Unsure Whether I Have Lupus at this Point, but... I'm definitely struggling as I'm just beginning to get to the bottom of what's going on. It all started a couple of months ago with acid reflux and then abdominal pain. But shortly after I got the abdominal pain a bit over a month ago, I started noticing skin symptoms as well. Drier skin, tiny red dots on my arms mainly, sometimes with red spots on my legs near my knees. Now I've got joint inflammation as well, with my right knee the main problem. I've still got abdominal pain, but the acid has gotten better. I am having more blood tests done, the first two sets were largely routine which showed nothing abnormal. But my gastroenterologist said she is suspecting autoimmune involvement and mentioned Lupus. I'll also be having a CT scan and an endoscopy and colonoscopy. So far since this began I've had one day where I had a high fever. Other than that, I've had a normal temperature.
This whole experience is pretty nerve wracking for me as I've been largely in good health for several years. Then suddenly I'm experiencing all of this and it doesn't seem to be improving.
Years ago I was diagnosed with diabetes insipidous and I had to take desmopressin for a few years. I had two MRIs of my head looking for a tumour or anything to explain it but my result was that it was ideopathic. A few years later, just as mysteriously as it arrived, it went into remission. I also had, and likely still do have low hormone levels, testosterone levels. I am male, and I did take replacement therapy for several years as well but haven't in the past few. Since I was diagnosed with DI, I've had issues with my joints. And I've had fatigue, but I have usually just got on with it. I never had any gastrointestinal symptoms or real skin issues. Or joint inflammation, until now.
I've looked into the symptoms of Lupus and have been reading accounts from people. But so far it's hard to conclude whether it makes sense in my case or no. Other things being looked at are Celiac and IBD, like Crohn's.
I don't know if anyone can give me any advice or if anything I've said sounds familiar or makes sense. But if anyone has any words for me, I would greatly enjoy to hear from someone who might understand the worry that I'm currently having.