Experiences with

Lymphomas

Hav been reading this great forum for years, now I have an opportunity to 'give back'. For my CLL I recently started using Ibrutinib + Allopurinol (Zyloric) to deal with the consequent excess uric acid. After 12 days of use, with no symptoms, on day 13 I developed a fever with a body rash. I was admitted

I got this (webinar below) from the Leukemia & Lymphoma Society (LLS) news updates email. With possible changes coming down the pike, this could enlighten to what those (positive) changes might be that would affect cancer/cll folks. For anyone interested. https://triagecancer.org/webinarreg-post-election-advocacy

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in treatment) good thing? But my white count has gone from 80k to 130k in 3 months my other markers are no loss of the 11 or 17 or loss of p53 is that

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

Hi All An update to what I would have described as a failed Stem Cell Transplant has actually been a part success- I don’t seem to have any sign of CLL but instead I am back to SLL status which is what I was initially diagnosed with 10 years ago. The scans post transplant show enlarged nodes but bloods

Happy Holidays to Everyone! CLL Dx July 2022 when I was 78. W&W, Living an active and normal life except some swollen lymph nodes on necks and under chin (diameter of largest is about one inch). A month ago my Hemo/Oncologist ordered a FISH Test and Flow Cytometry. Results are as follows FISH FINAL

Recently diagnosed with Stage 3 CLL. Currently on Brukinsa and will be soon be starting Zometa (bone resorption infusion). Apparently, it is quite rare to have CLL that also presents with bone damage. In my case, I had a walnut sized tumor in my T12 vertebrae that had to be radiated. I also have

[u][i]Golexanolone[/i][/u] [i]A relatively new drug that is in clinical trial mostly being tested to help relieve cognitive and motor functions. It is hopefully to be used for Parkinson patients as well as those with hepatic encephalopathy in PBC. it was being tested in the laboratories

My Platelet count on my three monthly blood test has gone from 201 to 160 do they increase again or keep going down.? WBC is now 57.8 and Lymphocytes 53.5 Heamoglobin 140 Neutrophils 3.6 Basophils 0.2. Thanks

hi everyone not strictly pain related. But I’ve been a life long blusher / flusher. I’ve heard venlafaxine can help. Had anyone had any experience with this please? Or any other remedies please! Thanks

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on September 9, 2024- a smaller dose because of his age, and high risk status. He has lost a lot of weight and is always tired. Any one else experience extreme fatigue - and any suggestions on how to deal with it, and same with advice

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this year. She is starting Venetoclax and immunotherapy this week and I was just checking to see if anyone had experience with this? TIA

Hi Tedrog, I also started allopurinol when I started my Acalabrutinib one and a half years ago. It took almost a year for my lymphocytes to go down, so I remained on allopurinol the whole time until they were within normal limits. The thinking was that I should stay on it as long as my lymph’s were

it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment

H.”ere is an article that some might be interested in: There are many more news articles about this. The research was done at University of Windsor in Canada and the clinical trial is at the Windsor Cancer Center. There is also some ongoing research of cancer cells and various types of mushroom

I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?

I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for

The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact

decreased physical activity, and cardiovascular risk, which may impact cognition.14-16 Second, since HMNs are systemic diseases affecting the immune and hematopoietic systems, their disease biology may influence cognition independent of treatment, as has been suggested in chronic lymphocytic leukemia and lymphomas