Female Amn: Does anyone suffer with cramps in... - AMN EASIER

AMN EASIER

1,322 members1,173 posts

Female Amn

spalding profile image
15 Replies

Does anyone suffer with cramps in whole of legs especially at night keeping me awake

Written by
spalding profile image
spalding
To view profiles and participate in discussions please or .
15 Replies
monkeybus profile image
monkeybus

Used to be, I'd wake up in the middle of the night with excruciating leg cramps. Pain like I could never describe.

I would eventually go back to sleep, forgetting all about it until the next night. And on it went. Looking back, these weren't cramps but spasms that didn't subside.

That was before I discovered Gabapentin. Certainly relaxes your muscles.

Quiller profile image
Quiller in reply tomonkeybus

I suffered for years. I finally admitted I couldn't take it any longer and was prescribed Baclofen and Clonozepam My legs were so tight and the charlie horses at night were worse. I should have agreed to medicine years before I did. I am writing to let people know it is ok to take medicines to help Don't try to be tough. I wish I had I would have suffered so much less for so many years

spalding profile image
spalding in reply tomonkeybus

Thanks for that I take gabapentin on 1500 per day but nighttime legs cramping and feet burning driving me crazy

easygoin1 profile image
easygoin1

Hello Spalding,

It sounds like you are on a fairly low dose of Gabapentin, I take 1200mg morning and evening and don't have the "cold wind" feeling on my calves and feet at night anymore and am able to sleep. I also don't have the spasms that I used to have. I don't like having to take it but it is better than the alternative. The max dose is 3600mg per day according to the manufacturers label.

All the best,

Jeff

monkeybus profile image
monkeybus in reply toeasygoin1

Agreed, just take more Gabapentin.

I only have enough for one more night, then I have to suffer the weekend without it.

I'll make do with Valium and Baclofen, but it ain't the same (doesn't work).

Aaron98 profile image
Aaron98 in reply tomonkeybus

Gabapentin didn't stop my spasms at all, nor did it help with neuropathic pain, and I was up to 2700 mg at one point. I am sincerely glad that it works for others, but it is useless for me. I'm thinking about trying Lyrica, and my neurologist has even offered Tramadol. I'm also currently testing a cream called Penetrex that is supposed to be useful for neuropathy. It's got a 100% money-back guarantee, so what do I have to lose?

monkeybus profile image
monkeybus in reply toAaron98

Just goes to show the variability of this poxy little disease.

I'll give Lyrica the thumbs up, but Tramadol? My mother takes that, barely works, makes her tired, addictive. Nah, not for me. Trying to get my Mum off it, easier said than done.

Ran out of Gabapentin last night, the old stomach spasms were firing up. Awful. Took 40mg Baclofen before bed, but the leg spasms, bad. Took a tranquiliser in the end. Always have plenty of Valium on hand.

That Penetrex has to be worth a look. Get some and test it out for us all. I've often thought of trying some creams. Deep-heat, steroidal, Gabapentin, Baclofen, etc. Even essential oils.

ncbi.nlm.nih.gov/pubmed/187...

Cream seems such a simple idea. Deliver the drug/whatever directly to the leg muscles.

countofstgermain profile image
countofstgermain

On a family trip to Vegas, I left the weed at home. Those 3 nights were torture. I always thought restless leg syndrome was a joke, until I kicked when ever I was on the actual edge of sleep.

Weed saves me.

The kicking tells me my legs wires aren't truly broken though, so that is kinda encouraging.

julie_ profile image
julie_

I'm definitely going to have to get in on gabapentin. Until now, before bedtime, I was taking baclofen or, more recently, tizanidine. Tizanidine worked for a while but now it's hit or miss. I only take 2mg and I don't want to increase it. Like baclofen, it makes me sleepy - and now it doesn't work very well.

I now have sciatica that pains me in the day and it's now an additional pain that wakes me at night. I hope gabapentin works for me.

SDAffirm profile image
SDAffirm

A year ago I suffered from horrible calf pain. Then, I began taking 1200mg of Alpha-Lipoic Acid a day, I significantly reduced the amount of sugar and carbs I eat and have gone to physical therapy to get my hips opened up. The pain has gone from a 8-9 on a simple pain scale to now a 2-3 on most days.

julie_ profile image
julie_

Well, I tried the gabapentin and I didn't like it.

The side effects outweighed the little benefit it yielded: While my sciatica pain did get "muffled", I lost what balance I had, I got tired and I had brain fog. I'm happy I made it home from work. No more gabapentin for me.

Hillary profile image
Hillary in reply tojulie_

Hi Julie, you sound as if your very like me. Tried the Baclofen, Tizanadine route but now on Pregablin. It's working for me at the moment, I'm taking 100mg at night. I also have sciatica during the day and am taking 300/500 Co-codamol, two tablet four times a day and it's helping lots. Hope you can work something out that works without too many side effects.

Best wishes

Hillary

julie_ profile image
julie_ in reply toHillary

Thanks, Hillary. The sciatica seems to have eased up. Isn't it supposed to come and go? As far as I've read, it should subside within 2 weeks. For me, it has been about that and the shooting pain has diminished quite a bit. I think my troubles have to do with my workouts, which I'm not happy about but I will ease up and see what happens.

Do you have side effects with the medications you're taking? I will definitely keep them in mind for the future.

Hillary profile image
Hillary in reply tojulie_

Hi Julie, I think it depends on what is causing the sciatica, mine is a problem with the disk between T9 and T10, it's protruding, slipped disks can cause sciatica. I've had it for six months and it's not going anywhere, hence the co codamol tablets. I don't have side effects as such, just tiredness, but then you could say that's more likely just the whole AMN thing.

kneeny profile image
kneeny

I have had night leg cramps and spasms for 10+ years. My neurologist put me on Pramipexole and Zanaflex my leg spasms are gone, but I still get leg cramps and pain. I highly recommend Pramipexole for night leg spasms. It worked wonders for me.

Not what you're looking for?

You may also like...

AMN carrier female

Hi Olivia I have AMN my legs are a lot worse now and my arms and for the last few days my head...
spalding profile image

AMN Cerebral

Does anyone have any experience with AMN with cerebral involvement?
bioting profile image

NEWLY AMN!

My onset was about 7 months ago, I was diagnosed last month. So far nothing is showing up on MRIs...

AMN Canadians.

Are there any Members in Canada? Thanks

AMN mortality

Hello, Thanks for accepting me into this group. I have AMN. I am male and 59 years old. I have...
HenryW profile image

Moderation team

COwithAMN profile image
COwithAMNAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.