Experiences with

Desmopressin

But if anyone out there has this condition aswell or any kind of knowledge of it can swapping different brands of desmopressin which I've been prescribed for DI Affect your health

The thing is my pharmacy keeps changing the brand of desmopressin which I've been prescribed, I could be taking 2 different doses in a week. Could anyone tell me if this could have an effect on my health as it is a deficiency in the hormone vasopressin.

Desmopressin hasnt worked due to the side effects. We will be going onto oxybutynin soon for frequency and urgency and praying this will help for night as it is usually prescribed for day time. Any help will be appreciated Thanks in advance

I've been prescribed desmopressin by my cardiologist for low bp, POTS and dysautonomia but I read that you aren't supposed to use these drugs together? Why is this? Do you use them together? Is it a firm hard no or just use with caution? If so, what is the caution to be aware of? Thank you!

As I've posted recently pharmacy keeps swapping brands of levothyroxine well they keep swapping my brands of desmopressin which is also a hormone . Is it ok to keep swapping brands with it being a hormone aswell.

He has giggle incontinence in the day and bedtime wetting at night (the latter is now controlled with desmopressin).

He’s embarrassed about it as he’s getting older and I’m starting to worry that there’s an issue and he’ll never get off desmopressin! any advice? He doesn’t have any other medical problems apart from asthma and is a really bright, active boy.

Hi, my son is nearly 12 and still bed wetting almost every night (the maximum he's ever stayed dry is two weeks, with 240mg desmopressin). We've tried disimpaction several times. We've tried everything...

I wondered if he might need stronger desmopressin (currently on 240) but his next appointment with the pediatrician isn't until June, so I'm hoping others might have suggestions?

We have tried bio feedback, bedwetting alarms, desmopressin, tolterodine and numerous incentives an charts. He is currently using oxybutynin, which helps a little bit. What is really worrying us is that he has a school residential in May.

My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.

On 1-2 sachets of movicol daily, picosulpate 10mls a day, Desmopressin 250mg for night time wetting. Generally clean at school, only happens at home or relatives houses. It is hugely adversely affecting his behaviour, we have huge bouts of anger and physical outbursts to deal with.

I am hoping that he will prescribe me Desmopressin today, I am really not sleeping as I am up 3/4times per night and my mouth is as dry as a dry thing all night. I guess he'll want to investigate but I want some relief in the short term.

My 6 year old son is currently on Desmopressin moved from 120mg to 240mg. Anyone else’s child on or have had Desmo in the past? Would love to hear how you got on with it. My son has been taking them for about 6 weeks now and only ever had 2 dry nights. Thanks

For nighttime he has been prescribed Desmopressin which has helped, plus we have a bed wetting alarm. To be honest, being a boy, his winky often misses the sensor! Our main problem is during the day. He’s in year 2 and I honestly thought we’d have cracked it by now.

She has seen urologist and basically he says he feels for her but there is nothing they can do 😫 she takes desmopressin which may be helping as it isn’t every night but she has been using this for over 12 years !! We see a diary link we think ? Can any one help ? Who else can we go to ?

I do get relief at night by taking desmopressin to reduce the urine volume, so I may only wee once a night instead of three times. Does this sound like a bowel prolapse problem?

Question about desmopressin. My 6 year old just started and has had it twice but still wet in the morning. He has started on one melt. He has been dry when I check through the night before I go to bed, which is an improvement on before.

We have had him on desmopressin, gone through the school nurse and religiously followed her advice and suggestions and we have tried an alarm (which he hated and was scared of). He is a very deep sleeper and nothing wakes him!

He has hypernatremia with polyuria due to secondary diabetes insipidus and started to take Desmopressin for follow up the regular serum electrolytes. His taking levetiraceram ( keppra ) for controlling his seizure. His vision was affected too due to the sickness.