Just quick run down, did bloods endo noticed several results in my records of high calcium going back from.. 2015,onwards they read as: 2.61, 2.67, 2.89, 2.75, 2.67, last 2.61 ranges.. Calcium....( 2.10-2.60) only parathyroids done was in 2019 with a level of 3.1 which was normal... Since then parathyroid has gone to 8.1,,now at 9.5 I think🤔.. Normal ranges... PTH.. (1.6-6.9.)..pmol/L, obviously endo diagnosed hyperparathyroidism (which I was diagnosed with in 2003/4 , I had uptake scan which showed NO uptake in glands, endo suggested I take vitamin D as my vitamin was 29 ranges... 50.00-150.00nmol/L.. I've been on vitamin D for 2 months now at 800iU..one per day, my last bloods done on Dec 12th 2020..was vitamin D 52..nmol/L...how long does it take for your vitamin D to show a response 🤔.. Im thinking of getting the vitamin D spray, I did buy one but lost it😭.. I mentioned this to endo who said the 800iu was adequate!! 🙄
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Hi slowdragon❤️Thank you for replying ❤️ my gp says all vitamin and minerals are in range even a vitamin D level of 52 is Ok and she will not up the dose going against recommendation by gp and endo who say vit D is OK and going to buy the vit D spray again, unfortunately I lost my last one😒, no I'm not taking magnesium, my only magnesium blood test done in Feb 2019 was...( 0.93..mmol/L)...range.. 0.70..1.00mmol/L, i can't find any other magnesium bloods done after this date, what does magnesium do if I can ask slowdragon 🤔
Hi slowdragon and thanks again ❤️I've just recently been diagnosed with ostiopeania in my spine and osteoporosis in both knees and ankles😭 been in server pain for a number of years gp always said it was wear n tear, after high pth level and high calcium levels I eventually had the body scan which showed ostiopeania in spine, then new gp sent me for x Ray on knees showed osteoporosis in both and probably in ankles to, so that's why vitamin D was prescribed by endo... Do you think I should take magnesium??
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Hi penny❤️I've just read the post you put up on ostiopeania /osteoporosis, my health history has been mistreated for years going back to 2003 when my gp gave me a diagnosis of hyperparathyroidism, I was very ill bedridden for a month without diagnosis gp said I had a kidney infection, he did no urine test no blood pressure no temperature, eventually after 7/8 weeks I'd lost over a stone in weight was severely fatiqued, just totally unwell he did the blood test confrming hyperparathyroidism, Treatment consisted of 6wks wait and see approach! After 6wks bloods were drawn and according to my gp everything was normal, I never recovered not able to work or attend my gym I was totally spent, anything I did was like I'd run a marathon I had server pain in all my muscles and bones, I had no energy whatsoever and I went to the gym 4 times a week,before this, I was a keep fit bunny was a size 10, went down to a size 6 with the hyperparathyroidism, I struggled on for months then went back to my GPS OK they sent me to see an endo who did say it was hyperparathyroidism but I was now OK, later on was diagnosed with ME/fibro, so that was that, I carried on until 2015 when I started to notice weird symptoms fast heartbeat, sweating slight tremors gp said it was my menupausal symptoms, but I started going through the menupause in my 40s, I was about 53 when these symptoms became more noticeable and I knew what my menupausal symptoms were like, not like this!! I did have bloods drawn always came back normal this went on till 2018 when I collapsed twice taken to docs in Aug 2018 again bloods drawn all normal!! Then I collapsed again in September 2018,this time I saw a new gp at my surgery she noticed right away that I had hyperthyroidism after bloods were drawn she called me back the next day to confirm I indeed had hyperthyroidism, moving on to now, in 2019 thyroid was removed due to total toxic nodules (graves) and again after more blood work my parathyroid and calcium has risen with a diagnosis of hyperparathyroidism again, I had the body scan at my hospital which showed ostiopeania in my spine I was given no drugs for this but I have a lot of pain in my spine but gp again said wear n tear, my knees and ankles were x rayed showing progressive ostioporos I'm in pain constantly and have been for a number of years, but gp has only offered me opiates for the pain unfortunately the ones I was given had lactose in and I've been in agony with pain and loose mucusy bowles movements I've discontinued these, and are having to wait till Monday to see my gp again on the pain management, maby I'm wrong but I'm putting this bone problem down to untreated hyperparathyroidism /hyperthyroidism I've lost count how many times I've been in hospital with kidney stones, my mum had ostioporos to I mentioned this several times to my gp with no help, also I have a lump on the base of my spine where I smashed my coxsic tail In an accident when I was younger, late teens, my gp says my ostiopeania is in the orange zone whatever that means 🤷♀️ I just know I'm in constant pain daily... 😭
I don't know anything about parathyroids so I can only comment on Vit D.
When I was severely Vit D deficient with a level of 15nmol, I self treated with oil based D3 softgels and got my level up to 202nmol in 2.5 months. Obviously this was too high so I adjusted dose and now maintain it as close to 150nmol as possible.
800iu is possibly just about a maintenance dose for someone with a good level already. It's not really a dose to raise one's level.
With your current level of 52nmol the Vit D Council (unfortunately no longer having a live website) would have suggested a dose of 4,000-5,000iu to reach their recommended level of 125nmol then retesting after 3 months. They would also recommended taking D3's important cofactors - magnesium (helps the body convert D3 into it's usable form) and Vit K2-mk7 (directs the extra uptake of calcium to bones and teeth and away from arteries and soft tissue.
The Vit D Society and Grassroots Health both advise a level of 100-150nmol.
Hi seasideSusie❤️Thanks for the reply greatly appreciated because I'm so lost with all this, OK my TSH was 19.32mU/L... Range 0.30...4.50..mU/L...T3..4.3..pmol/L..range 3.10..6.80..pmol/L.. T4..2.6pmol/L..range 11.00..22.00,.. My vitamin D was 52..nmol/L..range 50.00..150.00nmol/L...one and only magnesium test was was done on 20th Feb 2019..0.93 mmol/L... Range.. 0.70..1.00..mmol/L..im on the soft gels, vegan as I'm lactose intolerant, 800iU...i think I need to up this as I'm finding 52 is still very low, my T3 medication has been increased to 15mg now from 10mg,split in to 3,
Hi seasideSusie ❤️Fgot to say, just recently diagnosed with ostiopeania in spine and osteoporosis in both knees and ankles, hence endo giving me vit D, I'm going to get the vit D k spray from amazon to use as a top up as endo said 800iU was adequate 🤷♀️
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