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Incidence of Large Vessel Vasculitis in late diagnosis of PMR
When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived ‘only’ five months after onset of symptoms; I say ‘only’ because I know that for others the wait was far, far longer: PMRpro, for example, was without
When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived ‘only’ five months after onset of symptoms; I say ‘only’ because I know that for others the wait was far, far longer: PMRpro, for example, was without
123-go
in
PMRGCAuk
12 hours ago
Sore stomach on apixaban
I’ve been on apixaban for just over 2 months and have 3 weeks to go, then 4 weeks off before a d dimer blood test. I’ve had awful stomach cramps for a couple of weeks, blood in stools and leaking watery blood like I’m wetting myself (lovely picture!). The doctor is sending me for the fast track bladder
I’ve been on apixaban for just over 2 months and have 3 weeks to go, then 4 weeks off before a d dimer blood test. I’ve had awful stomach cramps for a couple of weeks, blood in stools and leaking watery blood like I’m wetting myself (lovely picture!). The doctor is sending me for the fast track bladder
Florrie2
in
Anticoagulation Support
2 days ago
Ahhaaaa! Ladies and Gents- Leg pain when walking? Result!!
Hello All. I should have been in Morocco for a couple of weeks at the beginning of April. But, alas, it was not to be. I had an appointment for a Doppla test at my local community hospital on the 25th March. "This will be a breeze" I very wrongly assumed. This test measures your blood pressure in your
Hello All. I should have been in Morocco for a couple of weeks at the beginning of April. But, alas, it was not to be. I had an appointment for a Doppla test at my local community hospital on the 25th March. "This will be a breeze" I very wrongly assumed. This test measures your blood pressure in your
sheenah
in
Thyroid UK
3 days ago
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Thinning Hair
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
PAP48
in
Atrial Fibrillation Support
5 days ago
Motion Sickness
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
JudyMarieC
in
Atrial Fibrillation Support
9 days ago
Side Effects of Hydrea?
Ho everyone, I had a stroke last year which led to them discovering that I am Jak2 positive. I was initial put onto Pegasus, but that had horrendous side effects and was then put onto Hydrea. Almost since first getting put onto Hydrea, there have been a bunch of different things that I feel can
Ho everyone, I had a stroke last year which led to them discovering that I am Jak2 positive. I was initial put onto Pegasus, but that had horrendous side effects and was then put onto Hydrea. Almost since first getting put onto Hydrea, there have been a bunch of different things that I feel can
TyronR
in
MPN Voice
9 days ago
Tia Stroke
Recent numbness in right arm and face. 10 minute duration. Bloodwork good. CT and CTA good. MRI with contrast good. Holter 48 hr. Good. No AF since first episode in 1994. Recent Echo Of Heart and Carotids. Good. Ironically, discussing stopping Flecainide and this happens. Has anyone taken Flecainide
Recent numbness in right arm and face. 10 minute duration. Bloodwork good. CT and CTA good. MRI with contrast good. Holter 48 hr. Good. No AF since first episode in 1994. Recent Echo Of Heart and Carotids. Good. Ironically, discussing stopping Flecainide and this happens. Has anyone taken Flecainide
Robv1954
in
Atrial Fibrillation Support
14 days ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
15 days ago
Costochondritis / sternum / chest poping
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
EliezerCan2
in
Pain Concern
16 days ago
Is aspirin ok for stroke prevention
I took myself off Rivaroxaban and went back to prodaxa but found i still had terrible nausea all night. I went to a doctor yesterday. Told him i couldnt go back on those blood thnners. He put me on 90mg aspirin. What should i do. I have been on rivaroxaban for over a year now after being taken off
I took myself off Rivaroxaban and went back to prodaxa but found i still had terrible nausea all night. I went to a doctor yesterday. Told him i couldnt go back on those blood thnners. He put me on 90mg aspirin. What should i do. I have been on rivaroxaban for over a year now after being taken off
Alphakiwi
in
Atrial Fibrillation Support
17 days ago
pulmonary hypertention
recently diagnosed with pulmonary hypertension with blood clots in my lungs i have had 2 right heart catheters and it is improving with some meditation of Adempst and a blood thinner…. The pulmonary dr wants to do a balloon angioplasty….. Has anyone had this procedure ?
recently diagnosed with pulmonary hypertension with blood clots in my lungs i have had 2 right heart catheters and it is improving with some meditation of Adempst and a blood thinner…. The pulmonary dr wants to do a balloon angioplasty….. Has anyone had this procedure ?
AllEars
in
MPN Voice
19 days ago
BLOOD RESULTS - HELP PLEASE
GP didn't do a great job of translating. My learned friends can probably do much better: ESR 5.8 CRP 5.0 LDL 3.89 HDL 1.89 TC 6.3 (should the LDL and HDL not add up) Triglycerides 1.48 Glucose 5 My BP is controlled with meds. I do not want to go on a statin. She wants me on one. What do you all think
GP didn't do a great job of translating. My learned friends can probably do much better: ESR 5.8 CRP 5.0 LDL 3.89 HDL 1.89 TC 6.3 (should the LDL and HDL not add up) Triglycerides 1.48 Glucose 5 My BP is controlled with meds. I do not want to go on a statin. She wants me on one. What do you all think
Missus835
in
PMRGCAuk
20 days ago
Apixaban rash
Diagnosed with DVT 4 weeks ago and prescribed Apixaban for life. This is my 3rd DVT. No problems for weeks and then a rash, very itchy, has developed on upper chest and top of arms. Occasional clusters elsewhere too. Just looking for general comments please before seeking potential switch to warfarin
Diagnosed with DVT 4 weeks ago and prescribed Apixaban for life. This is my 3rd DVT. No problems for weeks and then a rash, very itchy, has developed on upper chest and top of arms. Occasional clusters elsewhere too. Just looking for general comments please before seeking potential switch to warfarin
Falcon9
in
Atrial Fibrillation Support
21 days ago
foslevadopa/foscarbidopa by sibcontaneous infusion
Living in the uk and having had Parkinson's for 24 years l was excited to hear about the new treatment foslevadopa/foscarbidopa for subcontaneous infusion which has been approved by the nhs fo use in advsnced psrkinsons for 900 patients.could anyone explain why this would be better than existing treatment
Living in the uk and having had Parkinson's for 24 years l was excited to hear about the new treatment foslevadopa/foscarbidopa for subcontaneous infusion which has been approved by the nhs fo use in advsnced psrkinsons for 900 patients.could anyone explain why this would be better than existing treatment
Rosieskeeper
in
Cure Parkinson's
26 days ago
Taking K2 MK7
I’ve heard that taking K2 MK7 is good for your bones, but am not sure if it’s safe to take with Xarelto. Apparently it cannot be taken if prescribed to Warfarin but it’s unclear as to whether or not it’s safe with other anticoagulants. Can anyone clarify this for me?
I’ve heard that taking K2 MK7 is good for your bones, but am not sure if it’s safe to take with Xarelto. Apparently it cannot be taken if prescribed to Warfarin but it’s unclear as to whether or not it’s safe with other anticoagulants. Can anyone clarify this for me?
SnoopyJ
in
Atrial Fibrillation Support
27 days ago
aspirin
12 moths today I was told I had AF in the hospital Was given anticoagulants and doubled up on BB Was already on BB because of a heart attack 6 years ago Also aspirin and a number of other meds I asked if I needed to stop the aspirin and was told to carry on taking it I have heard and read since that
12 moths today I was told I had AF in the hospital Was given anticoagulants and doubled up on BB Was already on BB because of a heart attack 6 years ago Also aspirin and a number of other meds I asked if I needed to stop the aspirin and was told to carry on taking it I have heard and read since that
Shoefairy
in
Atrial Fibrillation Support
1 month ago
Eliquis and surgery
I will have to go off my Eliquis for several days prior to having surgery on one of my eyes. I am terrified that I may go into AF while off it. Has anyone had to go off their anticoagulant for surgery and had AF without it causing a stroke?
I will have to go off my Eliquis for several days prior to having surgery on one of my eyes. I am terrified that I may go into AF while off it. Has anyone had to go off their anticoagulant for surgery and had AF without it causing a stroke?
brit1
in
Atrial Fibrillation Support
1 month ago
Need help
Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency room doctors. my toes are the only area affected and the pain is unbearable!!! Feeling like big toes are going to burst! Emergency Doctors say
Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency room doctors. my toes are the only area affected and the pain is unbearable!!! Feeling like big toes are going to burst! Emergency Doctors say
Grammi5
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Tired weak hips when walking - is it still Pmr
Hi, I'm feeling despondent as it seems that I can walk less and less and I don't know what's wrong.I've been on 1mg, trying to get off for over a year. I have no pain except when I do sustained walking. It kicks in after about 3 minutes. Tired, aching hips and lower back and I have to stop. I've got
Hi, I'm feeling despondent as it seems that I can walk less and less and I don't know what's wrong.I've been on 1mg, trying to get off for over a year. I have no pain except when I do sustained walking. It kicks in after about 3 minutes. Tired, aching hips and lower back and I have to stop. I've got
Blossom20
in
PMRGCAuk
1 month ago
DVT Pain moved leg
Hi My right leg was scanned for DVT as it was swollen. My left leg had had some pains but they ignored it cos it wasn’t swollen. I’ve now been on apixaban for 5 weeks and my right leg is still a bit swollen but pain wise is fine as long as I don’t do long or fast walks. My left leg is now very painful
Hi My right leg was scanned for DVT as it was swollen. My left leg had had some pains but they ignored it cos it wasn’t swollen. I’ve now been on apixaban for 5 weeks and my right leg is still a bit swollen but pain wise is fine as long as I don’t do long or fast walks. My left leg is now very painful
Florrie2
in
Anticoagulation Support
1 month ago
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