44
in
Pelvic Pain Support Network
2 years ago
Dienogest
Hi All,Just had my specialist appointment with Endometriosis Consultant (although didn't get to see him as emergency came in so it was with his colleague).I have endo around sigmoid colon and POD. Relatively clear around ovaries but left side adherent to pelvis wall and a few cysts and pendulated fibroid
Hi All,Just had my specialist appointment with Endometriosis Consultant (although didn't get to see him as emergency came in so it was with his colleague).I have endo around sigmoid colon and POD. Relatively clear around ovaries but left side adherent to pelvis wall and a few cysts and pendulated fibroid
Deedee666
in
Endometriosis UK
2 years ago
Hysterectomy advice
Hi , I have been to the Gynaecologist today and due to various gynaecologist problem I have been put on the waiting list for a hysterectomy, I was after any advice people can offer me regarding any special precautions that might be needed when undergoing an operation and having systemic sclerosis, be
Hi , I have been to the Gynaecologist today and due to various gynaecologist problem I have been put on the waiting list for a hysterectomy, I was after any advice people can offer me regarding any special precautions that might be needed when undergoing an operation and having systemic sclerosis, be
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Hysterectomy on going discomfort.
Hi I am a pretty active 76 yr old. I had a Hysterectomy in March 2021. I had a couple pesseraries of different sizes fitted for 3 months before the op that were very uncomfortable. I put up with the pain as Covid had just taken off and we were in the 1st lock down.I am in general good health I do have
Hi I am a pretty active 76 yr old. I had a Hysterectomy in March 2021. I had a couple pesseraries of different sizes fitted for 3 months before the op that were very uncomfortable. I put up with the pain as Covid had just taken off and we were in the 1st lock down.I am in general good health I do have
1Spidar-girl
in
Women's Health
2 years ago
Retroperitoneal Nodule .Anyone experiencing?
hi,I was diagnosed in June ,now waiting for multidisciplinary operation.My symptoms started September 21 .I have had constant pain in several areas ,but for the last few months my lower spine is unbearable and it’s now spread to the right hand side not going down my leg or bum so not thinking sciatica
hi,I was diagnosed in June ,now waiting for multidisciplinary operation.My symptoms started September 21 .I have had constant pain in several areas ,but for the last few months my lower spine is unbearable and it’s now spread to the right hand side not going down my leg or bum so not thinking sciatica
K2023
in
Endometriosis UK
2 years ago
Private MRI for endometriosis ,gynecologist
HiI am in pain from about 8 years, I lost mine left overian few year ago, had few laparoscopy but my gynecologist is so not nice and he wants to make hysterectomy for me even he said this will probably not take pain from me. I have big problems with my bowels, pain is strong ,few times I am passed out
HiI am in pain from about 8 years, I lost mine left overian few year ago, had few laparoscopy but my gynecologist is so not nice and he wants to make hysterectomy for me even he said this will probably not take pain from me. I have big problems with my bowels, pain is strong ,few times I am passed out
Kat150184
in
Endometriosis UK
2 years ago
advice after hysterectomy
hi Quick question as not going to moan on. Am 8 weeks post op and am having a lot of vaginal internal discomfort, best way to explain is like a tampon put in wrong and u can feel it. some days ok some not so good Any advice if this is part of healing, overdoing it, if should get it checked out.
hi Quick question as not going to moan on. Am 8 weeks post op and am having a lot of vaginal internal discomfort, best way to explain is like a tampon put in wrong and u can feel it. some days ok some not so good Any advice if this is part of healing, overdoing it, if should get it checked out.
Bassem1979
in
Endometriosis UK
2 years ago
Total Abdominal (Bikini cut) Hysterectomy next week..yikes!
Hi all I’m hoping someone on here is able to give me some reassurance, I’m wondering if anyone has any positive experiences of having a total hysterectomy? I keep reading about the extremely difficult recovery (which I do expect) but I’m starting to get really anxious about the whole procedure.. I
Hi all I’m hoping someone on here is able to give me some reassurance, I’m wondering if anyone has any positive experiences of having a total hysterectomy? I keep reading about the extremely difficult recovery (which I do expect) but I’m starting to get really anxious about the whole procedure.. I
Jingles11
in
Healthy Happy Woman
2 years ago
Decapeptyl/Total hysterectomy
Hi I'm just wondering if anyone has had a total hysterectomy after having decapeptyl SR treatment and has this made an improvement.Endometriosis diagnosis 2005 multiple surgeries decapeptyl injections 2.5 years and ongoing. Monthly pain and bleeding returning with a vengeance pain relief zomorph 30mg
Hi I'm just wondering if anyone has had a total hysterectomy after having decapeptyl SR treatment and has this made an improvement.Endometriosis diagnosis 2005 multiple surgeries decapeptyl injections 2.5 years and ongoing. Monthly pain and bleeding returning with a vengeance pain relief zomorph 30mg
Madcathatter
in
Endometriosis UK
2 years ago
Extremely low markers but still scared
My mother finished her therapies two years ago. From that moment her ca125 has always been decreasing, from 20 after the hysterectomy to now that it has reached a value calculated as less than 1. However, this is not enough to reassure me about a recurrence, because I read everywhere that the markers
My mother finished her therapies two years ago. From that moment her ca125 has always been decreasing, from 20 after the hysterectomy to now that it has reached a value calculated as less than 1. However, this is not enough to reassure me about a recurrence, because I read everywhere that the markers
Belindajames
in
My Ovacome
2 years ago
Has anyone with endometriosis (particularly rectrovaginal) been fully cured after surgery?
Hi everyone, this is my first post on here - great to find a community who can finally understand the issues I am going through. I have had pelvic pain ever since I got my period 25 years ago, and have been misdiagnosed with so many different things, but finally had a diagnosis of rectovaginal endometriosis
Hi everyone, this is my first post on here - great to find a community who can finally understand the issues I am going through. I have had pelvic pain ever since I got my period 25 years ago, and have been misdiagnosed with so many different things, but finally had a diagnosis of rectovaginal endometriosis
CCWildSwimmer
in
Endometriosis UK
2 years ago
Prostrap injections
Ive started on prostrap injections has the pain got to ease in time for the gainy to consider hysterectomy cos i was told if the pain eases en consider hysterectomy but if the pain dont ease then its not a gainy problem im confused
Ive started on prostrap injections has the pain got to ease in time for the gainy to consider hysterectomy cos i was told if the pain eases en consider hysterectomy but if the pain dont ease then its not a gainy problem im confused
Sonnie123
in
Endometriosis UK
2 years ago
smear test
Hi All I had my 3mths post op following total hysterectomy, I forgot to ask the question regarding the Vault. I was told 2 days post op I would be called by the hospital to have a one off vault and then that would be that. however I wanted to ask them about it so I thought would ask on here. does
Hi All I had my 3mths post op following total hysterectomy, I forgot to ask the question regarding the Vault. I was told 2 days post op I would be called by the hospital to have a one off vault and then that would be that. however I wanted to ask them about it so I thought would ask on here. does
Bassem1979
in
Endometriosis UK
2 years ago
choosing what kind of operation that best
Hi guys not sure if any one can help but even a bit of advice would be greatly appreciated. Ive had my MRI and its come back saying I have signs of deep infiltrating endometriosis and adenomyosis. I went to my appt the other day and I was told I can decide what surgery I would like to have for them
Hi guys not sure if any one can help but even a bit of advice would be greatly appreciated. Ive had my MRI and its come back saying I have signs of deep infiltrating endometriosis and adenomyosis. I went to my appt the other day and I was told I can decide what surgery I would like to have for them
Panwendy
in
Endometriosis UK
2 years ago
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