Experiences with

Lupus

Lupus is a long-term condition that causes joint pain, skin rashes and tiredness. There's no cure, but symptoms can improve if treatment starts early.

Important

Lupus is better managed if it's found and treated early.

How lupus is diagnosed

Lupus, also called systemic lupus erythematosus, is not always easy to diagnose because it can be similar to other conditions.

Symptoms include inflammation of different parts of the body including the lungs, heart, liver, joints and kidneys.

The GP will usually do some blood tests. High levels of a type of antibody, combined with typical symptoms, means lupus is likely.

You might be referred for X-rays and scans of your heart, kidney and other organs if the doctor thinks they might be affected.

Once lupus is diagnosed, you'll be advised to have regular checks and tests, such as regular blood tests to check for anaemia and urine tests to check for kidney problems.

Lupus can range from mild to severe

Symptoms can flare up and settle down

Lupus often flares up (relapses) and symptoms become worse for a few weeks, sometimes longer.

Symptoms then settle down (remission). The reason why symptoms flare up or settle down is not known.

Some people do not notice any difference and their symptoms are constant.

Treatment for lupus

Lupus is generally treated using:

• anti-inflammatory medicines like ibuprofen
• hydroxychloroquine for fatigue and skin and joint problems
• steroid tablets, injections and creams for kidney inflammation and rashes

Two medicines, rituximab and belimumab, are sometimes used to treat severe lupus. These work on the immune system to reduce the number of antibodies in the blood.

Versus Arthritis has more information on the treatments for lupus

Coronavirus advice

Get advice about coronavirus and lupus from Lupus UK

Living with lupus: things you can do yourself

Although medicines are important in controlling lupus, you can help manage your symptoms and reduce the risk of it getting worse.

Lupus UK has support, advice and information for people with the condition.

Causes of lupus

Lupus is an autoimmune disease. This means the body's natural defence system (immune system) attacks healthy parts of your body.

It's not contagious.

The causes of lupus are not fully understood. Possible causes include:

• viral infection
• certain medicines
• sunlight
• puberty
• childbirth
• menopause

More women than men get lupus, and it's more common in black and Asian women.

Pregnancy and lupus

Lupus can cause complications in pregnancy.

See a doctor before trying to get pregnant to discuss the risks and so your medicine can be changed if necessary.

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