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Cure Parkinson's

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Book Revision

Hi friends! Last year i have published a book called "Enquanto correr há Esperança", about my journey with Parkinson's that at the same time aims to be a...

Hi friends! Last year i have published a book called "Enquanto correr há Espera...

Markbit

•2 months ago

2 Replies

Rotigotine/Neupro patches causing deep drowsiness after food

I've recently been ramping up to my current 8mg of neupro. However now I'm noticing that an hour after any significant food I get a deep sleepiness to the...

I've recently been ramping up to my current 8mg of neupro. However now I'm notic...

Jefferami

•4 months ago

15 Replies

Holliday gift ideas for people with PD

I found this an interesting article. Not only it gives some good ideas, but also helps us explain some of the issues we are facing with PD....

I found this an interesting article. Not only it gives some good ideas, but also...

mishod

•5 months ago

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Psalm 119:143

As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my...

As a believer that Jesus Christ is God and I have found him as my Lord & Saviour...

Psalm119143

•7 months ago

27 Replies

Anyone struggling with low Blood pressure (orthostatic hypotension) and using droxidopa? How to manage? Thx!

my hwp has very erratic BP readings. Doctors switched from midodrine to droxidopa (northera) 3 weeks ago to see if can regulate. But his dose of stalevo every...

my hwp has very erratic BP readings. Doctors switched from midodrine to droxidop...

tg1058

•8 months ago

17 Replies

An opera written for/by and performed by PWP!

Hi all I'm posting this as a bit of light relief. If you like this kind of thing I think it might be therapeutic and empowering to watch it - for enjoyment,...

Hi all I'm posting this as a bit of light relief. If you like this kind of thi...

Smokeypurple

•8 months ago

8 Replies

Anyone else have a Skin Biopsy?

Last year the movement disorder neurologist told me that I had Atypical Parkinson’s disease. I was diagnosed in 2019 with PD when the Dat. Scan showed...

Last year the movement disorder neurologist told me that I had Atypical Parkins...

BeachcomberFL

•9 months ago

26 Replies

Solution to assist PWP Wheelchair challenges .

Assisting person with Parkinson's in a wheelchair. Hopefully this tip may help other PWP .

Assisting person with Parkinson's in a wheelchair. Hopefully this tip may help o...

NuroMod

•10 months ago

1 Reply

Swallowing or choking problem

After having PD for 11 years I have been having a problem with food particles and even liquids starting to go down my trachea and I start coughing. Is this the...

After having PD for 11 years I have been having a problem with food particles an...

Joanne_Joyce

•1 year ago

21 Replies

PEMF - Pulse Electromagnetic Field reduces Parkinson’s symptoms.

I was diagnosed with PD in 2018 after 2 DaTscans. My main symptoms are rigidity, fatigue and serious pain. I do not have a tremor and my gait is good. After...

I was diagnosed with PD in 2018 after 2 DaTscans. My main symptoms are rigidity...

Parkie369

•1 year ago

22 Replies

Terahertz Frequency Wand, healed my back pain.

You may be aware of the recent craze around the iteracare Terahertz Frequency Wand found on many social media platforms. Terahertz is the frequency that...

You may be aware of the recent craze around the iteracare Terahertz Frequency Wa...

Cons10s

•1 year ago

22 Replies

how to increase the dose of vitamin b1 hcl every week?

I am on the hdt protocol Doctor Constantini... I've been doing it for six months, I'm very careful... since last Sunday, I'm on 500 mg... I will stay...

I am on the hdt protocol Doctor Constantini... I've been doing it for six mon...

Lolo2022

•2 years ago

6 Replies

Call for a more complete vitamins blood testing, especially b6.

I would have preferred to write about my coping with PD at a later stage, but in view of recent events I would like to warn you about the possible consequences...

I would have preferred to write about my coping with PD at a later stage, but in...

Esperanto

•2 years ago

32 Replies

PTT FUS in Switzerland - 1 & 1/2year update

Every year around this time (my birthday), I have a recurring thought. How will I be in a year? Will I still be functional? Will I be autonomous? Will I be...

Every year around this time (my birthday), I have a recurring thought. How will ...

Markbit

•2 years ago

19 Replies

Chlorogenic Acid Adverse, n=1

Chlorogenic acid is a component of the coffee bean. There are favorable studies of its effect on Parkinson's in animal models. No interventional clinical...

Chlorogenic acid is a component of the coffee bean. There are favorable studies ...

park_bear

•2 years ago

11 Replies

Has anybody had success reducing drooling? Also has anybody had success gaining weight. I am down to 97 pounds and I am 5 foot seven

I have started amantadine recently. It is the only drug I am on. My drawing increase significantly and I have lost even more weight. Does anybody have any...

I have started amantadine recently. It is the only drug I am on. My drawing incr...

Marcia123

•2 years ago

6 Replies

Levadopa

208 years and still NO medicine that stops or improves Parkinson.. Levadopa discovered in 1910 used in 1960's for Parkinson. I'm impressed that researchers can...

208 years and still NO medicine that stops or improves Parkinson.. Levadopa disc...

Curious_Fred

•2 years ago

10 Replies

Sleeping issues

I wonder if any PWP experience rapid eye movement disorder and how is it treated? My husband has been diagnosed and it affects my own sleeping as he wakes me...

I wonder if any PWP experience rapid eye movement disorder and how is it treated...

Lorraine33

•2 years ago

12 Replies

Diagnosis newbie

Hi all. Im a newbie. My mother was diagnosed with parkinsons approximately 10 yes prior to myself noticing symptoms. I first approached my doctor who was very...

Hi all. Im a newbie. My mother was diagnosed with parkinsons approximately 10 ye...

Ian1962

•2 years ago

7 Replies

How much Zandopa for 15-year diagnosis, needing symptom relief?

Hello! Dad has had PD for 15 years and is currently taking neuro meds like C/L along with Zandopa. How much is safe to take of Zandopa? Wondering if we can...

Hello! Dad has had PD for 15 years and is currently taking neuro meds like C/L ...

rsacdoolittle

•2 years ago

4 Replies

Update no 2 - started Levadopa :-( but staying positive (most of the time :-))

Interested in knowing any tips and ideas except from those I am already taking https://fightingparkinsonss.com/2022/01/09/2021-into-2022-an-update/

Interested in knowing any tips and ideas except from those I am already taking h...

blazyb

•2 years ago

4 Replies

Laughter Is More than Just Good Medicine

I share some of my laughable (at least to me) Parkinson’s moments, here and on Facebook (including the latest about my “visit” to the optometrist) with the...

I share some of my laughable (at least to me) Parkinson’s moments, here and on F...

PDbyGrace

•2 years ago

21 Replies

Wrestle Mania: PwP vs Retinal Camera

The next time you have your eyes examined, you may be offered an alternative to dilating your eyes with drops. It is the Optos Daytona Non Myd Ultra Widefield...

The next time you have your eyes examined, you may be offered an alternative to ...

PDbyGrace

•2 years ago

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You might be a PWP...

You might be a PWP… …if the first words people say to you are, “You look good!” and the next are “Huh?” or “What?”or “I’m sorry. I didn’t understand what you...

You might be a PWP… …if the first words people say to you are, “You look good!” ...

PDbyGrace

•2 years ago

1 Reply

A Funny Thing Happened on the Way Upstairs

Her name is Bella and she wouldn’t let me up the stairs. Why not? She is a black, seventy pound crossbreed of Great Pyrenees and poodle—a pyredoodle. While...

Her name is Bella and she wouldn’t let me up the stairs. Why not? She is a blac...

PDbyGrace

•2 years ago

15 Replies

For Someone Struggling with Being in the Way

The physical discomfort of Parkinson-induced rigidity. The frustration of its debilitating effects on cognition and communication—the ability to think and to...

The physical discomfort of Parkinson-induced rigidity. The frustration of its d...

PDbyGrace

•2 years ago

23 Replies

How many doctors do you guys have?

I've got one for PD, one for MS, an oncologist, a cardiologist, a dermatologist, a urologist, and a GP. A while ago I had my one-year anniversary of...

I've got one for PD, one for MS, an oncologist, a cardiologist, a dermatologis...

kaypeeoh

•2 years ago

9 Replies

I leave here a translation from my last facebook post. Consider it as my 11 months FUS Surgery update.

Sorry for some bat translations, i'm not an english native speaker. Évora 21-27 Évora Half Marathon – 10 Km race The day started not too early, 7:45, I...

Sorry for some bat translations, i'm not an english native speaker. Évora 21-27...

Markbit

•2 years ago

35 Replies

Rapid weight loss

i am 14 years diagnosed have gone from a chubb 185 lbs. to a slim 160 lbs. in 2 months. i did start eating a little better and started riding my bike but...

i am 14 years diagnosed have gone from a chubb 185 lbs. to a slim 160 lbs. in 2...

bobhasparkinsons-com

•2 years ago

7 Replies

MRigFUS in Switzerland - 9 months update

If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was...

If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it...

Markbit

•3 years ago

17 Replies

Write a post or ask a question

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

My Experience posts

Book Revision

Rotigotine/Neupro patches causing deep drowsiness after food

Holliday gift ideas for people with PD

Psalm 119:143

Anyone struggling with low Blood pressure (orthostatic hypotension) and using droxidopa? How to manage? Thx!

An opera written for/by and performed by PWP!

Anyone else have a Skin Biopsy?

Solution to assist PWP Wheelchair challenges .

Swallowing or choking problem

PEMF - Pulse Electromagnetic Field reduces Parkinson’s symptoms.

Terahertz Frequency Wand, healed my back pain.

how to increase the dose of vitamin b1 hcl every week?

Call for a more complete vitamins blood testing, especially b6.

PTT FUS in Switzerland - 1 & 1/2year update

Chlorogenic Acid Adverse, n=1

Has anybody had success reducing drooling? Also has anybody had success gaining weight. I am down to 97 pounds and I am 5 foot seven

Levadopa

Sleeping issues

Diagnosis newbie

How much Zandopa for 15-year diagnosis, needing symptom relief?

Update no 2 - started Levadopa :-( but staying positive (most of the time :-))

Laughter Is More than Just Good Medicine

Wrestle Mania: PwP vs Retinal Camera

You might be a PWP...

A Funny Thing Happened on the Way Upstairs

For Someone Struggling with Being in the Way

How many doctors do you guys have?

I leave here a translation from my last facebook post. Consider it as my 11 months FUS Surgery update.

Rapid weight loss

MRigFUS in Switzerland - 9 months update

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