Do all AMN patients have some brain lesions? - AMN EASIER

AMN EASIER

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Do all AMN patients have some brain lesions?

HenryW profile image
5 Replies

Hello,

I always thought that all adult AMN patients have some demyelination in the brain not just the people with the devastating cerebral version.

Am I wrong?

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HenryW profile image
HenryW
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5 Replies
artortega78 profile image
artortega78

I have some brain lesions. I have a loes score of 4. I have arrested cerebral ALD and AMN. I was misdiagnosed with Autism and ADHD when I was a young kid.

COwithAMN profile image
COwithAMNAdministratorAMN EASIERVolunteer

I don't believe it's correct to say that all AMN patients have brain lesions. I have had AMN for over 30 years and have never been told I have lesions.

HenryW profile image
HenryW in reply toCOwithAMN

Hello, thanks for the response.

mariagno profile image
mariagno

My last MRI 4 years ago was unremarkable. Which is an insulting way to say normal. LOL

I am 59m and was diagnosed in 1995.

SongStream profile image
SongStream

That is so funny and so true! I felt so insulted when I had read that in my past MRIs. However, the remarkable is changing as its slowly progressing.

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