Finally got my bloods back after LTC appointment 🙄

[birkie]

I'll lay out the bloods I've had done since starting on NDT.

Sep 20th 2024.....[on half a grain from July 19th 2024]

TSH...18.3....RANGE...[ 0.30...4.50]

T3....4.3....RANGE..[3.10..6.80]

T4...8.6...RANGE..[ 11.00..22.00]

‐---------------------

November 4th 2024 [ on one grain and a quarter]

TSH....2.65....[ no T3 or T4 were done on this draw]😡

-‐---------------------------------

January 21st 2025 [ back to one grain because of awful symptoms, which I'm now very sure we're parathyroid related as my PTH went overactive]

TSH...3.62

T3......4.2

T4......9.2

-------------------

HbA1c...37....range..20.00...41.00]

Cortisol...446...range..133.00...537.00]

B12...393....range..197.00..771.00]

Serum cholesterol...9.2...range..2.50..6.50]

Serum LDL cholesterol..6.6...range 1.00...4.00]

Magnesium..0.92...range 0.70..1.00]

Phosphate..76...range..30.00..130.00]

Serum ALT...22...range 40.00]

Serum creatinine..102...range...49.00...90.00]

eGFRcreat....51....range...90.00...120.00]

Seems they have done most bloods I asked for👍

The GP knew nothing of my health history and was not aware I was taking NDT🙄 she firstly advised me to increase my levothyroxine 🙄 I then explained I was taking NDT, increasing slowly but because of some awful symptoms I decrease back down to one grain from one and a quarter.

You can guess she blamed the symptoms on the NDT, noting I should discontinue it and go back on T4...I went into a quick rant why T4 and T3 never worked for me, and if she would like to look over my last 4 and a half years of blood tests on both T4 and T3 she would very quickly see my bloods were appalling as was my health.

The NDT has rid me of all gastric issues, and I'm now able to stomach a thyroid medication which in effect is working way better than the synthetic form.

Let's just say she wasn't happy with me remaining on NDT🤷‍♀️...but I again brought up my symptoms as being related to primary hyperparathyroidism not NDT, and for which I have a diagnosis , I asked what my calcium and PTH were...

SEP 12th 2024

PTH....7....RANGE...1.60...6.90]

CALCIUM....2.36...RANGE...2.10..2.60]

VIT D..34..

Started me on loading dose of vitamin D🙄

-------------------------------------

JANUARY 21 2025

PTH...5.4...RANGE ..1.60...6.90]

CALCIUM..2.51...RANGE..2.10...2.60] sure vitamin d as raised my calcium, it always seems to do it]

Both these levels are to high.. in that I mean not over range but both are at the top end , not a good relationship between parathyroid and calcium , I've had several over range bloods and bloods showing over range calcium with high end pth, then over range pth with top to middle range calcium .

Obviously she had no idea what I was telling her in relation to primary hyperparathyroidism 🤦‍♀️

But she asked a key question.

Are you under a endocrinologist?

I said no because I'm afraid I found them very uninformed about this condition, I am however under a parathyroid surgeon in Liverpool who is monitoring me and doing scans etc.

She said she would pop her a Email with my latest blood work.

BTW...no mention of my cholesterol results by GP.. 🤷‍♀️

I'm now back to trying to increase to 1 and a quarter grains 👍

[Buddy195 Administrator]

Well done for standing your ground and advocating for your own health and wellbeing (once more!)

Let’s hope the one and a quarter grains work well for you birkie… keep us updated in how you get on 🤞🦋

[pennyannie]

Hey there Birkie :

Do you take the NDT in 1 go - if so, could you possibly see yourself taking a 2nd dose some time in the afternoon ?

[birkie in reply to pennyannie]

I split it 3 times morning, afternoon, evening..I'm trying to go back to one and a quarter grains again, but my symptoms of primary hyperparathyroidism make me feel awful., I threw up all last week , I think it was because the GP put me on a loading dose of vitamin D, it always effects me🤷‍♀️