LSVT Loud U.K?: Hi. You I’m thinking of... - Cure Parkinson's

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LSVT Loud U.K?

jeeves19 profile image
17 Replies

Hi. You I’m thinking of trying this out but am finding it hard to locate a therapist in the Birmingham area. Would any of the community know of anybody?

🙏 Thanks, Jeeves

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jeeves19 profile image
jeeves19
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17 Replies
Boscoejean profile image
Boscoejean

there are some videos on youtube with LSVT until you can find a therapist

jeeves19 profile image
jeeves19 in reply toBoscoejean

Thanks very much ☺️

Lorraine33 profile image
Lorraine33

my husband has regular sessions remotely with an LVST and has been doing so for a few years. Started with the intense four weeks, now every two to three weeks. I can forward you her details if you wish but don’t want to put it on an open forum

Waxbeans profile image
Waxbeans in reply toLorraine33

Thanks for your help. I know nothing about this LSVT? I would dream of finding some real help or guidance!

Zella23 profile image
Zella23

Just a thought Jeeves, although we re in the London area, our Neurologist referred my husband to a Consultant speech and language therapist attached to the hospital he attends.

He had to wait a while for the therapy to start, but the therapist was great. No amount of googling by me brought his name up. Maybe your Neuro might know someone at the hospital in the department of Neurology you attend.

jeeves19 profile image
jeeves19 in reply toZella23

Thanks Zella. I think I’ve found somebody in Stafford believe it or not. We discussed LSVT and we’ve developed/devised a slightly less intense approach and she’ll come to my house once a week. Wish me luck. Has it made much difference to your husbands situation?

Zella23 profile image
Zella23 in reply tojeeves19

It definitely did but it does need daily practice to keep up the volume. Neither of us have loud voices so we try and elevate them. The exercises he gave my husband are definitely on going. The more you use your voice the better it becomes!

Glad you’ve found somebody, all the best to you! 👍

jeeves19 profile image
jeeves19 in reply toZella23

Cheers Zella. That’s the sort of thing I want to hear. Many thanks 🙏

CRMACK1948 profile image
CRMACK1948 in reply tojeeves19

Hi there,I’m not Zella,but my husband did the course and it made an amazing difference,but you have to keep the exercises up every day afte4 finishing the course.Im sure you will find it helpful

jeeves19 profile image
jeeves19 in reply toCRMACK1948

Thanks for the encouragement 😊!

jeeves19 profile image
jeeves19

Please Lorraine . That’d be fine to message me privately. Thanks very much. 😊

Parkie1 profile image
Parkie1

I was referred by my consultant neuro. to attend a 6 week LSVT course at my local hospital here in the west of Scotland. I think you'll find it very helpful, especially if like me you have swallowing issues, and sometimes drooling🤤 🫤. I don't have the soft, fading voice that PDers often develop, but the exercises have helped with my occasional problem of words "sticking" when my jaw gets rigid. They tailor the exercises to your personal needs. If you are in a class it's a bit like a singing lesson! We had such a laugh which in itself was great therapy! I'm sure you will benefit from it, perhaps even more so if it's a one to one session.

jeeves19 profile image
jeeves19 in reply toParkie1

Thanks very much Parkie. Good to hear😊

Lyricist profile image
Lyricist

its 5 years since I did LSVT Loud but although I have neglected the lessons learned and not practised as I should, I now know what to do when my speech reverts to pre-therapy softness.

In Yorkshire my contacts were of course pre-Covid so I am not sure if they are current but its all I have:

Adult Communication Therapy (ACT for Yorkshire Ltd)

actforyorkshireltd.co.uk

If anyone wants telephone numbers for that organisation’s therapists I can provide them but it is probably inappropriate to publish them here without their consent.

jeeves19 profile image
jeeves19 in reply toLyricist

Thank you very much. It’s typical Britain though in a way: practitioners hard to find and often having to be eked out of the woodwork. But they DO exist 😂

JeanieBeanie profile image
JeanieBeanie in reply tojeeves19

Your DBS settings could be to high. What happens when you lower them?

jeeves19 profile image
jeeves19

I probably get some relief but the trouble is that my other symptoms aren’t as well controlled? They gave me a speech channel which is more forgiving on the voice but it tends to be a bit of a trade off with other symptoms. Thanks for calling in though. It’s appreciated 😊

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