Experiences with

Tacrolimus

I’m on tacrolimus (Envarsus), Cellcept (mycophenolate mofetil), and steroids. My doctor says that I should not take them all together, I need to wait between them: take tacrolimus first, then wait an hour before taking Cellcept and steroids.

Now, I'm going to try taking it a couple hours away from taking the tacrolimus to see if that helps. Have any of you had any success in keeping your magnesium levels in the normal range despite being on tacrolimus and, if yes, what did you do?

Meaning, maybe it's possible if I take the magnesium a couple hours before or after I take the tacrolimus it will help a bit; but the tacrolimus stays in our blood so seems like it will still steal the magnesium away? Thanks again for any thoughts you have about this!

I when and see my kidney Doctor and they say 4 to 7 is the tacrolimus level should be. So I should not worry. So if your tacrolimus drop the 4.4 don't worry.

If you take tacrolimus, how much do you take daily and which brand (prograf, envarsus, etc.)?

My tacrolimus level drop to level 4.4 should be worried. Can that happen to kidney patient

Should I worry if my tacrolimus level drop low. And what can I do to get it back up

My doctor mentioned coming off of tacrolimus due to potential scarring if on it for a long time and switching to belatacept. Could you please shine me your experience on this medication? Side effects? Pros and cons? How long it takes? Travel allowed? Is it flexible to schedule or dead set?

When I started the Tacrolimus it was meant to be for less than a year, now it seems it’s permanent? Anyone else in this situation & thoughts on long term use of this & the Pred? Thanks

There are lots of possible causes, but I am curious if anyone has had hemolytic anemia that was resolved by stopping tacrolimus? I am following up with a hematologist. So I am not trying to circumvent actual medical advice or use the internet for diagnosis and treatment.

I've been on 2.5mg of Prednisone and 4mcg of tacrolimus to keep my immune system fighting it. I originally had an IV of IVIG, then was doing another IV (don't recall the medication) every 2 weeks and did that for nearly a year. I was on Levofloxacin 500mg, every day then every other day.

do the side effects of tacrolimus eventually get better with time ?

I've been told to stop my mmf and stop the tacrolimus in a couple of weeks. I've now just got to stay bug free. Keep everything crossed it doesn't get cancelled. I watched a documentary the other night about guy martin in the arctic with the royal marines.

I’m 4 years, 7 months past transplant and still working with my Nephrologist to staboliza tacrolimus levels is my bi monthly blood tests. How long post transplant did it take you (if you take tacrolimus)? Suggestions? thanks

I’m 4 years, 7 months past transplant and still working with my Nephrologist to staboliza tacrolimus levels is my bi monthly blood tests. How long post transplant did it take you (if you take tacrolimus)? Suggestions? thanks

And they've doubled my prednisone 😫 Is the severity of this uti a consequence of the meds changes needed for my surgery , taking the tacrolimus which comes with an increased risk of utis or my lupus nephritis? Who knows 🤷‍♀️ At least I have a view ...... Keep smiling ...I'm trying too 🙂

The new kidney (his name is Guy) has been doing very well, however, I have suffered terrible side effects on Tacrolimus. So, they took me off of Tac and I started Belatacept transfusions about 6 months ago with no side effects.

I am on 5mg/daily prednisone after my kidney transplant 4 years ago, in addition to tacrolimus and mycophenolate. The prednisone causes my skin to thin so much that the slightest touch creates a nasty purple bruise.

This obviously explains my hydroxichloriquine, prednisone and need to tacrolimus in my transfers but there isn't much information online about how this is managed outside of ivf for fertility. Has anyone been diagnosed with this and had a natural bfp? What treatment or meds did you take?

My tacrolimus was stopped and I was started on belatacept. My eGFR improved but is still only 34. I am diabetic and have fungal skin infections and would like to stop my 5 mg prednisone. I am also on Mycophenolate . Has anyone been able to stop prednisone while on belatcept?