Experiences with

Kidney disease

Hello MPN friends. I have primary MF and CKD stage 3, on Jakavi for almost 1 year. I was told by the hematologist that Jakavi + age contribute to worthening the kidney function. I was wondering if any of you are having kidney problems due to MF and if you have any advise on how to treat, diet, cope

I’ve been working on putting together a comprehensive gift guide specifically for people with Kidney Disease: https://kidney-disease.curated.spryregistries.com/ We all know that moment - someone texts “let me know if there’s anything I can do to help,” and while their intention is genuine, it’s hard

Hi, I am new to this community. I am in my 50s, based in California. I have been living with my chronic kidney condition for over 15 years. Although I am listed on the Stanford Medical Kidney transplant list, I have been told that the chances of receiving a deceased donor are fairly slim. A few weeks

Hello everyone I am here to share my story of my mother who lost her battle to sepsis and chronic kidney disease. It was painful to watch her lying on the ICU bed and with ventilator. I lost her on the 18th of April 2024.

What do sneakers have to do with fighting kidney disease? For Randy Yim, they’re everything. Every time he goes to dialysis, he wears a new pair of his favorite sneakers, takes a photo, and shares the story behind them on social media.

Their determination led to the creation of the National Kidney Foundation (NKF). 75 years later, NKF continues to revolutionize the fight against kidney disease. Read more: https://www.kidney.org/news-stories/how-nkf-got-here-fight-better-kidney-disease-care

Glossary • Proteinuria: Excess protein in urine, often a sign of kidney disease. • Dysbiosis: Imbalance in gut bacteria affecting health.

This increased activity can potentially lead to further kidney damage and exacerbate the disease. The study revealed that targeting specific components of innate immunity could offer new therapeutic avenues for managing CKD.

Ken Sutha's kidney disease journey began at the age of ten.

If you have kidney disease, are on dialysis, or have a kidney transplant, being prepared isn't just important—it's essential. Learn how to stay ahead of the unexpected with tips from emergency preparedness expert Keeley Lenoir, Program Manager for the Kidney Community Emergency Response Program.

If you have kidney disease, are on dialysis, or have a kidney transplant, being prepared isn't just important—it's essential. Learn how to stay ahead of the unexpected with tips from emergency preparedness expert Keeley Lenoir, Program Manager for the Kidney Community Emergency Response Program.

Took the kidney class, and connecting with a nutritionist specializing in kidney disease. Any recommendations and/or words of wisdom welcome.

I have ckd and need tip for diets

My 16 year old son had bloodwork in May 2024 I just found out in January 😡 that his GFR at that point was 72%.. more bloodwork was done and findings are now 55% as of January 15th, they started him on Lisinopril and goes back in May. We found out accidently that his older brother (17) has ADPKD 2 which

Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should I be worried?

Throughout the past decade, I have carried this kidney disease with me through every milestone in my life. In December of 2023, I met with my Nephrologist, and he said I would need to start dialysis due to my kidney disease progressing to Stage 5 renal failure.

Looking for the perfect gift for someone with kidney disease? Find thoughtful and practical ideas for every stage. https://www.kidney.org/news-stories/30-thoughtful-holiday-gifts-people-kidney-disease

I have a family history of kidney diseases losing my father, grandmother, and aunt or kidney disease an older sister had a kidney transplant years ago and now my next older sister and I have kidneys whose EGFR both went from the 43 quickly through the 30 ( within a year) and Todays blood tests was EGFR

Kidney disease affects 1 in 7 adults. Learn the stages, signs, and tests to detect kidney issues early and protect your health with this guide. Learn more: https://www.kidney.org/news-stories/kidney-disease-stages-risks-and-real-life-experiences

was wondering if anybody knows where to buy the right food that's supposed to help your kidneys