National Bill to End Parkinson's - Cure Parkinson's

Cure Parkinson's

26,582 members27,897 posts

National Bill to End Parkinson's

Metalovinshaker13 profile image
7 Replies

Hello, I'll keep it short and sweet. 55 yr male. Diagnosed at 42 yr. Fitness fanatic, which has kept this damn disease at bay......for the most part. Just wondering what everyone thinks of this new Bill to End Parkinson's Act. Should we be excited, worried, indifferent? Is it gonna just be all talk and red tape or are they really gonna make an effort to fight it? Thoughts?

Written by
Metalovinshaker13 profile image
Metalovinshaker13
To view profiles and participate in discussions please or .
Read more about...
7 Replies
CuriousMe12 profile image
CuriousMe12

I'm uk. Do you have a link to it,

Farooqji profile image
Farooqji in reply toCuriousMe12

I think he is referring to the following

nwaonline.com/news/2023/dec...

wexton.house.gov/news/docum...

CuriousMe12 profile image
CuriousMe12 in reply toFarooqji

Sounds a good idea.In every project I've worked on there's been regular updates on progress toward the objective.

Be good if progress in big medical objectives could be similarly reported nationally. Might provide some focus.

JohnPepper profile image
JohnPepper

Hi. I was diagnosed in 1992 with PD and after taking PD medication for 2 years, with no improvement I started a fast walking program, which within three years had reversed all my PD sympoms. If I stop the fast walking I slowly get worse.

I have written this story a hundred times and nobody from the medical world has come back to me for more details. I have written a book about it and have sold hundreds of thousands of copies.

I have to assume that they don't want us to get better! I have not needed any PD medication since 1997.

I have been all over the English-speaking world and to several non-English-speaking countries and demonstrated my fast walking, even to wheelchair-bound and bed-bound patients who could still stand up on their own two feet. They were all immediately able to walk normally by concentrating on their leg movements. Normally, our walking is cointrolled by our sub-conscious brain. I have been consciously walking for twenty-six years and am now 89 years old!

I have now been PD symptom-free for twenty-six years

If yo want to run with this, then be my guest!

LindaP50 profile image
LindaP50

Yes, exciting news. Hopefully people with PD can receive better care, funding for research to end Parkinson's and so much more.

tonko.house.gov/news/docume...

Eryl profile image
Eryl

I think that they don't realise that Parkinson's is intrisically linked to diet and sorting out diet would mean the end of the processed food industy so they'd face tremendous opposition.

Hilo64 profile image
Hilo64

I don’t see any downside to the bill. If it will help us get to a significant breakthrough faster let’s pass it. Just like with all the clinical trials out there of which I’m currently participating in my third trial, every bit helps.

Not what you're looking for?

You may also like...

How long can I keep teaching with Parkinson's?

I have the little ones (4 yr. old at risk Pre-K) and I'm exhausted! Love the kids but all the...
bulldogmom profile image

Coming to an end

Well my journey to Bali is rapidly coming to an end. I leave to fly home Thursday night(Friday AM)....
Sadiesadie profile image

New to Parkinson's

Was just diagnosed with early stages of PD. Dr prescribed Rasagiline 1mg to start off with, but...
SAGoodman profile image

Parkinson's

I was diagnosed in 2008 at age 65 with onset Parkinson's. I consider myself case manager and...

Parkinson's Bias

No matter who you are or where you live at some point you will become the whipping post/scapegoat...
beehive23 profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.