Experiences with

Kidney disease

Hello MPN friends. I have primary MF and CKD stage 3, on Jakavi for almost 1 year. I was told by the hematologist that Jakavi + age contribute to worthening the kidney function. I was wondering if any of you are having kidney problems due to MF and if you have any advise on how to treat, diet, cope

I have ESKD and I bruise very easily. I was wondering if post kidney transplant will resolve or help this issue.

Hi, I am new to this community. I am in my 50s, based in California. I have been living with my chronic kidney condition for over 15 years. Although I am listed on the Stanford Medical Kidney transplant list, I have been told that the chances of receiving a deceased donor are fairly slim. A few weeks

Their determination led to the creation of the National Kidney Foundation (NKF). 75 years later, NKF continues to revolutionize the fight against kidney disease. Read more: https://www.kidney.org/news-stories/how-nkf-got-here-fight-better-kidney-disease-care

What do sneakers have to do with fighting kidney disease? For Randy Yim, they’re everything. Every time he goes to dialysis, he wears a new pair of his favorite sneakers, takes a photo, and shares the story behind them on social media.

Hello everyone I am here to share my story of my mother who lost her battle to sepsis and chronic kidney disease. It was painful to watch her lying on the ICU bed and with ventilator. I lost her on the 18th of April 2024.

Glossary • Proteinuria: Excess protein in urine, often a sign of kidney disease. • Dysbiosis: Imbalance in gut bacteria affecting health.

This increased activity can potentially lead to further kidney damage and exacerbate the disease. The study revealed that targeting specific components of innate immunity could offer new therapeutic avenues for managing CKD.

If you have kidney disease, are on dialysis, or have a kidney transplant, being prepared isn't just important—it's essential. Learn how to stay ahead of the unexpected with tips from emergency preparedness expert Keeley Lenoir, Program Manager for the Kidney Community Emergency Response Program.

If you have kidney disease, are on dialysis, or have a kidney transplant, being prepared isn't just important—it's essential. Learn how to stay ahead of the unexpected with tips from emergency preparedness expert Keeley Lenoir, Program Manager for the Kidney Community Emergency Response Program.

This event is a vital opportunity for those affected to share their insights and help shape a new clinical trial for the management of kidney disease. Their input is essential to ensure that the trial truly reflects the needs of patients.

Ken Sutha's kidney disease journey began at the age of ten.

Took the kidney class, and connecting with a nutritionist specializing in kidney disease. Any recommendations and/or words of wisdom welcome.

My 16 year old son had bloodwork in May 2024 I just found out in January 😡 that his GFR at that point was 72%.. more bloodwork was done and findings are now 55% as of January 15th, they started him on Lisinopril and goes back in May. We found out accidently that his older brother (17) has ADPKD 2 which

Throughout the past decade, I have carried this kidney disease with me through every milestone in my life. In December of 2023, I met with my Nephrologist, and he said I would need to start dialysis due to my kidney disease progressing to Stage 5 renal failure.

I have ckd and need tip for diets

Looking for the perfect gift for someone with kidney disease? Find thoughtful and practical ideas for every stage. https://www.kidney.org/news-stories/30-thoughtful-holiday-gifts-people-kidney-disease

I read an article today about the connection between kidney disease and RLS.

I was diagnosed with egfr45 in 2018 by my GP. "but don't worry, I will keep an eye!" . That was all I heard until the following annual check egfr 11. No bloods taken during those 12 months at all. No monthly bloods taken for Glucophage XR as required. Not to be used under egfr of 30. It was 11

I'm curious if anyone is having trouble with memory, critical thinking, or decision-making due to kidney disease. I'm finding that forgetfulness is getting to me.