Experiences with

Tacrolimus

I when and see my kidney Doctor and they say 4 to 7 is the tacrolimus level should be. So I should not worry. So if your tacrolimus drop the 4.4 don't worry.

My tacrolimus level drop to level 4.4 should be worried. Can that happen to kidney patient

Should I worry if my tacrolimus level drop low. And what can I do to get it back up

When I started the Tacrolimus it was meant to be for less than a year, now it seems it’s permanent? Anyone else in this situation & thoughts on long term use of this & the Pred? Thanks

do the side effects of tacrolimus eventually get better with time ?

I’m 4 years, 7 months past transplant and still working with my Nephrologist to staboliza tacrolimus levels is my bi monthly blood tests. How long post transplant did it take you (if you take tacrolimus)? Suggestions? thanks

I’m 4 years, 7 months past transplant and still working with my Nephrologist to staboliza tacrolimus levels is my bi monthly blood tests. How long post transplant did it take you (if you take tacrolimus)? Suggestions? thanks

I've been told to stop my mmf and stop the tacrolimus in a couple of weeks. I've now just got to stay bug free. Keep everything crossed it doesn't get cancelled. I watched a documentary the other night about guy martin in the arctic with the royal marines.

I am on 5mg/daily prednisone after my kidney transplant 4 years ago, in addition to tacrolimus and mycophenolate. The prednisone causes my skin to thin so much that the slightest touch creates a nasty purple bruise.

The new kidney (his name is Guy) has been doing very well, however, I have suffered terrible side effects on Tacrolimus. So, they took me off of Tac and I started Belatacept transfusions about 6 months ago with no side effects.

My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration and adjusting the dose.

This obviously explains my hydroxichloriquine, prednisone and need to tacrolimus in my transfers but there isn't much information online about how this is managed outside of ivf for fertility. Has anyone been diagnosed with this and had a natural bfp? What treatment or meds did you take?

It would appear that the tacrolimus anti-rejection medication alters the way the Hepatocytes in the liver process sugars. This in turn can lead to a buildup of stored glucose which is later turned into fatty acids.

My tacrolimus was stopped and I was started on belatacept. My eGFR improved but is still only 34. I am diabetic and have fungal skin infections and would like to stop my 5 mg prednisone. I am also on Mycophenolate . Has anyone been able to stop prednisone while on belatcept?

I want to know if anyone has had this and if getting off cellcept and/or tacrolimus reversed it?

He needs: Tacrolimus 1 mg (5x) Azathioprina 50 mg (8x) Prednisona 20 mg (4x) We can’t get these in the States fast enough as we are not in any way enrolled in the health care system. We are in the Denver area. Please reach out if you can help.

-I have been on large dose of steroids/methylpred (currently down to 10mg daily of prednisolone) - I have had 10x1g infusions of cyclophosphamide may 2023-March 2024 - I take tacrolimus daily for a tac level between 6-8 - I started Rituxan June 2024 2x1g infusions - I’m now approved for IVIG if

I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms. What treatments are there left for me

Already been back to Addenbrookes for Tacrolimus levels check and full blood counts. So far counts are still rising and long may that continue. I have scheduled weekly appointments for blood counts and Hickman dressing changes for about the next 6 weeks.

I am on Tacrolimus and colchicine