Hi all Since February 2014 my RA has not been controlled. I had rituximab last August ( which failed ) and in March of this year I started to...
Waiting but not patiently
So been waiting over a month now. Still nothing despite numerous calls to helpline and biological nurse, regarding starting my Rituximab infu...
First infusion of rituximab
It took from 9.30 to 4.00 as scheduled. Had an injection of piriton, then some steroid then some saline....
Methotrexate and depression?
Got my anti tnf appointment beginning of July so will bring it up then....
Do immunosuppressants and sushi mix?
Hey guys a bit if a random question. Met up with a friend at Yo Sushi and had a lovely catch up which was nice because I don’t get to go out ...
So the latest is
So last week I spent every day at the hospital ! As I recently said a professional patient lol....
I have been advised to have Rituximab infusions to help get symptoms better controlled in addition to my usual lupus meds - methotrexate and ...
Rituximab here I come!!!
Following my visit to Rheumo last week to discuss my enbrel immunity, it was as I thought, suggested that I try Rituximab. I had my bloods ta...
Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum ...
Biologic or Immune Therapies for CLL
Hi Friends, This week’s update on the CLL Society website cllsociety.org is my unscripted recordings on biologic or immunotherapies . ...
Hi all sorry not been on much been having a bad time. Sitting here having my third steriod infusion....
Rituximab and hair loss
I am on my second round of rituximab now to treat lupus nephritis, having had the first 2 infusions in October, I had one last week and am du...
Hi all I started tocilizumab injections in April. All was going well ( actually felt best I have in two years ) unfortunately I have been una...
Different knee pain
I'm 25, been diagnosed with RA for 6 years now in my knees and hands mostly and I've had Rituximab infusions as a last medication resort afte...
My first rituximab infusion
Just wanted to post that I received my first infusion today, went well and had no reaction at all. Just felt very tired and ready for a good ...
Hi all, hope the recent sunshine has eased your pain and raised your spirits ! I was diagnosed with RA in 2009....
I think it is correct to say that we have not established proper health care services for these people, and I regret that. " The best may yet...
Anyone experiencing chronic low immunoglobulins
anyone familiar with my version of lupus thanks to this wonderful forum, will know it was infant onset, but the early diagnoses were lost aft...
Anyone have advice about managing fatigue? I'm Currently on the sick & have been for months....
Rituximab Infusion to treat Scleroderma/IPF
Hi. Has anyone had Rituximab Infusions to treat Scleroderma/IPF?...
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