Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy

[monkeybus]

Has this been posted here before? Have it a second time if so. Read afresh if not.

Objective: To evaluate abnormalities of the brain and spinal cord by MRI in order to understand the mechanisms leading to the disability of women with adrenomyeloneuropathy and the effect of physical exercise.

clinicaltrials.gov/ct2/show...

Good to see an AMN clinical trial for women for a change. This one actually has results posted, though I'll be honest and admit that I am having trouble wrapping my planet-size brain around it.

[julie_]

Thank you for posting. I haven't finished reading the study yet but i have often wondered if there were any exercise tests done for women. In my mind, I want to believe that the exercise in doing is helping to keep symptoms from overtaking me.

As this was 10 years ago, I believe another should be done because so many of us now are more educated about this and ourselves!

[quilling in reply to julie_]

I remember this study. I was too far along to participate.