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I also have several
neuropathies
. I have occasionally had a weird symptom when I pass water. It’s difficult to explain but sometimes I get this sensation in my hands like tingling or a very mild electric shock. It is very odd and I wondered if anyone else has this problem?
I also have several
neuropathies
. I have occasionally had a weird symptom when I pass water. It’s difficult to explain but sometimes I get this sensation in my hands like tingling or a very mild electric shock. It is very odd and I wondered if anyone else has this problem?
Erykah
in
Hughes Syndrome APS Forum
12 days ago
Grip Strength
Hi - started at 20 after diagnosis in January of 24 and my reductions were as follows - each after 4 weeks and a rheumy visit 20 -15 -12.5 -10 - 7.5 -6.25 -5– 4.5-4 and most recently to 3.5. When I went to 4 I noticed a bit of hand swelling and loss of grip strength. Now at 3.5 I notice it a lot.
Hi - started at 20 after diagnosis in January of 24 and my reductions were as follows - each after 4 weeks and a rheumy visit 20 -15 -12.5 -10 - 7.5 -6.25 -5– 4.5-4 and most recently to 3.5. When I went to 4 I noticed a bit of hand swelling and loss of grip strength. Now at 3.5 I notice it a lot.
NCStateLine
in
PMRGCAuk
3 days ago
Peripheral Neuropathy
Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. There’s not a medicine yet that has helped with this pain. Anyone else experiencing this issue?
Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. There’s not a medicine yet that has helped with this pain. Anyone else experiencing this issue?
TravisWharam
in
AMN EASIER
8 days ago
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Latest BT results
Morning, could anyone give me some advice on latest BT results please. I take 150 Levothyroxine ( 75 prescribed by gp, the other 75 I have sourced myself). Still feeling tired all the time, brain fog, & all the other usual symptoms. I take vit D+k, B complex, magnesium glycinate & folate. Many Thanks
Morning, could anyone give me some advice on latest BT results please. I take 150 Levothyroxine ( 75 prescribed by gp, the other 75 I have sourced myself). Still feeling tired all the time, brain fog, & all the other usual symptoms. I take vit D+k, B complex, magnesium glycinate & folate. Many Thanks
Bright-eyes
in
Thyroid UK
25 days ago
Medication
I am currently on Dimethyl Fumarate and it helps a bit so I'm a bit more active. However, I still have a hard time getting around, and I've been sleeping 20+ hours a day for the past few months. It isn't even good sleep, very interruped. I originally thought it was the Gabapentin I take for nerve pain
I am currently on Dimethyl Fumarate and it helps a bit so I'm a bit more active. However, I still have a hard time getting around, and I've been sleeping 20+ hours a day for the past few months. It isn't even good sleep, very interruped. I originally thought it was the Gabapentin I take for nerve pain
PotatoLoafCats
in
My MSAA Community
28 days ago
Dalfampridine (Ampyra)
I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is now being used around the world. As I understand it, it is approved for Wales and Scotland but not for England.
I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is now being used around the world. As I understand it, it is approved for Wales and Scotland but not for England.
Mash69
in
AMN EASIER
29 days ago
Advice
Hello Not posted before so here goes .Suffered with osteoarthritis in both hips for the last 7 years , had Left Hip THR last July . Recovered well but then started with severe pain and stiffness in left knee which then progressed to both knees , shoulders , hands , neck over a period of 4 weeks . Diagnosed
Hello Not posted before so here goes .Suffered with osteoarthritis in both hips for the last 7 years , had Left Hip THR last July . Recovered well but then started with severe pain and stiffness in left knee which then progressed to both knees , shoulders , hands , neck over a period of 4 weeks . Diagnosed
Spats15
in
PMRGCAuk
3 months ago
Update on appointment with professor Hughes
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
Griggser
in
PMRGCAuk
3 months ago
Positive Effect of Tocotrienol on T2D subjects
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
barani19
Administrator
in
Diabetes India
3 months ago
Horizant
I am slowly discontinuing Ropinerole and have reviewed Winkleman’s medication recommendations. It appears that Horizant has the best overall profile of the gaba-related drugs. Can anyone please describe your experience with it? I am interested in RLS symptom reduction of course, but also on sleep quality
I am slowly discontinuing Ropinerole and have reviewed Winkleman’s medication recommendations. It appears that Horizant has the best overall profile of the gaba-related drugs. Can anyone please describe your experience with it? I am interested in RLS symptom reduction of course, but also on sleep quality
pyramidhiker
in
Restless Legs Syndrome
3 months ago
Voltarol
Is it considered ok to use Voltarol cream when taking Pred? I am confused as to whether it's an NSAID. I am hoping to use it on what is supposedly an artritic knee joint.
Is it considered ok to use Voltarol cream when taking Pred? I am confused as to whether it's an NSAID. I am hoping to use it on what is supposedly an artritic knee joint.
tempusfugi
in
PMRGCAuk
3 months ago
good Rheumy, better Rheumy, tapering & Leflunomide
A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her replacement is such a good communicator. Sent me a letter with MRI result and when I replied with lots of questions he responded by answering them all. Also may have a sense of humour as I pressed send by
A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her replacement is such a good communicator. Sent me a letter with MRI result and when I replied with lots of questions he responded by answering them all. Also may have a sense of humour as I pressed send by
Japsquar
in
PMRGCAuk
3 months ago
Help with Vit.B1 protocol.
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
CRMACK1948
in
Cure Parkinson's
4 months ago
Work on healing balance
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
B Vitamins and the Brain: Mechanisms, Dose and Efficacy
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
Esperanto
in
Cure Parkinson's
6 months ago
Tingling, pins and needles and weakness worse when exercising?
Hi, i was diagnosed with FND recently after having tingling, pins and needles in my legs and feet. My right side is mostly effected and my right leg is weaker and seems slow. Whenever I have tried to exercise within a few minutes the tingling and numbness gets so much worse and the leg becomes really
Hi, i was diagnosed with FND recently after having tingling, pins and needles in my legs and feet. My right side is mostly effected and my right leg is weaker and seems slow. Whenever I have tried to exercise within a few minutes the tingling and numbness gets so much worse and the leg becomes really
AJ21FT
in
Functional Neurological Disorder - FND Hope
6 months ago
Small fiber polynueropathy, often misdiagnosed as FND, a personal story:
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Lady4
in
Functional Neurological Disorder - FND Hope
6 months ago
Co-Amoxiclav side effects with Disopyramide/AF?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
DE-AF
in
Atrial Fibrillation Support
6 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
7 months ago
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