Hi everyone ❤️
So I've been on NDT since July 18th started on half a grain then built up to one and a quarter grains, I started with some symptoms around 8th Sep which consisted of a bad back pain on right side with urinating way more and thirst especially at night, I also started sweating [ something I've not done since coming of levo , [ only one was when I tried one and a half grains I felt a bit hot with a red face but that went when I went back down to one and a quarter grains I think I went to fast.
So these symptoms continued getting worse, with awful tiredness, just struggling to get up in the morning, I was due to have thyroid bloods done on Sep 12th, I've posted what happened...nurse did parathyroid instead of thyroid 🤦♀️ although this was annoying it did show my parathyroid was over with calcium at mid range ( comments on blood printout...clinical significance in over range parathyroid with normal calcium ????)
I have been diagnosed with primary hyperparathyroidism, im feeling awful atm, this is a real kick in the teeth as I've been doing so well on ndt , I finally had my thyroid bloods done on Sep 20th which show my T3 is now in range , my TSH as come down from 45.66 to 18.3 my T4 is still low , speaking to the roseway clinician she now suggests going to one and a half grains until January next year where I should have my bloods done again.
My surgery as finally contacted me this week about a phone call with a gp..( I have no doubt this appointment will be with a gp who as no idea of my health issues, especially primary hyperparathyroidism 🤦♀️)
I'm terrified they will blame the ndt on my symptoms and advise me to discontinue it , and go back on levo...totally missing the point, I have a note book with questions to ask but I just know I will be gaslit by the ndt😔
So sorry for the long post but im totally lost and really dont know how to handle this appointment on 22nd oct..😢❤️