recently diagnosed with pulmonary hypertension with blood clots in my lungs i have had 2 right heart catheters and it is improving with some meditation of Adempst and a blood thinner…. The pulmonary dr wants to do a balloon angioplasty…..
Has anyone had this procedure ?
Sorry to hear about the complication. Pulmonary Hypertension co-occurring with a MPN is a significant issue. Intervention is certainly needed. I have heard of balloon angioplasty as an intervention. It may be the right choice but needs to be reviewed with a MPN Specialist as part of the treatment team.
Please do let us know what you learn and how how you get on.
Thanks hunter …. Yes it is complicated…. And i do have a team.
But they don’t have all the answers!!
It helped me alot reading your posts On first starting Pegasys…you gave me courage and confidence!
Glad to hear it helped. Sometimes our teams do not have the answers, just best guesses. Some decisions are judgement calls. I experienced that when I had to decide about the brain surgery to remove the tumor. No clear answers about whether to do it. Just had to use the best judgment I could.
No matter what you decide, you will find support here.
How long ago was you PE? I had a submassive bilateral PE 6 months ago. My right heart pressures were high at the time. I was concerned it would become chronic pulmonary hypertension. However 6 months later, the pressures have returned to normal. I am on lifelong Apixaban. I am wondering how long since you had your PE?
Previous venous thrombus as risk factor? 
Update after guys app
Anyone have peripheral blood smear/blood film in their ET diagnosis process? What did it show?
