Newbie

[Cat2611]

Hi I'm Cat I'm 29 & I'm new to the site!! Think it's an amazing site & very supportive!! I was diagnosed with endo just last year after a laparoscopy!! I had an ongoing problem with lower left sided abdo pain it wasn't really cyclical sometimes I would have it constantly for 2-3 months!!! My GP in London was disgraceful & originally being from Ireland I went home & paid privately for a consultation with a gynaecologist who thought endo was the likely cause of my pain!!! I then had a laparoscopy & treatment for endo!! Since then it's been a long & horrendous journey!! Was supposed to start prostap injections but my GP in London wouldn't prescribe them & put me on the pill microgynon which didn' work!! Even though I had confirmed endo she wouldn't even refer me to gynaecology in London!! In the end up I ended up in A&E at the hospital I work in with severe abdo pain & a UTI & managed to get them to refer me to gynae as I was in so much distress about the situation!! I've since changed GP & my current GP is amazingly supportive!! I've been on cerazette for 6 months which hasn't eased my symptoms at all & I am now trying the mirena coil!! It's only been 3 weeks with the coil but I think I'm going to get removed as I already can't find the strings & the pain is worse on the coil than it's ever been!!! I too find its ruining my relationships & wrecking my career!! Ive just started in ICU & want to specialise but I'm struggling with being on my feet all day with increased pain & lower back pain!!! & the fatigue is horrendous I take terrible afternoon slumps I'm currently on antidepressants & have gained so much weight I'm struggling to get it off because I'm so exhausted I struggle to exercise & sometimes in too much pain to exercise!!! Some days I can't even manage to take the dog out for a walk!!! I feel like I've been living in hell for the past few years!! I'm now at a crossroad as to whether to take a career break & move home & try to get myself sorted as best I can or just keep struggling on!!! Either way I've spent too long in this dark tunnel & I have just decided I am going fight this as best I can endo has taken over my life for too long & I want it back!!!!!!

[Tboag]

Hi darling it's a alful thing to deal with, and I sympathise with you, ive just been diagnosed with endo and adenomyosis, my surgeon excised endo from behind uterus and ligament, only 3 weeks ago, but I havnt found any relief unfortunately, but he thinks it's the adeno that's causing my pain, got follow up Teusday and I think his going to duggest a hysterectomy, ( the only cure for adeno) I have children so I will go with it.

If you look up a lady called Lindle, she has posted some very informative stuff, but the one I yhink you should look at is how to find a specialist,

When you said treatment for endo, did he use laser or excision, only laser isn't a very good procedure and only shaves disease of from surface, where as excision cuts deep below in order to get all endo, so therefore dosnt grow back, obveriously it's not a cure but that bit that you had wont grow back and new endo will take longer, therefore freeing you of symtoms for longer,

Good luck xxx

[nomoendo]

Hi Cat,

I'm Mary, 27. Also diagnosed and have had oophorectomy in 2013 for endometriosis even after GNRH treatment. First, I have felt your pain especially through the months leading to my surgery. Secondly, I somehow understand what it's like to feel how a supposedly non-life-threatening condition could take away one's life (or quality thereof). I just learned that my endo returned so my OB-GYNs have given me male hormones and then starting today, Qlaira. What I wish I should have done differently is I should have really made the most of the two years before my endometriosis returned. Before the recent diagnosis of its recurrence, I was blessed enough to have experienced the quality of life I've had before all these started.

I have no clue what lies ahead for me. What I know is that we ladies should stick out and pray for each other and we should keep clawing and fighting our way out of this.

[Cat2611]

Thanks it's great to get advice from you all who have & are still battling with endo!! I had a small old powder burn of end on my left ovary & an active spot!! I also had filmy adhesions on my bowel!! They used the laser to treat these areas!!! It's bizarre as I only have endo on my left side!! I was never treated or have never been told about adenomyosis!! Thank u all for ur information & kind words!!

[Tboag]

Defo look for a specialist in endo, it's so sad that so many ladies are still receiving the laser treatment,

Good luck and keep us posted

Xxx

[Netxx]

Hi everyone, I'm a newbie too and so relieved to have found this site. I was diagnosed with Endo in 2004 after a lap. I have received no help whatsoever from GPs/Gynea and just take each day as it comes. Mine is on the right side, ovary, lesions and ligaments so in lots of pain daily and I just fight through it. My female GP told me that Endo shouldn't cause pain :00 - shame on her! xx