In your adult life, have you ever had a H... - Cure Parkinson's

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In your adult life, have you ever had a Helicobacter pylori infection?

CPT_Helen profile imageCPT_HelenPartner369 Voters

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36 Replies

But I have had terrible reflux and eventually developed Barrett's esophagus.... Today I have Parkinson's and I believe there is a connection if not a correlation between the two.

Ken_Butler profile image
Ken_Butler in reply to Judypdr

I get reflux my doctor prescribed LANSOPRAZOLE 30mg once per day and it seems to keep it in check

in reply to Judypdr

It can be the medication. You get acidic liquid with all medication and then Cardia mouth of stomach gets inflamed. Try Good quality of magnesium..

I believe the recent theory that parkinsons forms in the gut and is transfered to the brain via the vagus nerve i,v always thought this was a possibility ever since i started having stomach problems i my 20,s

pen1 profile image
pen1 in reply to alanrob

Dx Young Onset 2003. Now 65. I'm sure the PD entered my brain via the vagus nerve after my gut bacteria balance was affected by measles - which I had very badly aged 8. Afterwards I developed what was then described as spastic colon and its main manifestation was sudfen crippling bowel pains, constipation and masses of gas rumbling very noisily in my stomach and ,worse, often escaping ! This is still a problem and is definitely related to sugar consumption . I was told i was frequently 'delirious ' with measles and ever since i have had what i presume is REM sleep disorder ( dismissed in my childhood as another manifestation of my bad behaviour ) which has gradually reached the level today of beibg a severe social problem. I dream very vividly and have unusual levels of recall. I don't , however, remember anything about the talking shouting, crying singing i do most nights in my sleep and even myfrequent blood curdling screams I don't usually wake me up. I never walked in my sleep and my arm movements have diminished due presumably to PD. I've read that there are 3 very strong predictors that a child will develop Young Onset PD . They are constipation, REM skeep disorder and risk avoidance. The First two are ticked and I was always risk averse but this was evident before measles. I understand how measles is very likely to have permanently unbalanced my gut biome leading to pressure which damages to the vagus nerve which then allows the PD pathogen to travel up it into the brain.But can anyone explain why the prediction is only valid when the trio are present.

Can anyone explain whether risk aversion a result of or an indicator of the gut bacteria being vulnerable? Many thanks

I always had tummy issues.Was diagnosed with IBS years ago

I believe constipation plays a roll. It seems PWP have typically encountered lifelong constipation. I was a bit shocked when my sister told me I should not need to push for a bowel movement. She said I should just release.

Interesting, there might b a connection, but this is the first I have heard about this theory.

But my Mother has and she doesn't have P.D.

To my knowledge, I've never been tested for any infections. Of those who answered no, I wonder if they have been tested. My daughter has just recently been diagnosed with an HP infection. Her doctor said that often a person doesn't even know they have one.

That's true I didn't know that I had it.

Kizzmil profile image
Kizzmil in reply to Wendyhalpin

Hi before I had my gall bladder out I had pancreatisis and had to wait 6 weeks before I could have my gall bladder op .But it took years to get a diagnosis and feel the doctors let me down badly

Kizzmil profile image
Kizzmil in reply to Kizzmil

I was told later that the diclofenac I was taking at the time was causing my problem

Wendyhalpin profile image
Wendyhalpin in reply to Kizzmil

That’s not good, I had to wait a while before they diagnosed mine I can never understand why it takes so long. I hope you are feeling better now. I’m doing ok holding my own.

How can u tell if you have had,

I had reflux and they tested me for it.

My liver readings were also up.

I was hospitalized 1987 for bleeding duadinal ulcer, and my Dr. Tested me for Helicobacter pylori infection.

In 1990 I was diagnosed with primary biliary chirossis (a rare liver desease)

In 2009 I was diagnosed with Parkinson's

Why

I had for many years a stressed stomach and I could not tolerate animal-fat. That changed when I changed job. Now after 12 years of PS I have reflux, and take Somac 20mg every day

Wendyhalpin profile image
Wendyhalpin in reply to monast

I take somac every day also, but one time they gave me the generic brand and I had a bad reaction to it nearly killed me. It was after that my Parkinson's kicked in I didn't know I had it until then.

No, but I have missing receptors for b12 in the gut, which produce something called intrinsic factor. Auto-immune something or another, Causes neurological damage. Often wonder about this as there is a polyautoimmune syndrome in which doctors in Dundee identifired PD plus several other auto immune conditions coexist. I have three of them, plus a potential fourth. Just noting, not self diagnosin, ;)

It is an interesting question! I presume you are looking at a transport system for alphasyn? Right now I am looking for a transport system for e. coli, which strictly speakiing should not turn up between my vertebrae, another transport issue. The argument is that there isn't one! We have a lot to learn!

I had at least 4 episodes of helibactor both before and after my diagnosis of Parkinsons. Now I have severe acid reflux. I firmly believe that there is a link between gut problems and Parkinsons. In fact, I asked this question some time ago and received a number of replies.

I think the connection is more just the "disrupted gut bacteria" and poor digestion in general -- and h. pylori is just one kind of bad bacteria that can overgrow when the good gut bacteria isn't in balance... What goes on in the gut impacts the brain on some level... and this is just one more way... My husband seems to do better (with his h. pylori level, at least) when he eats foods that have good bacteria in them... sauerkraut and other fermented veggies, kombucha, Bravo yogurt, etc.

I have had stomach problems for a long time. And last year had a terrible reaction to generic tablets. I was so sick and couldn't work out what was wrong. I had been on Somac for years and didn't even think about the generic tablets causing it. And haven't been good ever since.

Kizzmil profile image
Kizzmil in reply to Wendyhalpin

I had terrible stomach pains for years & was in & out of hospital then had to have gall bladder

Wendyhalpin profile image
Wendyhalpin in reply to Kizzmil

Hi I’ve had my gallbladder removed also before I was diagnosed with Parkinson’s.

YES, A really nasty case, I was hospitalised for several days, while living in Central America.. But the cure was terrible, Whatever pills they gave me made me violently nauseous.

I got the infection in the hospital as I was recovering from an aortic dissection several years after being diagnosed with PD. Interestingly, I took the drug Avelox (similar to Cipro, Levaquin and other strong antibiotics/fluoroquinolones) for bronchitis in 2011. I immediately had several horrible side-effects - tremor, anxiety, leg cramps, Achilles Heel ruptures/pain, and within a few weeks, full-blown Parkinson's symptoms. My first three neurologists refused to believe that my PD could have been drug-induced. My current movement specialists fully accept the probability that this drug could have at least "triggered" the PD. Three years after the Parkinson's diagnosis, I barely survived an aortic dissection, stroke, and 13 hours of surgery. I now have a mesh and artificial heart valve and have to take blood thinner and monitor my blood thickness weekly. I understand now that thousands of people have contracted Parkinson's, Aortic Dissections, and other serious conditions after taking a fluoroquinolone med. I got BOTH!

I do believe that I actually had it previous to diagnosis of PD

Research supports a strong association with PD. pubmed.ncbi.nlm.nih.gov/303...

Yes before I had parkinsons

WELL I HAVE GOOD DAYS AND BAD WITH PD BUT YOU JUST HAVE TO TRY TO KEEP GOING. HOW ARE YOU KEEPING YOURSELF? XX