Hi everyone,
I'm new here and I am wondering if anyone could help me interpret my latest results. I had a test done with Thriva earlier this week and GP is unwilling to help me. I saw a private endocrinologist who dismissed my symptoms in October and November, saying that I'm not ill enough to be treated. Symptoms are classic hypothyroidism, struggle with malabsorption and painfully long periods.
Mum, grandma, auntie and sister have thyroid disease and they're being treated. Other women relatives on both mum's and dad's sides mainly are hypo, but some had PCOS.
About me:
Woman, 30, non-smoker, non-drinker. History of wrong diagnoses, see below. Most GI issues improved after a private investigation. I eat meat 2-3 times daily, liver eaten daily in last 30 days (no more than 200g/week), before then I'd eat meat a few times weekly depending on stomach acid.
Hair loss/receding hairline, fatigue, cold, unexplained pains, mind fog, bone and joint pains, psoriasis, eczema, histamine rashes, pallor coming and going, nausea, confusion, crazy mood swings, cystic acne, hoarse voice, throat pain, sleep problems etc - everything affects my job very negatively, sometimes I become "disoriented" even when speaking to colleagues and managers (even if wfh helps slightly). Endo said my symptom's "aren't thyroid-related" and advised me to go off birth control which I did two weeks ago... Then I find out he's specialised in diabetes...
In the summer, I was able to run 5k every morning and cycle-commute to work (1hr return) every day, even if it didn't help much in keeping the weight down regardless of how much or little food I eat. I'm normally a size 2, but was a 6-8 at my best since the issues blew up, but have since ballooned to size 12-16 (I'm 5 foot nothing, don't own a scale). But since September, I have been unable to walk for 10 minutes and sometimes find myself wheezing after a flight of stairs and have been feeling consistently worse since.
Thriva's doctor said I only need to improve Vitamin D and that everything else in range but I feel that's not really the case.
>>TDLR: I feel like I've been hit by a truck every day since 2010 and nobody's been really able to help me, so I've tried to help myself. My values are said to be normal but I don't seem to be getting much better. Can you pls help me? I'm changing endos.<<
Questions
1. What are the next steps going forward do you think?
2. Besides iron/ferritin and vitamin D, what else should I supplement?
3. Is levothyroxine actually needed? My TSH rose since my last 2 tests and "feel" a flare-within-a-flare is on its way now that I have a goitre growing...
4. How can I improve my sleep? I sometimes have a "hormonal rush" after getting comfortable in bed despite being a tired log all day. Restrictive on caffeine since July too
I have an appointment booked with an endocrinologist in mid-February who hopefully will be able to help me. The endo seems to be good, judging what people are saying about her.
Thyroid
Jan 2021 TSH 3.4 (0.27-4.2), FT3 5.0 (3.1-6.8), FT4 15.2 (12-22), T4 98.00nmol/L (59-154), TPO 12.9 (0-115), TgAB 10.2 (0-34)
Oct 2020 TSH 2.4 (0.4-4), FT3 4.9 (3.3-6), FT4 18 (10-22), TPO 65 (0-61)
Aug 2018 TSH 2.8 (0.4-4), FT3 3.5 (3.3-6), FT4 12 (10-22), TPO 34 (0-30), TrAB >1 (0-1.8)
Nutrients
January 2021
Ferritin 33ug/L (13-150)
Vitamin D 41nmol/L (75-175)
Active B12 127.0pmol/L (37.5-188)
Folate N/A - blood cells burst in the lab ("haemolysed")
October 2020
Iron 7 (9-34)
Ferritin 14 (7-120)
Thrombocytes 158 (165-387)
Vitamin D 66 (50-178)
Vitamin B12 229 (156-672)
Folate 26 (>7)
Homocysteine 14 (0-15)
November 2015
Vitamin D 22nmol (no ranges given)
Thank you kindly in advance!!