Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,582 members•27,897 posts

All posts for October 2024

Three people in my family diagnosed with autoimmune disease in 1 summer!

Early in June, my 26 yr old daughter was diagnosed with MS when she developed double vision in one eye. Later that month, I was diagnosed with Parkinsons,...

Early in June, my 26 yr old daughter was diagnosed with MS when she developed do...

NewtoPD24

•21 days ago

38 Replies

What’s up with the absence of any Parkinson’s symptoms throughout the night?

I have my daily struggles with my Parkinson’s symptoms and the on and off periods and the precise dosing of my sinemet during the daytime hours to get me...

I have my daily struggles with my Parkinson’s symptoms and the on and off period...

Mimi828

•21 days ago

29 Replies

Genes are not blueprints for life

a very interesting podcast that proves it is not genes that control disease. I watched on double speed 🤩 Denis Noble is a renowned biologist and pioneer in...

a very interesting podcast that proves it is not genes that control disease. I w...

LAJ12345

•21 days ago

7 Replies

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The Beneficial Role of Thiamine in Parkinson Disease

https://pmc.ncbi.nlm.nih.gov/articles/PMC6493530/#cns12078-bib-0013 This is from 2013, but still relevant. Jumping straight to conclusions it provides reasons...

https://pmc.ncbi.nlm.nih.gov/articles/PMC6493530/#cns12078-bib-0013 This is from...

Mob0

•21 days ago

3 Replies

Dr Constantini

Regarding Dr Cs protocol on high dose B1 are there any Anglo-Saxons out there that use B1 injections? If so how many ‘mg’ did Dr C instruct to inject???? I...

Regarding Dr Cs protocol on high dose B1 are there any Anglo-Saxons out there th...

Isotope

•21 days ago

14 Replies

accutane / isotretonoin

My first Parkinson’s symptoms started just 2 weeks after beginning a treatment for rosacea with accutane / isotretonoin. Isotretonoin has a long list of...

My first Parkinson’s symptoms started just 2 weeks after beginning a treatment f...

Xauxatz

•22 days ago

23 Replies

LSVT Loud U.K?

Hi. You I’m thinking of trying this out but am finding it hard to locate a therapist in the Birmingham area. Would any of the community know of anybody? 🙏...

Hi. You I’m thinking of trying this out but am finding it hard to locate a thera...

jeeves19

•22 days ago

17 Replies

carbidopa levodopa Dosage

Diagnosed in 2022, late onset at age 75 with slight symptoms before. Slightly dragging my left foot and unable to run was alarming and led me to get checked...

Diagnosed in 2022, late onset at age 75 with slight symptoms before. Slightly dr...

Waxbeans

•22 days ago

22 Replies

Fast walker John Pepper died

https://www.reddit.com/r/Parkinsons/s/80yuTQdDSn RIP John. What an inspiration for all of us who are living with PD. Keep moving that's what John taught us.

https://www.reddit.com/r/Parkinsons/s/80yuTQdDSn RIP John. What an inspiration ...

Astronomer90

•23 days ago

76 Replies

Free speech help for patients in Az, Ca, and Va; virtual help for overseas patients

Hello! I hope it’s OK to post this and it is a little long but I think it’s great to know about. Free for Parkinson’s folks looking for help with speech:...

Hello! I hope it’s OK to post this and it is a little long but I think it’s grea...

Godiv

•23 days ago

3 Replies

HRT and B1, does anyone know if they affect each other?

Does anyone know if Hormone Replacement Therapy affects the amount of vitamin B1 needed? I am still trying to get my sweet spot for B1 and wondered if the HRT...

Does anyone know if Hormone Replacement Therapy affects the amount of vitamin B1...

Jess123dog

•23 days ago

5 Replies

Pd senza farmaci

vogllio raccontarvi la mia storia. A 3 anni dalla diagnosi e 11 anni dai primi sintomi ad oggi non assumo terapia farmacologica.credo che questo sia possibile...

vogllio raccontarvi la mia storia. A 3 anni dalla diagnosi e 11 anni dai primi s...

SereAve

•23 days ago

5 Replies

A Single Workout Can Improve Your Brain: Here’s What Scientists Found

https://scitechdaily.com/a-single-workout-can-improve-your-brain-heres-what-scientists-found/#comments

https://scitechdaily.com/a-single-workout-can-improve-your-brain-heres-what-scie...

Farooqji

•23 days ago

1 Reply

Dr. Mark Gallay will join our Zoom meeting, Sunday, Nov. 17 to discuss MRI guided FUS Palidothalamic Tractotomy (PTT)

We have a HU support group that meets via Zoom every Sunday at 12 Noon US, Eastern Standard Time World time zone map;...

We have a HU support group that meets via Zoom every Sunday at 12 Noon US, Easte...

MBAnderson

•24 days ago

12 Replies

Crexont

I am interested in hearing from people who have tried the new drug Crexont. My neurologist wanted to me to try it and see if it would increase my on time. I...

I am interested in hearing from people who have tried the new drug Crexont. My ...

luckyrock

•24 days ago

1 Reply

Crexont

I am interested in hearing from people who have tried the new drug Crexont. My neurologist wanted to me to try it and see if it would increase my on time. I...

I am interested in hearing from people who have tried the new drug Crexont. My ...

luckyrock

•24 days ago

4 Replies

Promise for Treating Parkinson’s Disease

https://directorsblog.nih.gov/2024/09/12/energy-producing-enzyme-fuels-the-brain-with-promise-for-treating-parkinsons-disease/

https://directorsblog.nih.gov/2024/09/12/energy-producing-enzyme-fuels-the-brain...

robinson621

•24 days ago

8 Replies

interesting article

https://www.foxnews.com/health/new-parkinsons-drug-could-slow-reverse-progression-disease-researchers-step-forward

https://www.foxnews.com/health/new-parkinsons-drug-could-slow-reverse-progressio...

robinson621

•24 days ago

4 Replies

Emodin (from Japanese knotweed)

Has anyone here noticed an improvement in symptoms after taking emodin, especially if you used Japanese knotweed as your source of emodin?

Has anyone here noticed an improvement in symptoms after taking emodin, especial...

Discogs_discogs

•24 days ago

Be the first to reply

propranolol forvtremors

My neurologist prescribed propranolol for my tremors. I read that some folks had success with it. Unfortunately it gave me nausea and abdominal pain. Any...

My neurologist prescribed propranolol for my tremors. I read that some folks had...

Youngoma

•24 days ago

2 Replies

When to take Dopa Mucuna?

Hi, I've been diagnosed with PD for about 7 years. Curentlly taking Levo/Carb 100/25 throughout the day. (1.5 at 8am, 1.5 at 11am, 1 at 2 and one at 5pm.)...

Hi, I've been diagnosed with PD for about 7 years. Curentlly taking Levo/Carb 10...

Kazantzakis

•25 days ago

14 Replies

Tanganil?

Hi! Is anyone out there using Tanganil ( acetyl dl leucine) capsules? I know a couple of people are using Acetyl l Leucine in powder form.

Hi! Is anyone out there using Tanganil ( acetyl dl leucine) capsules? I know a ...

ghoegap

•26 days ago

33 Replies

Nz blackcurrant molecule inhibits enzyme that degrades dopamine

***Please read Jays comment below about interactions.**...

LAJ12345

•26 days ago

19 Replies

TMS;(transcranial, magnetic stimulation)

Does anyone have experience with this ? FDA has approved TMS to treatmment MDD (Major Depressive Disorder)and the patient is drug resistant or has not found...

Does anyone have experience with this ? FDA has approved TMS to treatmment MDD ...

Jmellano

•27 days ago

6 Replies

Bioness- Can anyone share their experience? I couldn't find any recent posts on here.

My hwp has gait problems, balance issues, sometimes freezing, and weakness in his left leg. I know it says it can help with MS. What about Cionic? I wonder...

My hwp has gait problems, balance issues, sometimes freezing, and weakness in hi...

$Fricnfrac1999 profile image$

Fricnfrac1999

•27 days ago

5 Replies

Running short of C/L on vacation in London

We are on vacation in London (Mayfair) and somehow, I didn’t bring enough Sinemet (25/100) 🙄. I’m hoping to find a doctor to write me a prescription for 5...

We are on vacation in London (Mayfair) and somehow, I didn’t bring enough Sineme...

jocelyng

•28 days ago

9 Replies

Constipation

Could someone, or park_bear, post a link to park bear's grand master list of constipation remedies? The search bar doesn't doesn't seem to be working for...

Could someone, or park_bear, post a link to park bear's grand master list of con...

beatles4ever

•28 days ago

8 Replies

Have you had an MRI of the brain? Pros and cons?

I have been diagnosed since 2013 I had several neurologists and none of them recommended a MRI until now. I get claustrophobic in confined spaces. My...

I have been diagnosed since 2013 I had several neurologists and none of them...

Nikosmom

•28 days ago

52 Replies

anyone read ‘Why isn’t my brain working?’

just found it and looks interesting

AnArtist

•28 days ago

5 Replies

Mucuna pruriens / dyskinesia

Hello, I would like to know if Mucuna Pruriens can increase dyskinesia. I know the medications can have that effect. My Husband used to take pramiprexole and...

Hello, I would like to know if Mucuna Pruriens can increase dyskinesia. I know...

Phototherapy

•29 days ago

22 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for October 2024

Three people in my family diagnosed with autoimmune disease in 1 summer!

What’s up with the absence of any Parkinson’s symptoms throughout the night?

Genes are not blueprints for life

The Beneficial Role of Thiamine in Parkinson Disease

Dr Constantini

accutane / isotretonoin

LSVT Loud U.K?

carbidopa levodopa Dosage

Fast walker John Pepper died

Free speech help for patients in Az, Ca, and Va; virtual help for overseas patients

HRT and B1, does anyone know if they affect each other?

Pd senza farmaci

A Single Workout Can Improve Your Brain: Here’s What Scientists Found

Dr. Mark Gallay will join our Zoom meeting, Sunday, Nov. 17 to discuss MRI guided FUS Palidothalamic Tractotomy (PTT)

Crexont

Crexont

Promise for Treating Parkinson’s Disease

interesting article

Emodin (from Japanese knotweed)

propranolol forvtremors

When to take Dopa Mucuna?

Tanganil?

Nz blackcurrant molecule inhibits enzyme that degrades dopamine

TMS;(transcranial, magnetic stimulation)

Bioness- Can anyone share their experience? I couldn't find any recent posts on here.

Running short of C/L on vacation in London

Constipation

Have you had an MRI of the brain? Pros and cons?

anyone read ‘Why isn’t my brain working?’

Mucuna pruriens / dyskinesia

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