Log in
Endometriosis UK
38,076 members33,280 posts

New to this so just a bit about me and would like some advice post lap & mirena x

Hi all,

I have suffered with extremely painful periods since I started having them at 11, they've gotten progressively worse over the years. I've also been diagnosed with B12 deficiency and have injections every 2 months for it.

My experience with my GP was horrendous, he made me feel like I was making my symptoms up and basically said there's nothing wrong with me as the ultrasound he sent me for came back clear and if I had endo, with the pain I'd been saying I had, something would have shown up. After doing my own research I found that you can only be diagnosed with endo by having a laparoscopy 🙄

Luckily I was able to see another GP and she was able to refer me to see a gynaecologist after collapsing at work due to the amount of pain I was in. I think it's quite sad that people have to collapse before they believe that there is a genuine problem!!

I think I waited 2/3 months until I had an appointment. My consultant was so helpful and listened to everything I had to say and was quite shocked it's taken so long for me to be at this point, I explained there were days I had driven to work so out of it on co codomol that I didn't even know how I'd got there. It got so dangerous I just had to let work take money from me for not being able to come in! (They weren't very supportive)

I've been told I'll have to have a laparoscopy to diagnose and treat suspected endo. I'm so nervous as I've never had any hospital treatment but at the same time so happy that I may finally have an answer to 12 years of pain, fatigue and an array of emotions due to various pills and emotional downs as going on with everyday life with such severe pain was just not able to happen.

Is there anything I can do to help me heal and do you think it's wise to have a Mirena Coil fitted if I'm diagnosed ?

I'm 23 with no children and have heard some horror stories about it 🙈

Thank you 😘

5 Replies

Your story is literally identical to mine! I can't believe how similar your experience has been to mine except I'm 21!!

I had my first lap a month ago and was diagnosed. I felt the complete same and was so worried about hospital. It was fine, so much better than I thought. There really is nothing to worry about and my recovery was so quick.

I also read loads of horror stories on the coil however I decided to go for it. I had it for whilst I was under anesthetic as I think it can be uncomfy when awake. The way I saw it was if it can possibly help with the pain I'm in then I'll give anything a try. I had nothing to lose and you can always have it removed if it's not working for you. Atleest you know you gave it a go otherwise you'll always wonder if it could have helped you!

If you have any questions at all please ask away I'm happy to help!

Best of luck and pray you get answers xxx

1 like

I'm so glad it went well for you!! It's good to see that there could be light at the end of this long dark tunnel!

I have my lap on the 8th of May but my initial consultation was September 2016, so long ago I can't even remember everything we discussed.

I am open to try the coil as I have had every painkiller, pill and even tried a TENs machine and nothing has worked.

Thank you so much and hopefully I'll finally have some answers. I'm currently in agony but this will be the last period I have before the procedure so I'm trying to think positively!! Xxx


I've had a bad experience with Mirena, 8 months of almost constant bleeding and emotional side effects which weren't tolerable. Having said that I know some ladies do really well with it. If you struggle with it you can have it removed. But keep an eye on your emotional wellbeing and if you notice a big change consider having it removed xxx

1 like

Thank you for your advice! I will definitely be looking out for emotional well being! I've reacted very badly to certain pills and just stopped taking them as the doctor advised me to stay on them for a minimum of 3 months. This was impossible as I felt horribly low


I've had a very positive experience with the mirena.

Just bear in mind that when things go well, no-one posts comments about it but if the reverse is true there are a deluge of comments which outweigh the users who have had a positive experience.

I'm on my third mirena and so glad as it has made my periods manageable and pain/clot-free.

Happy to chat by DM if you like. 😊


You may also like...