I’m posting some results finally. I hope some of you amazingly knowledgable thyroid experts will be able to advise me.
I had an endo appointment a couple of weeks ago. Prior to that I had some bloods done, but the assistant endo hardly mentioned them!
I’ve been feeling more or less zonked/anxious/low, with brain fog, numb finger tips on my right hand, joint aches and finger pains/swelling for an age. This got me reading up. From there I guessed I was possibly under medicated. So during the appointment I was pleased to get my T3 upped 5 mcg to 25mcg per day.
You’ll see I’m also including some GP blood results that I requested. I was concerned about ferritin and folate etc. They as well show some deficiencies but again my GP hasn’t called me back!
I always have the test before I take the T3.
Also I take vit d and b12 sprays by better you. I hadn’t been strict with taking them recently though, hence I asked GP to retest.
Don’t have any antibody results to hand but will request some and post.
Thank you x
Jan 2019 (Request bloods at GP)
B12 558 ng/L (197.0 - 771.0)
FOLATE 3.6 ug/L (3.8 - 9999.0)
FERRITIN 47 ug/L (30.0 - 400.0)
Vit D2 < 5 nmol/L.
Vit D3 86nmol/L.
Range suggests D2 + D3 is ok if >50
Serum adjusted
Calcium. 2.09 mole/L(2.2 - 2.6)
Concentration.
Jan 2019 (hospital bloods prior to appointment)
TSH 1.52. (0.27 - 4.2)
Free T4. 4.9. (12 - 22)
Free T3. 3.8. (3.1 - 6.8)
Vitamin D3 76 (30 - 200)
Sept 2018 (Hospital bloods)
Adjusted Calcium 2.33 (2.2 - 2.6)
B12 703 (191 - 663)
TSH 3.04. (0.27 - 4.2)
Free T4 5.1 (12 - 22)
Free T3 6.6 (3.1 - 6.6)
Vit D 76 (30 - 200)
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Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If/when also on T3, make sure to take last dose 8-12 hours prior to test
Is this how you do your tests?
Why/when did you stop taking Levothyroxine?
Folate is BELOW range, so you need to look at adding a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.
B vitamins best taken in the morning after breakfast
Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two). Or Jarrow B-right
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
Thanks SlowDragon, yes just T3. Didn’t get on with T4.
Also I do take them in the morning, 1 hour before food.
What do you think of the TSH and Free T4?
I’m hoping the additional 5mcg of T3 will help. Although I will have to wait for the next blood test. I’ve been good on gluten free, but not so on minerals etc selenium and magnesium could be low as I haven’t got a routine with those yet. Not sure what to do with calcium either.
I bought some emergency calcium/magnesium from Holland and b - its like swallowing house bricks and they’re not a magnificent dose either.
Also got some folate/iron liquid from there but again dose seems basic.
I’m talking to GP tomorrow to query this. I doubt they will know about absorption problems relating to Hashimotis.
We rarely need calcium, level naturally rises as vitamin D improves
H& B best avoided
You get what you pay for and internet overs good quality at competitive prices
Only improve ferritin by diet, not iron supplements unless had full iron panel testing that showed low iron
Vitamin D mouth spray by Better You is good as avoids poor gut function
Calm vitality magnesium powder is cheap and easy to use. Best to start on low dose as too much can cause diarrhoea Must be minimum of four hours away from thyroid hormones
Divided dose of T3 can work better (3 x per day - 8 hour gap)and majority find Levo plus T3 works well. Did you ever try this?
Never tried combi of T 3+4 . Endo said he preferred either or. I wasn’t arguing as at that point was thinking of simply stopping T4 altogether due to headaches etc.
I think I could have issue with fillers but never did rigorous try outs to know. Been tested for Coeliac but came back negative. RA test also negative but still finger joints kill me usually connected with sugar I think.
Have been referred to what was the homeopathic hospital. Am hoping they might be able to suggest something relating to food sensitivities? Worth a try.
Re dose timing usually I take everything an hour before breakfast. But will experiment
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
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