*No, I'm no Britney! Haha
I stumbled upon this great community tonight and just wanted to introduce myself. My name is Ken and I am 33 from central Pennsylvania, diagnosed with AMN last summer. Both of my older brothers both have AMN of varying varieties, which lead me to get tested. My initial MRI showed no brain activity, but the majority of initial symptoms were there. (Gait, sore and tingly legs..). My oldest brother has been seeing Dr.Eichler in Boston and I'm scheduled for a consultation next month. My doctors in PA seem to know very little about ALD/AMN, so looking forward to just talking to someone with more experience.
I've been through physical therapy and have since graduated and continue the exercises usually daily to keep my leg strength up. I have good and bad days, tripping and falling on perfectly level flooring. I wish I could feel my feet and the constant burning would go away. I'm sure you all can relate to that!
I look forward to reading about everyone's journey!