Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

27,430 members•28,798 posts

All things Parkinson's Movement posts

Sort posts by:

mycotoxins

had a mycotoxin urine test which came back positive. How accurate is this test and do these types of mycotoxins cause issues? I read that food we eat...

had a mycotoxin urine test which came back positive. How accurate is this test ...

MPPD

•24 days ago

7 Replies

Tactor design for vibrotactile gloves

I've been working to build a set of vibrotactile gloves for treatment of Parkinson' symptoms for my wife to use. I followed the instructions presented by...

I've been working to build a set of vibrotactile gloves for treatment of Parkins...

Wildsidephotog

•2 months ago

25 Replies

Exploring N-Acetyl-DL-Leucine (NADL) for Parkinson’s & PSP

I've been researching N-Acetyl-DL-Leucine (NADL) and its potential benefits for Parkinson’s Disease (PD) and Progressive Supranuclear Palsy (PSP). Studies...

I've been researching N-Acetyl-DL-Leucine (NADL) and its potential benefits for ...

deebee114

•2 months ago

14 Replies

Want to take advantage of all our features? Just log in!

PD and exercise - first hand experience

I read a lot about exercise benefits for PD. I am sharing my experience. I was diagnosed with PD about 4 years ago. My main symptoms over years are right...

I read a lot about exercise benefits for PD. I am sharing my experience. I was ...

Astronomer90

•2 months ago

33 Replies

creatine and PD

I saw an article on Web MD that referenced from many studies positive effects of creatine on Parkinson's - everything from balance to tiredness and...

I saw an article on Web MD that referenced from many studies positive effects o...

Bittermelons

•5 months ago

10 Replies

Have you had an MRI of the brain? Pros and cons?

I have been diagnosed since 2013 I had several neurologists and none of them recommended a MRI until now. I get claustrophobic in confined spaces. My...

I have been diagnosed since 2013 I had several neurologists and none of them...

Nikosmom

•6 months ago

52 Replies

Just a small reminder about what can rewire our brain...

Neuroplasticity is one of the biggest miracles in the universe.

realk

•6 months ago

2 Replies

Parkinson’s meets flooding - twice

Hubby and I live in port Charlotte Florida. I am disabled by PD. Helene flooded our house but we and hubbys sisters cleaned up and moved back in. We fled to...

Hubby and I live in port Charlotte Florida. I am disabled by PD. Helene floode...

Gallowglass

•6 months ago

12 Replies

Neurodegenerative disorders, metabolic icebergs, and mitohormesis

This review paper is open access. Written by Dr Matthew CL Phillips (clinical researcher on world’s first RCTs of low fat vs low carb diets in Parkinson’s and...

This review paper is open access. Written by Dr Matthew CL Phillips (clinical re...

mitochondria

•7 months ago

3 Replies

Is there such a thing as slow release co beneldopa?

I am fairly recently diagnosed with parkinsons and currently am doing OK however I developed restless legs syndrome a few months ago, before I was even taking...

I am fairly recently diagnosed with parkinsons and currently am doing OK however...

Jess123dog

•8 months ago

12 Replies

NALT (N-Acetyl L-Tyrosine) and PD

Are there posts or has anyone had any success with taking NALT with or instead of Carbidopa/Levadopa?

Are there posts or has anyone had any success with taking NALT with or instead o...

CapSage88008

•8 months ago

5 Replies

Mix B1 HCL and sublingual.

in reference to the title of my post, do you know of people who have had success in the B1 therapy mixing B1 HCL and the sublingual version?? A second query:...

in reference to the title of my post, do you know of people who have had success...

Dubbhoy

•10 months ago

33 Replies

An anthology of poems written by Poets with PD.

My husband has had two of his poems published in this anthology of poems. He enjoys writing these poems as a result of his PD. It’s available on Amazon and...

My husband has had two of his poems published in this anthology of poems. He en...

Zella23

•10 months ago

8 Replies

Experience with tapering Neupro, Dopamine Agonists, and managing DAWS

Hi all, I'm reaching out specifically to those who have lived with Parkinson's disease for over 10 years and have decided to discontinue dopamine agonists...

Hi all, I'm reaching out specifically to those who have lived with Parkinson'...

WittyPD

•10 months ago

14 Replies

using Nicotine patch to control dyskinesia

I read that smokers have lower risk getting Parkinson’s. Nicotine is supposed to help with modulation of dopamine (sort of like gatekeeper) so it prevents...

I read that smokers have lower risk getting Parkinson’s. Nicotine is supposed to...

Parkie77

•11 months ago

2 Replies

ministry of funny walks and dangerous ones too

I’ve had issues with my gait for a while, but I haven’t had such terrible problems at night walking around the house as I have lately ! It seems festination...

I’ve had issues with my gait for a while, but I haven’t had such terrible prob...

Oceanflow

•11 months ago

20 Replies

Intense leg cramps

Parkinson's Meds 2C/L 25-100 4x per day- 6am, 10am, 2pm, 6pm 1 Amantadine 2x per day 1 C/L ER at bedtime Diagnosed in 2017, started medication a year...

Parkinson's Meds 2C/L 25-100 4x per day- 6am, 10am, 2pm, 6pm 1 Amantadine 2x...

mleec

•1 year ago

48 Replies

Hypersexuality and impulse control disorders (ICD)

Greetings everyone, I am reaching out as the spouse of a Parkinson's patient. My husband, aged 58, has been battling Parkinson's for 12 years now. Physically,...

Greetings everyone, I am reaching out as the spouse of a Parkinson's patient. M...

Out_let

•1 year ago

36 Replies

Glove Use Question: Activities and Tips

Question for those using Stanford/Tass-like gloves - including DIYers, Stanford or Synergic trial participants. What do you typically do while wearing the...

Question for those using Stanford/Tass-like gloves - including DIYers, Stanford ...

Neurosmith

•1 year ago

32 Replies

Cat's Claw

Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?

Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( t...

b-bobble

•1 year ago

4 Replies

DIY Glove Tactor Housing Design WiP

Sharing my tactor housing design in case it's helpful for others as well as to kind of crowdsource design feedback. Fed up with the unacceptably slow...

Sharing my tactor housing design in case it's helpful for others as well as to k...

Neurosmith

•1 year ago

38 Replies

National Bill to End Parkinson's

Hello, I'll keep it short and sweet. 55 yr male. Diagnosed at 42 yr. Fitness fanatic, which has kept this damn disease at bay......for the most part. Just...

Hello, I'll keep it short and sweet. 55 yr male. Diagnosed at 42 yr. Fitness fan...

Metalovinshaker13

•1 year ago

7 Replies

Need your feedback and suggestions = please review the video and comment

I came across an enlightening YouTube video featuring Dr. Jonathan Sackner-Bernstein -------------paste [https:] then add...

I came across an enlightening YouTube video featuring Dr. Jonathan Sackner-Berns...

RioIsHerName

•1 year ago

12 Replies

Botox for dystonia

I was having muscle spasms in my neck ans shoulders. My neurologists injected my neck with Dysport which is a form of Botox. After a couple of days I could...

I was having muscle spasms in my neck ans shoulders. My neurologists injected m...

Southernladyla

•1 year ago

13 Replies

Synapses - exsecises

Hi, I am looking for walking exercises to strengthen the synapses in the brain. Does anyone have a good link for that? Thank you.

Hi, I am looking for walking exercises to strengthen the synapses in the brain. ...

Margot59

•1 year ago

4 Replies

Latest Pat Riddle Video Update - Oct 2

Pat Riddle released his latest update video today. Looks like the gloves continue to be working for him. Most of the video he talks about other things he's...

Pat Riddle released his latest update video today. Looks like the gloves continu...

Neurosmith

•2 years ago

8 Replies

Did PD start on your right side or left side?

I am interested to know if your symptoms started on your less dominate side, I am VERY right handed and my symptoms are mainly in my left arm at the moment. I...

I am interested to know if your symptoms started on your less dominate side, I a...

Jess123dog

•2 years ago

27 Replies

Hello, I'm new to this group but not to PD

Hi, I found this group when I was looking for places to post my Theracycle for sale. I am a 62 year old woman, diagnosed with essential tremor when I was 41...

Hi, I found this group when I was looking for places to post my Theracycle for s...

YOPDHope

•2 years ago

1 Reply

Hallucinations + Delusions as med side effect, are either worse than the other? Will they be permanent if not addressed?

dad started parkinson's meds in late March this year and has hallucinations + delusions as a side effect, reported in May. he started with C/L + Mirapex 2x/day...

dad started parkinson's meds in late March this year and has hallucinations + de...

daughter-Advocate

•2 years ago

12 Replies

high dose thiamine (B1) vitamins

I am new to this forum Healthunlocked.. My father in law 70 years old suffering from PD last 4 years and his progression seems fast. We came to know from...

I am new to this forum Healthunlocked.. My father in law 70 years old suffering ...

Ganpad

•2 years ago

9 Replies

Write a post or ask a question

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All things Parkinson's Movement posts

mycotoxins

Tactor design for vibrotactile gloves

Exploring N-Acetyl-DL-Leucine (NADL) for Parkinson’s & PSP

PD and exercise - first hand experience

creatine and PD

Have you had an MRI of the brain? Pros and cons?

Just a small reminder about what can rewire our brain...

Parkinson’s meets flooding - twice

Neurodegenerative disorders, metabolic icebergs, and mitohormesis

Is there such a thing as slow release co beneldopa?

NALT (N-Acetyl L-Tyrosine) and PD

Mix B1 HCL and sublingual.

An anthology of poems written by Poets with PD.

Experience with tapering Neupro, Dopamine Agonists, and managing DAWS

using Nicotine patch to control dyskinesia

ministry of funny walks and dangerous ones too

Intense leg cramps

Hypersexuality and impulse control disorders (ICD)

Glove Use Question: Activities and Tips

Cat's Claw

DIY Glove Tactor Housing Design WiP

National Bill to End Parkinson's

Need your feedback and suggestions = please review the video and comment

Botox for dystonia

Synapses - exsecises

Latest Pat Riddle Video Update - Oct 2

Did PD start on your right side or left side?

Hello, I'm new to this group but not to PD

Hallucinations + Delusions as med side effect, are either worse than the other? Will they be permanent if not addressed?

high dose thiamine (B1) vitamins

Search posts

Pinned Posts

Latest poll

In your adult life, have you ever had a Helicobacter pylori infection?

Topics

Archive