Lungs and hypermobility

[Gretna11]

Just wondering if anyone with JHS has ever had episodes of haemoptysis?

[Saassii]

No I haven't, but I've had haemorrhages in the oral cavity from an exposure to microbial contamination in the home including mold from a water damage. Essentially mold attacks the openings of the body including oral mucosa, lungs, eyes, ears, sinuses. In Ehlers Danlos Syndrome the oral mucosa can be easily damaged, just as easy bruising happens. While you're relating to JHS and I'm more likely cEDS (classical), there's almost certainly a similar mechanism even though it's not been established during testing as yet.

In the States almost 700 infants all died suddenly from pulmonary haemorrhage, it was found they all lived in water damaged homes. The mycotoxins, VOCs, PAMPs, DAMPs etc all caused their lungs to haemorrhage. Be one million percent certain that's not your problem. If it is, get out while you can and ditch everything porous or semi porous. Your life is worth more than everything. Xx

[stillmovin]

Yes. I have EDS joint hyper mobility and developed stomach and lung probs in 2010. I have bronchiectasis. A bout of coughing had sometimes resulted in blood coming up. Had to go to A&E initially, as there was an infection in chest, but have since not had it so badly. It can be common in bronchiectasis. I would try to get it checked although this current crisis of Coronavirus has left GP and hospital visits uncertain for now. Try calling the GP anyway. Take care.