Experiences with

Hysterectomy

Ive suffered from endometriosis for over 20 years now, I have now been placed on waiting list for a hysterectomy. Feeling positive but at the same time I'm terrified. I dont have any questions just yet but hoping for some advice nearer the time 💛

Hi all, Is there anyone out there who has had (or is planning) a hysterectomy for endometriosis, without a confirmed diagnosis of adenomyosis, fibroids or heavy bleeding? What symptoms ultimately influenced your decision to have hysterectomy, and how are you going now?

Hi everyone, I’ve been told that (finally) I’ll be allowed to have a hysterectomy for adenomyosis. I was wondering if anyone could share their stories so I know what it’ll be like? I like to be prepared so I’m interested in both good and bad stories.

Hi, has anyone else had a hysterectomy for a prolapse ? My GP has said I'm now having a rectocele as well as my prolapsed bladder. I have a ring pessary, which has worked up until now and use Vagifem as well. I'm 68. My question is does a hysterectomy work ?

Can you ladies tell me how you are after having a hysterectomy?

Anyone have any suggestions for products to use for good hair and skin following full hysterectomy?

I am 14 mths post hysterectomy and still getting endo flare ups. My consultant says it’s phantom organ syndrome- I’m struggling to manage the pain. Can anyone offer me some advice?

I have asked for a hysterectomy (I know this doesn't treat Endometriosis).

I really want a hysterectomy but my Gynaecologist doesn’t seem keen. I’ve already had children so I don’t understand why she seems to think it’s ok for me to stay in this pain. Could anyone give any advice on what I can do? Has anyone had a hysterectomy because of adenomyosis? Thanks Steph

Would love to hear other women’s experiences of having a hysterectomy, regardless of age x x

call of my GP after a worrying 2 weeks, i went to him with a large mass in my abdomen, he was worried and referred me to the Colorectal team as the mass seemed to be too high to be in my uterus, I had a CT scan & ultrasound within 2 weeks, Ultrasound showed 2 large Fibroids measuring 10cm & 8 cm, hysterectomy

I had a hysterectomy 6 weeks ago (ovaries intact) and I had a thyroidectomy 2 years ago. I was just put on progesterone for night sweats. Does anyone know if it will effect my levothyroxine dosage?

So I am due for a hysterectomy in February- I have struggled with coil/ pill- emotionally and pain, ongoing bleeding, heavy bleeding and plus strange symptoms like swelling to hands.

Evening everyone Just wondering if anyone might be able to tell me which method might be the most likely that the surgeon will use to perform my hysterectomy.

Hi I had a hysterectomy 2 weeks ago. I was advised by the consultant that between 10 and 14 days I may experience a ‘gush’ of bleeding/fluids and this was normal.

Does anyone have experience of their endometriosis issues stopping post hysterectomy?

I was also notified that my uterus is also slipping slightly and there fore was offered an hysterectomy. I'm 68 and I'm desperate to get back on track with my cycling plus I want to loose 2 stone in weight!

I was diagnosed with stage 1b endometrial cancer and had a hysterectomy. Was wondering what signs to look for if cancer was to come back on the vagina cuff?

Hi has anyone had a large blood clot after hysterectomy? Is this normal? My hysterectomy was almost 3 weeks ago but bleeding is getting worse anyone else had this? X

At what age did you decide on the total hysterectomy? Do you wish you had done it sooner instead of going through multiple surgeries prior? How was recovery after your earlier surgeries compared to after hysterectomy?