Decapeptyl for fibroids : Hi, I am six weeks... - Women's Health

Women's Health

32,718 members3,514 posts

Decapeptyl for fibroids

KimG21 profile image

Hi, I am six weeks into having the decapeptyl injections to shrink a 7 cm fibroid prior to surgery - myomectomy or hysterectomy. I haven’t had any menopausal symptoms and my bleeding has fluctuated the full time either light or the big gushes. I freak out as I was admitted in October needing blood transfusions and have a track record of being severely anaemic. I am back in norethisterone which has always stopped my bleeding however I am still having a lot of pelvic pain. Has anyone been on these injections or similar and experienced the same? When did your symptoms settle? I really don’t want another jag! I have had no relief in pain or bleeding (although bleeding has stopped last couple days with norethisterone) and was told I would get menopause symptoms which I haven’t. I know it sounds insane but I would prefer them than the horrible bleeding as my experiences have left me traumatised! Sounds exaggerated but it has been awful. Much love to you all 💕

18 Replies
BadHare profile image
BadHareAmbassador

I don’t know anything about Decapeptyl, however a friend & another friend’s daughter had a Mirena coil fitted to stop constant bleeding, the first as a result of fibroids. She had PMT symptoms for a few months then the side effects settled down & the bleeding stopped. My friend’s daughter used a Mirena for a few years before having children so no long term side effects. It might be an option to give you some breathing space rather than rush in to surgery though your gynaecologist should give you some less invasive options.

KimG21 profile image
KimG21 in reply to BadHare

Thanks you so much for this , they can’t put a Modena in as it pushing my uterine lining and gynae said my body would reject it , so it’s surgery for me but I can’t wait for it which sounds mad looking forward to surgery 🤣how is your friend and friends daughter now have they had relief for a long time? Xxx

BadHare profile image
BadHareAmbassador in reply to KimG21

That's a nuisance, when the easiest option isn't suitable. :( I hope the surgery makes you feel better!As I mentioned, the Mirena worked well for both women.

wobblybee profile image
wobblybeeAdministrator

You might see useful advice by searching related past discussions..Type Fibroids in the searchbox (top right)

KimG21 profile image
KimG21 in reply to wobblybee

Thank you for this 🙏xxx

I had prostap injections for about 5 months prior to surgery, they worked really well in terms of shrinking the fibroid. But I had a 2 month period without it before my surgery so it grew back with full force and was 25cm by the time I had surgery.

I had menopausal symptoms but they were tolerable; I just dealt with it as I didn't want HRT. My period stopped completely and I didn't feel much pain at all. I dont know what Decapeptil is, but you could ask your Doctor for prostap.

KimG21 profile image
KimG21 in reply to Nins8

Hi, yeah I have heard of the prostap and think it’s a similar drug they come under the drugs ‘gnrh analogues’ (if I have that right😂) that’s great they shrunk the fibroid for you but scary how quickly it grew back. What surgery did you get? I might ask if that drug is an option as I’m starting to worry decapeptyl isn’t effective as I have no menopause symptoms at all - maybe i should be grateful for that 🤣xxx

Nins8 profile image
Nins8 in reply to KimG21

I had an open myomectomy almost a year ago . It was scary at the time but I've recovered well. I really had no choice, the fibroid was huge and it was causing me to haemorrhage each month. The menopause symptoms weren't nice, but I was just grateful it wasn't worse. Good Luck 🙂

KimG21 profile image
KimG21 in reply to Nins8

Thankyou so much xxx

I had an open myomectomy two weeks ago. My largest fibroid was 8cm and I had 42 removed in total. If you have any questions just ask! Good luck

KimG21 profile image
KimG21 in reply to Daisy1245

Thankyou so much for this xxx

Hi sorry me again - I was wondering I have been given norethisterone to take again to stop my bleeding. I was a bit concerned since on the decapeptyl as I thought this was a hormone - however I am trusting my gyn as she is excellent. Plus it’s the only thing that has ever helped! Did my of your go on this? Also how much did your fibroids shrink! And also did you feel pelvic pain and mild to moderate cramp for a month or two or longer? Sorry for all the questions! Xxxx

BadHare profile image
BadHareAmbassador in reply to KimG21

Hope you didn’t have unpleasant side effects from Norethisterone?Someone recently recommended Esmia for reducing fibroids. It’s expensive so might be something you’d have to ask for.

Has anybody talked about UFE (Uterine Fibroid Embolisation) .I was like you and would happily had menopausal symptoms than the massive amount of irregular bleeding. And now I’m going through menopause that is still the case. Rather deal with this than periods Any Day.UFE is basically where they inject teeny weeny beads into fibroids and it stops the blood supply and they die and shrink back. They don’t grow back.

Hi, thanks for your reply 🙏yes my gynaecologist told me about this but she seemed more keen for me to have these injections first but it could be because I am more keen to have surgery that’s she wants to shrink them this way - although the UFE sounds really good and I have wondered why I haven’t had that to shrink it before surgery instead. How have you had this and how have you found it? Has your bleeding stopped? Xxx

I was never offered surgery first, the only thing the dr gave me was Tranexamic acid to lessen the bleeding. But that doesn’t stop fibroids growing. Gynaecologist told me about UFE as an alternative to surgery. It is performed by a Radiologist. They go through an artery in groin. I was out of hospital in a day and back to normal in a few days. Some people have period like cramps for a few days but I had nothing,and they send you home with all the painkillers to take

Sorry forgot to say I had this procedure done in 2018 my periods stopped for a few months then came back ,but they were much more lighter and able to carry on as normal. No time off work or stuck to the toilet and house. In 2021 had my last period . I’m 53

That’s brilliant how quick it is as well! You must have some amount of relief! My gynaecologist hospital don’t do it however she did say if I wanted it that I would referred to specialist the does it. It seems strange she would give me these injections then offer me ufe when ufe would have been better to start with 😂when did you have your procedure done? How quickly did you find relief? And if you don’t mind me asking what size your fibroid/s were? Xxx

You may also like...