It’s been awhile for an update, here is the latest. I’m at Day plus 127 from my Bone Marrow Transplant. I saw my doctor (main specialist) on day+119. This was after a BMBiopsy +105 and colonoscopy +109!
Those results revealed the great and not so good! There’s no sign of cancer in my BoneMarrow, and DNA sent out to Mayo Clinic accessed my mutation (B-Cor) that caused aggressive nature and probable transformation to Richters, no longer present! Fabulous news!
The other aspects of GI distress, blood type change over (O positive to O negative), and edema in my legs still need to be resolved. Once the change in the blood occurs, expected soon, my red blood cell counts will rise quickly eliminating my anemia. I did get a bag of blood on day+119. The GI, colonoscopy revealed a lot of inflammation and lesions. There was great suspicion that it is Graft Vs Host Disease, yet tests could not totally confirm this. I’ve had some other tests and they’ve resulted in me being treated with a medication Creon (Zenpep). This is used to help break down food when the pancreas is not working properly. We shall see the results from this treatment in about a week.
On the 14th of November I will have a full body PET scan to check for any other signs of cancer. In the meantime I will revel in the no cancer diagnosis, work towards resolving the other issues, AND even had a haircut because of regrowth!
My CAR-T Journey - 11
