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Julesd profile image
18 Replies

Hi all , it's been 8 months since my last post and in that time I have been supplementing as advised on here .

B12 sublingual along with a b complex . Vit D better you spray along with K2Mk7 and chelated magnesium . VIT C ......all the vitamins are the brand's as advised .

I have also been diagnosed with Lichen Sclerosis which is now being managed after 2 years of being told it's decrease in oestrogen . Anyway that's now sorted .

While at the GP'S for a bad sinus infection in May I mentioned the amount of rennies I was using for heartburn . Pylori orebactor was then tested and positive. 2 courses of high dose antibiotics and 6 weeks later I was feeling so fatigued and weak with no good days inbetween I had my bloods done by medichecks.

Here are the results and any advise would be greatly appreciated .

CRP level normal 0.67 (<5)

Ferritin normal 31.2 (13-150).

Low Folate 3.71(>3.89) I am taking folate in the b complex.

B12 normal.107 (37.5-188).

Vit D normal 73.8 (50-175 ).

Tsh border line low. 0.21 (0.27-4.2).

FreeT3.excellent .4.91.(3.1-6.87).

FreeT4.excellent.18.8.(12-22).

Thyroglobulin antibodies within range 89.8 (<115).

TPO elevated 553 (<34).

I am trying to cut out gluten as advised although when looking at my diet I don't consume much gluten . Recommended to cut out certain foods completely such as eggs and fruits ( which I do eat regularly)

Also recommends to see a dietician to keep diet balanced due to the list of healthy nutritious foods I am being advised to completely cut out . I know I will find it difficult to cut out the healthy foods that I normally eat but would doing this reduce the weakness and fatigue. Are the elevated Tpo antibodies contributing to this . Please advise as I am struggling and giving all my energy to my job and don't have much left for anything else .

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Julesd
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18 Replies
greygoose profile image
greygoose

Who advised you to cut out all this stuff from your diet? Far from giving you energy, you're probably going to end up suffering from malnutrition! Why cut out fruit and eggs?

And who wrote those comments on your blood test results? Your ferritin is not 'normal' - 'normal' just means 'in-range' - it is much too low, and that in itself will make you tired. Your vit d is a bit on the low side, too.

But, probably, the main culprit is your FT3. Who in the world thinks that 4.91 in a range of (3.1-6.87) is excellent? It's only just mid-range. Most hypos need it higher than that.

The TPO antibodies are not contributing to your weakness and fatigue, they are just an indication that you have Hashi's. And, like a lot of Hashi's people, your conversion leaves a lot to be desired. It may pick up a bit if you optimise your nutrients, but you may have to think about procuring some T3.

Julesd profile image
Julesd in reply togreygoose

Thankyou Greygoose for reply.

I copied word for word my medichecks results .

The comments on diet and results are in the Doctors Review section of results .

I have a list of foods he said to cut down on and a list that he says research suggests eliminating altogether to possibly lower anti bodies. This says eggs ,fruits, dairy , bread ,legumes , pasta and rice .

My gp sent me for a random Vit D test a few weeks ago , the letter said it was because I am supplementing and this came back just in range , lower than the medichecks . Can I take more than one spray of the better you 3000 a day .

The T3 can you advise where to buy it please and how much I need to take . I know my GP won't even go there.

Thank you so much

greygoose profile image
greygoose in reply toJulesd

Oh what rubbish. Frankly, I think it's better not to get the doctors' comments on these private tests. They have no more idea of what they're talking about than any other high street GP. They are not thyroid specialists!

No way is cutting out fruit going to lower your antibodies. lol It's ludicrous. And, what do you want to lower them for, anyway? Even if you managed to get rid of them completely, you would still have Hashi's. The antibodies are not the disease, they are the result of it. They do not attack the thyroid. All you're going to do by eliminating all these foods from your diet is deprive yourself of a lot of nourishment and pleasure. Unless you have a bad reaction to something, just keep eating it. Apart from soy, and he hasn't even mentioned that! Soy you should avoid at all costs, in all its many forms. Gluten-free is worth trying to see if it makes you feel better. But, apart from that, eat fresh and clean and enjoy your food! :)

Angel_of_the_North profile image
Angel_of_the_North in reply togreygoose

Soy is a legume, but in a different league from green peas, for example. I think that the doctor is taking a chance on most patients even knowing what a legume is.

greygoose profile image
greygoose in reply toAngel_of_the_North

I'm afraid I don't get your point, there. Sorry. :)

Angel_of_the_North profile image
Angel_of_the_North in reply togreygoose

I mean he mentioned legumes and therefore included soy. But it's unlikely that all his patients know that peas are a legume, let alone soy (running from not very evil to extremely evil).

greygoose profile image
greygoose in reply toAngel_of_the_North

Probably doesn't know himself, just read it in a list somewhere.

Angel_of_the_North profile image
Angel_of_the_North in reply toJulesd

Bread and pasta - well, all gluten and processed grains - I'd agree with. Some people are sensitive to eggs and dairy, but an allergy usually shows itself when you are a child. Not all fruits are created equal, so I'd like to know what fruits - citrus allergies are quite common. Some people are sensitive to certain legumes, you need to eat then for a few weeks and then stop and then eat them again to see if there was any difference. But, as far as I know, only gluten (and possibly dairy) is implicated in autoimmune thyroid disease. Most vegetable oils are inflammatory (except flax, olive and coconut), so need to be avoided. Not a lot left to eat if you eliminate all those. Meat, lard and cabbage, I suppose. Would probably work as a ketogenic diet - but I'm not recommending it. You need to post a separate question asking people to PM you with sources of T3.

Julesd profile image
Julesd in reply toAngel_of_the_North

Thanks for the advice , I am using gluten free bread and pasta. I have flax seeds nuts fresh veg and fruits every day but will start looking closer . I must confess to the sweet tooth occasionally getting the better of me but will start to look at baking options.I have recently started to take a probiotic with all the recommended components . I know it's an on going battle and sometimes the feeling of giving up overtakes . I don't know how we would all cope without the advice on here . A big thankyou to you all .😁👍

Angel_of_the_North profile image
Angel_of_the_North in reply toJulesd

If you can face it, I'd dump the gluten-free fake bread etc as well - highly processed

Julesd profile image
Julesd in reply toAngel_of_the_North

Really ....that's so annoying , all I want is a piece of toast now and again . God knows how I'll keep all this up . Lol

Angel_of_the_North profile image
Angel_of_the_North in reply toJulesd

Now and then if it makes you feel much happier - stress is probably worse than processed food!

NWA6 profile image
NWA6 in reply toJulesd

Hi Julesd. I use the Betteryou DLux with Vit K 3000iu. It’s a 3 spray dose and it raised my Vit D significantly within 6wks and to optimal levels within 12wks. HTH.

Julesd profile image
Julesd in reply toNWA6

Hi Paua6

Thanks and that's the one I use along with a k2 tablet . I use one spray each day and my vit D has only increased from below range to just over . Maybe I should be having 2 sprays each day . Thanks

NWA6 profile image
NWA6 in reply toJulesd

If you’re using the Betteryou Vit D only spray I think it is only one spray per day. But maybe think about swapping to the one I use? 🤷‍♀️ might make a difference? Bodykind is cheaper than the Betteryou site atm.

I would interpret the results differently:

Ferritin TOO LOW needs to be at least 70 31.2 (13-150).

Low Folate WAY TOO LOW needs to be in double figures 3.71(>3.89) Try taking methylfolate

B12 normal.107 (37.5-188).

Vit D TOO LOW needs to be at least high 90s 73.8 (50-175 ).

Tsh OK. 0.21 (0.27-4.2).

FreeT3. barely OK but could go higher.4.91.(3.1-6.87). 48% of range

FreeT4. OK but room for increase 18.8.(12-22). 68% of range

Do not stop eating eggs unless you have an egg allergy. Eat some fruit, but not tons - vegetables are better. Do stop gluten. NHS dieticians are often fat and clueless, but you can make up your own mind.

Julesd profile image
Julesd in reply toAngel_of_the_North

Thanks Greygoose and Angel of the North .

It's like going round and round in circles .

I eat a healthy fresh diet and wouldn't cut out these foods , just wanted someone else to throw some light on the Doctors comments , as you say Greygoose it's obvious the knowledge I need isn't from a doctor .

I am taking all the supplements as recommended on here but will look at what I can increase . Thanks for the sound advice and I can get back to the drawing board now .

bookish profile image
bookish in reply toJulesd

I have to say the doctors' comments on my own previous Medichecks tests have been utter rubbish.

It varies a bit but general advice for autoimmune diet is no grain, dairy, nightshades, legumes, eggs, seeds and nuts, but as an elimination and reintroduction/challenge diet (except for the gluten), not for ever. Tom O'Bryan (The Autoimmune Fix) puts emphasis on gluten, dairy and sugar, Datis Kharrazian (Why do I still have thyroid symptoms) insists on a minimum 2 week elimination of gluten, dairy, eggs, corn, soy and yeast. Both are good books to read. Some suggest keeping fruit to about 4 pieces a day. I eat lots of veg, fruit, eggs, fish, a little chicken, olive and coconut oil, fresh ginger, herbs, but also have histamine issues etc. If possible, do some testing so you know you are only cutting out what you need to. When I cut gluten (all grains) and dairy I got very obvious signs of previously unidentified problems so it made it easy for me - I miss both, but won't go back. I take quite a lot of supplements including free amino acids. (Duck eggs are better for some than chicken, apparently). Best wishes

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