Hi everyone. I have been lingering for a while and hope that you can help me.I have my last 3 results from medichecks.
25/01/24
Crp 75.6 (less than 3)
Ferritin 143 (30-264)
Folate serum 10.1 (more than 7)
Vit B12 active 59.7 (37.5 - 188)
Vitamin D 25.3 (50 - 250)
Tsh 9.91 (0.27 - 4.2)
FT3 3.4 (3.1 - 6.8)
FT4 18.5 (12 - 22)
Thyroglobin antibodies 330 (0 - 115)
Thyroid peroxidase antibodies 310 (0 - 34)
I noticed my Vitamin D was really low so started taking Better You D3000 +K2 spray, which made me feel brain fogged and painful bones.
Then I did another blood test
11/4/24
Crp 6.1 (less than 3)
Ferritin 71.9 (30 - 264)
Folate - sample error
Vit B12 active 39.2 (37.5-188)
Vitamin D 44.2 (50-250)
Tsh 2.57 (0.27-4.2)
Ft3 3.9 (3.1-6.8)
FT4 17.8 (12-22)
I had to stop taking the vitamin D as it was making me feel absolutely rubbish.
19/6/24
Crp 6.1 (less than 3)
Ferritin 62.1 (30-264)
Folate 8.4 (more than 7)
Vitamin B12 active 77.1 (37.5-188)
Vitamin D 48.7 (50-250)
Tsh 8.03 (0.27-4.2)
Ft3 4 (3.1-6.8)
FT4 19.1 (12-22)
I still feel rubbish and no energy. My get up and go has got up and gone. If I do anything I get terrible back ache and feel drained. I also have terrible reflux, hair wiry and falling out. No body hair on arms and legs,bloated,dry skin and throat tightening.
I can't increase my levothyroxine as it makes me feel even more undermedicated with swelling face and abdomen. I did try increasing my dose before but ended up with T4 of 28.
My dose is 100/125 at the moment.
Thank you for any advice you can give.
Anne
Written by
Lottieanne
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I was told years ago I have Hashimoto but nothing was really explained.
I have tried increasing my vitamin D but makes me feel rubbish. Does the magnesium help with that? I have been trying to raise it by going out in the sun when we get some.
I will try and get a full iron panel done through the doctors but they are not very helpful.
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)
Post discussing how biotin can affect test results
As you have Hashimoto’s are you on gluten free/dairy free diet
If not these are always worth trying
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
If Ft3 remains low after all these steps…..then you will need small dose T3 prescribed alongside levothyroxine
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
Hi Lottieanne, I also have trouble with taking Vit D tablets, most give me terrible headaches. Most probably because of all the expedients in them. However, I have been taking Doctor's Best Vit D3 1000iu tablets ( I take 2 per day) and found I am fine with these. They only contain extra virgin oil, and vit D3 the soft capsule shell contains gelatin, glycerin and purified water.
I also take a Vit K2 drops ( Vitamaze) but not every day.
Thank you Slow Dragon. I have been advised to take chelated Magnesium, ( by members of a MEN forum I am on, and also suggested on Parathyroid Uk website) the last one I tried was Solfar Chelated Magnesium but it does have lots of ingredients in it. Does it matter what type of Magnesium you take?
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