Just a little update on my health, on Tuesday about tea time I stood up off my sofa and went really dizzy, fell back just though..ho just one of those days!! But when I rose again I was very, very dizzy this symptoms continued with now a very bad headache, with some unusual eye moments 👀 bobbing back and forth also had what I can only say was motion sickness i also blew a clot out my nose.
Eventually saw GP on Thursday emergency appointment 🙄
Upshot.. in A&E local ..then rushed up to carslie hospital for suspected stroke, clot on brain, as I just had blood clots in my left eye, I mentioned my ear problem I'd had for a while, went deaf overnight, it feels like it needs popped, like when you go on a plane and need to pop your ears, I have pain in it on occasions like someone sticking a knitting needle into it, and something is going on in my upper nostril...mentioned all this to my GP some 7 months ago.....crickets ..given steroid ear spray which did naff all.
So I was sure it was not a stroke, although I understand why they needed to eliminate it
So MRI showed no stroke or blood clots...good news👍
I had an appointment with a physio for balance problems ect, vertigo was mentioned and crystals in the ears, they are now sending me to ENT🙄.
OK but here my fear...bloods done showed my T4 is still low at 9.4....but I'd taken my ndt one [ I split it 3 times a day powder no capsule, so maby it would render the thyroid bloods usless, not sure, but he was more interested in my cholesterol level at 9.4...he said that's far to high....I go on to tell him how I've suffered for 5 years on synthetic T4 and T3 therapy and it not working for me, because of my resistance to it due to gastric problems, so I've been hypo for some time which as a knock on effect for cholesterol.
Here's his response....hypothyroidism as no effect on cholesterol, it doesn't matter if your hypothyroid even if you maintain optimum levels of thyroid hormone, it will have no effect in improving cholesterol 🤔
So...I try to say I think that's out dated information and get this..." we're starting you on statins Atorvastatin one per day 40mg because you cholesterol is so high , this could have an impact on your eye clots, we don't want you having a heart attack or stroke.
Personal I really don't want to take statins and would rather try to lower it through diet, but this specialist as put the frightens up me mentioning I'm more likely to have a stroke or heart attack if I don't go on statins🫣
Any feed back would be greatly appreciated members ❤️
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birkie
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What a scary time for you! I’m so pleased that you’ve had the all clear for stroke/ blood clots birkie.
I’m sure members with knowledge of statins will be along soon- I just wanted to wish you well. I hope your recovery goes well and you are resting this weekend.
In the past, when I’ve had an episode of vertigo, the following exercises really helped me and I managed to shift the ‘ear crystals’ after a few days healthline.com/health/fitne...
Thank you for your kind words ❤️They have given me cooksey-cawthoron Exercises and recommend doing the bppv Exercises but I was doing those before, for my ear problem 🤷♀️ I also have bad tinnitus 🙄
So sorry to hear of your added problems birkie . I'm sure your current problems are because your FT4 is still low and feel certain your FT3 is low too. Are you still having problems raising your medication? Cholesterol is bound to be high if FT3 is low. I have to say that just using the powder in Roseway NDT has not caused any problem with changing my levels, which are good, and I am only on 1.5 grains. My Cholesterol is 6.2, but not too worried about this. My son has a low FT3 and also ear problems, and has had them for about 6 years now. Thyroid meds going downhill!
In hypothyroidism patients with an underactive thyroid, elevated levels of Thyroid Stimulating Hormone (TSH) can lead to an increase in the production of clotting factors in the blood. This increased level of clotting factors can lead to an increased risk of developing blood clots in hypothyroid patients.
This was on January 21st this year on one and a quarter grains
Thyroid bloods taking on Thursday 20th in A&E .. I'd taken my morning dose tho..According to the hospital my T4 is still 9.4 even though I increased to one and a half grains after the January bloods, no information on T3 they probably didnt take it, no information on TSH either but im chasing up all information in A&E and my admission to hospital, they love to keep you in the dark as much as they can🤷♀️
OK so your FT3 is 29.73% through the ref range which is abysmally low and more than enough to cause your symptoms
FT4 is minus 14.55% re ref range.....abysmally low.
Who on earth checked these labs!! Very clearly undermedicated.
Some of that FT4 has likely been converted to T3.....
in addition the T3 in the NDT will have reduced the T4...
so lowering the overall FT4 level....
causing serious hypothyroidism!
Because your thyroid is failing it tries to produce more T3 to keep the system functioning which could account for FT3 sitting at 14.55%
Hope you can follow my explanation....sorry, it's a bit convoluted
One and a quarter grain NDT = 47.5mcg T4 + 13.5mcg T3
You are seriously undermedicated.....that dose won't adequately raise your Frees.....bearing in mind the T3 content will lower both your FT4 and TSH
You need to increase your dose by another quarter grain then in 2 weeks add another quarter and see how that feels....it won't be quite right but it should show a little improvement...you might want to add another quarter......that will be 2 grains if my maths add up!! It's quite a big dose but you have a lot of hormone that needs replacing
Test after 6 weeks
The results should point the way forward....you may even need a further increase
I had a full thyroidectomy in 2019, so I totally rely on thyroid hormone, I reckoned my t4 , t3 would be low..but my own GP said my t3 and TSH are now at good levels or in range 🙄 I know gps are useless and I need to increase my ndt from one and a quarter grains to one and a half, which I have since January 21 2025.I do intend to increase further after I speak to roseway as I don't have enough ndt to increase any further, I've to get bloods done and my surgery are faffing about atm😡
Why did you have a total thyroidectomy? If it was due to thyroid cancer then, you are definitely under medicated and need a higher dose of Armour thyroid. I had a partial thyroidectomy to remove thyroid cancer in 2013 and I can’t take the synthetics hormones so, luckily, I can now have Armour thyroid but my hormone levels have to be seriously negative to prevent the cancer growing back. My TSH has to be 0.00 or -0.00, the ranges don’t apply if you’ve had cancer because the Pituitary gland that makes TSH has to stop producing this hormone otherwise the thyroid gland takes iodine from the diet to make thyroid hormones and this helps the cancer to grow because it too needs iodine.
Keep persevering and good luck with your thyroid journey.
Me too mine went on for 2 years I am just lucky I still have my thyroid. However I don’t know what the future holds for me and could lose it in the future. I feel like every day is a constant battle with no support from the NHS. The only support I get is from fellow sufferers
Oh dear, that’s such a cop out blaming the menopause.
However, you are under medicated and need to increase your Armour. Plus, an under active thyroid gland that is not medicated fully leads to weight gain and an increased risk of developing type 2 diabetes.
Do you eat enough fat in your diet? If not, your Liver makes fat because it needs it to help the body make hormones and vitamins and calcium. Calcium is needed for bone health and it is fat soluble so, when you eat dairy you need to consume full fat dairy. I follow a low carbohydrate and consume full fat dairy because I’m a diabetic and I don’t have any issues with cholesterol.
Also, the liver converts thyroid hormones (T4 to T3) and if you’re not taking enough Armour and not eating the food it needs then you will feel unwell.
This is a lot of information to take it in so, go to bed and get plenty of rest and look at again tomorrow.
Here's his response....hypothyroidism as no effect on cholesterol, it doesn't matter if your hypothyroid even if you maintain optimum levels of thyroid hormone, it will have no effect in improving cholesterol
Seriously?! I think he needs to give back his medical degree, as even the NHS acknowledges that untreated hypothyroidism and high cholesterol are connected:
The thing is, you cannot lower your cholesterol through diet, as it is NOT a dietary problem, it is a metabolic problem caused by a lack of T3. This is the only way you can get your cholesterol levels down and you may have to find a way to increase your thyroid hormones, especially T3. T3 is the driver of your metabolism and responsible for clearing dietary components such as glucose and cholesterol from your liver and circulation. As you have a lack of T3, this process is not efficient and hence your cholesterol increases. Are your liver enzymes elevated as well? This can also happen when too little T3 is present, as the liver has to work extra hard to deal with the cholesterol.
Obviously a cholesterol of 9.4 is not good, and perhaps for the time-being you could start on a low dose of the statin, but I would really advise you to sort out your T3, as this is the root of the problem. Statins are a patch and address the symptom of your hypothyroidism e.g. high cholesterol, where as the underlying problem is a lack of T3. I have attached a few scientific papers showing the connection between unfavourable lipid profile and thyroid disorders.
That's practically what I said to him it's the lack of the thyroid hormone that causes cholesterol to go high, but no, he just said my T4 was low at 9.4 range ..11.00..22.00] but never mentioned T3 probably because they never did it😡
I'm trying to increase my ndt , I started on 1/2 a grain on July 19th 2024 and have slowly increased since... getting to 1 and 1/2 grains now.
Yes, your thyroid hormone levels are far too low and it would be good for you to try and increase your levels. I am not experienced with NDT, but I am sure that there are other members that can give you pointers on how to safely increase your levels.
Wishing you a speedy recovery and hope that you will soon be in a better place.
Just a quick note Tina_Maria I'm getting my next ndt prescription at the end of March, I've been informed I must have new thyroid bloods done, I'm hoping my surgery can do them, having trouble with the surgery atm😡.
Roseway clinition told me they would take a look over my recent bloods and if any adjustments are needed they will adjust the medication , maby I need more T3 in the compound 🤷♀️
If it is a compounded preparation Roseway may be able to adjust the amount of T3 in there? But before, it would be good for you to get an accurate measure of TSH, T4 and T3 especially, so the clinic will know what your requirements are.
If the GP surgery is not willing to do the tests or won't measure your T3, could you perhaps do a private blood test, so you get a good reading of all the important hormones?
The surgery have agreed to do the full thyroid panel, but 2 silly GPs didn't order it, so receptionists told me to ring up later, unfortunately I was rushed to hospital for 2 days so couldn't do any follow up with the surgery, hopefully on Monday they may have the order from the gp so I can get the bloods done then.I've not got much ndt left🫣
For a while I tried Bergamot for cholesterol. Some research says more effective than statins as works on different mechanism in the body, reduces LDL and triglycerides. Stupidly I didn't get any before-and-after readings, so all I can say is I had no side effects. I will eventually get more and try again (rationing supplements at present because of expense) , and will be a bit more scientific about it - test before and during to see effects over time. pmc.ncbi.nlm.nih.gov/articl...
Interesting, thanks for this, I might try bergamot. My cholesterol isn't desperately high, but it always comes in over range, prompting the usual comments from doctors. I drink Earl Grey tea once or twice a day but I guess there's not enough bergamot in that to do the job!
Here's his response....hypothyroidism as no effect on cholesterol, it doesn't matter if your hypothyroid even if you maintain optimum levels of thyroid hormone, it will have no effect in improving cholesterol 🤔
A note from the NHS website on thyroid and statins :
If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.
Yep...your correct in what you put, this is what I told the hospital doctor and I got a very dumb and wrong answer 😡
Reckon his rubbing his hands in prescribing me the statins,💷 I've had these pushed in my face for the last number of years, no GP as ever said " really we need to address your thyroid levels "
And now because I'm on ndt I have to fight to get bloods done, one GP actually telling me because I'm now on a medication the nhs don't pescribe I would not get my thyroid bloods done through the surgery.
The only reason the other GP caved in was because my T4 was 9.4 so he agreed to doing thyroid bloods 🤷♀️
I am sorry that your having so many problems. I had my thyroid removed back in 2015 and after only 6 months on Levo changed myself to thyroid s NDT after reading about it on this site. I started on 2.5grains and then lowered it to 2.25 for years.
You levels look extremely low. To feel well my FT4 has to be much higher also FT3 around 6 plus. This I think is the root of your problems nothing else.
Take more NDT and you should feel a difference. If my FT3 is too low like yours I start falling over and have pains all over my body. The eye that I had operated on in the 90;s keeps closing, only when my FT3 is too low.
I'm due to speak to roseway the end of this month about my next prescription, hopefully new thyroid bloods to hand I hope they look and maby tweak my compound.
I'll need my new script before I can increase , as I don't have enough ndt to do an increase just yet, also my capsules are one grain and I'm taking the powder out , split 3 times a day 1 and a 1/2 grains, so hopefully they will now supply the 2 grain capsules 👍
It's strange tho, my T3 was 1.50 at one point and I didn't get these symptoms, I've just developed these over the last few days, my T3 is 4.2 now higher than the 1.50 🤷♀️ my eyes are wobbling from side to side with vision disturbances, bad headache and ear pain with a nasal infection, the doctor thinks it's an ear problem and I tend to agree, because I went deaf overnight, I've never regained my hearing in my left ear , hopefully ENT can shed some light on it👍
All I have to say to this is that when my thyroid hormones were low, my cholesterol was high. The conversation with the gp was similar to the one you had with the added bonus of "Do you want to be at your daughter's wedding? Do you want to hold your grandchild? You have to take statins or you will surely die." (or some such). Shortly after going on statins I was in excruciating pain all over my body. Wherever there is a muscle in my body there was pain. I flung the statins into the rubbish bin (improper disposal...shouldn't have done that) and took the gp's fury. Now I'm as optimal as it gets with my thyroid hormones and my cholesterol has come down considerably. I admit that my LDL is still higher than it should be, but it is much improved. There is one thing I know for sure, though: I will never go on statins again.
Maybe the doctor who told you that hypothyroidism has no effect on cholesterol needs to take some CME on the subject (or he can google it 🤣😂). He might find this link: pmc.ncbi.nlm.nih.gov/articl...
😂😂😂😂😂 yes I agree think he needs to go back to medical school, nothing was mentioned about my abysmal T4, T3 levels I had to bring them to his attention, but as I said he dismissed the link with hypothyroid and cholesterol 🤦♀️.
I'm sure my surgery have just wiped there hands of me because I came off the synthetic version of T4, T3, due to serious gastric problems , and I wasn't absorbing it enough for it to do anything , so technically I'm on my own apart from the roseway clinical team.
Sorry to hear about your scary recent experiences. Glad it's not a stroke! Cholesterol definitely goes up with hypothyroidism. When I was first diagnosed with it, my GP told me 'your cholesterol is very high, but we're not worried about that as it will come down as soon as we've got your thyroid meds sorted.' And it duly did. So that doctor in Carlisle is way out of touch... X
To be bluntly honest my surgery have see and know my thyroid levels, one GP just rang about my T4 being 9.4 and to increase the T4..[ had to go into a whole conversation about the fact I'm not on T4 I'm on ndt, it's in my records 🤷♀️ he just said increase, we will take bloods in 7wks unfortunately he never put the request over to my file , so I'm in limbo waiting for someone to sort the thyroid bloods out.
Tomorrow I'm ringing again as I couldn't when I was in hospital 😡
In my opinion you are definitely undermedicated. With regard to your difficulty obtaining NDT, have you thought about adding bovine desiccated thyroid such as Thyro-Gold? Bovine NDT does have a lower T4 to T3 ratio than porcine NDT. So your ideal is to get more NDT prescribed., however Thyro-Gold is a good option if you can't. You can mix NDT and Thyro-Gold.
I was on Thyro-Gold for 5.5 years before an nhs endo agreed to my being prescribed T3. Have a look at naturalthyroidsolutions.com
You will need to check you are allowed to import it into your country, it is fine to import it into UK for own use.
Thyro-Gold was used by Dr J C Lowe, the medical advisor to thyroiduk until his untimely death in an accident.
Also useful are the 3 free chapters of Dr john c lowe's book that talk about safely getting well with thyroid hormones.
I initially went on ndt because I can't stomach the synthetic T4 or T3 my endocrinologist prescribed, I tried for 5 years trying to get my levels up but ultimately because I had the gastric issues I passed both T4 and T3 with server diarrhea and it flared my colitis up causing bad gut issues.
The ndt as been fantastic gut wise no gastric issues since starting it in July last year, just been increasing slowly, but I have primary hyperparathyroidism and have flare ups of that condition so when I started the ndt I was great until September , when I started with what I thought was over medicated symptoms
Sweating, tremor, anxiety, headache, nausea, my fatigue went off the scale , I'd managed to get to from 1/2 a grain in July to 1/ 2 a grain and a bit in sep so stupidly though " ho God I'm over medicating myself, when in actual fact my PTH had gone overactive, truly the symptoms are awful😔
So I decrease back to 1/2 a grain which set me back by 4wks, when I saw my PT results I immediately knew then it was primary hyperparathyroid symptoms, not over medicated.
But it's really hard going through the PT symptoms which as I say are flare ups, and because I'm increasing the ndt I always think 🥵 I'm over medicated ive increased to fast so decrease again 🤦♀️ and to be blunt my surgery are crap...they are not at all bothered about my thyroid bloods or doing them, its a chore for the nurses and a chore for receptionists to organise it😡
But I'm talking to roseway at the end of March [ hoping my surgery can get my thyroid bloods done by then🤞 as I need new ones before I can obtain my next script]
I'm hoping the clinician can work out my levels and maby tweak the compound for me, I am also increasing as best I can, but this hospital admission as threw me for a loop.
Also it was noted I had a full thyroidectomy the nurse asked what thyroid medication I was taking, pen in hand and I'm sure she was hovering over the T4 box, 🤣 I threw a spanner in the works by saying " I'm on ndt".....nurse..." sorry what! NDT what's that🤣 "natural desiccated thyroid "
" sorry I've never heard of it"...I said " no you won't have because the nhs dont pescribe it"
She asked another senior nurse to step in, she did know of it but just told me " ho it's OK you can be without your thyroid medication for a couple of day's , won't do any harm"
Wonder what would have happened if I'd needed to be in for 2wks🤣
On a works 'do' a couple of months ago, one of the women who had been completely fine on the minibus journey and for the first hour at the bowling alley suddenly collapsed at the dinner table, pretty much head-first into her gammon steak. She was completely zombified and could hardly lift her head she was so tired. One of the men who has had thyroid cancer and a complete thyroid removal, worked out that she had forgotten to take her Levothyroxine for 3 days. (I had no idea she had thyroid issues). Neither he nor I had any levo with us to give her, as both of us are tightly rationed by our surgeries. She said later that she had loads of spare at home (presumably because she keeps forgetting to take it!). It was quite scary to see how suddenly and completely she collapsed when only missing 3 days. (She was like that till she got home and took her dose - had to be practically carried to a taxi...) So those nurses were a bit blase to suggest you could miss it for a few days! This male work colleague has recently gone very deaf and has hearing aids (he's only about 40ish) and now reading some contributions this thread I'm wondering if it's thyroid related? Although I'm aware you are pretty sure that your hearing issues aren't, some other people seem to be saying that their's might be...
I had had been hypothyroidism for several years. 2 or 3 years prior to my health crash in 2023 I had a vertigo experience, getting out of bed one morning immediately became very dizzy and couldn’t stand so back to bed. A couple or so hours later I was able to get out of bed but feeling wobbly. Doc made appointment to see ENT consultant for nearly a year later 😳. In the meantime was given exercises for BPPV. A year or so after, I collapsed on a beach whilst carrying heavy fishing gear. My eyesight suddenly went so I couldn’t make anything out near or far, like looking through extremely frosted glass. All energy just drained from my body and I collapsed, with SOB and severe weakness I was just able to ring for an ambulance (thank goodness for ‘What3Words’). Taken to hospital, had lots of tests and a brain scan, nothing found. Looking back I now see these were developing signs of B12 deficiency. When my health crashed in 2023 and saw my doctor I came to realise my surgery was very ignorant regards B12D. I did eventually get the loading doses, after the 4th jab my symptoms started to lift. I soon found that the two blood tests I had received 2018 and after had shown very low B12 but the surgery did not act on this. The upshot here is that vertigo is a symptom of B12 deficiency, along with many others and should be checked for. Dr Klein diagnosed me with autoimmune Thyroiditis and pernicious anaemia, I’m still trying to get the right treatment from my surgery. Fortunately I’m self injecting every day with B12.
Funny you should mention B12 as my last B12 test came back as [393].. I think the range is 1.79..771.00 that was taken on January 21st this year , I asked my GP about the result she just said its in range so OK.
I told her I'd been trying to introduce B12 and vitamin D with k2 for sometime now but always end up with gut/ stomach problems as they seem to effect my colitis, I asked if I could possibly have B12 injections to help raise it,... i was refused the vitamin D as I have primary hyperparathyroidism and my calcium bounces in and out of range, and when I tried to raise the vitamin D , the last being the drops, I stuck to it eventho it caused gut problems but it raised my calcium to the top end , I felt awful🤮.
As for the B12 injections the GP totally refused them to saying" your B12 is in range no need for injections ".
I understand what you mean about not being told about bloods being out of range or deficient or insufficient my GP never told me my calcium was 2.89] calcium range is 2.10..2.60] I have several that have gone very out of range and my GP never said a thing 😡
You mention supplementing with B12, your results are skewed if you’ve supplemented fairly recently. Even if the range has not been skewed you could still be deficient as the B12 serum blood test will pick up the total amount of B12 (active and inactive), if you have an absorption issue then you may not have enough active B12 to make the difference and injections are needed, many of us self inject. NICE guidelines emphasise the need go by a patients symptoms as the serum test is almost useless. Your best bet is to go to the Pernicious Anaemia Society forum on this platform where you will get lots of good information and interaction. You have to join pernicious-anaemia-society.org charity (not expensive) to get access. Their website has lots of good information too.
I stopped vitamin D when I got my calcium results in January as I said I hung on even though I was having diarrhea and gut issues , my calcium rose from 2.36...to 2.51 if I'd continued to take the vitamin D it would have just gone higher, because it happened everytime I've tried taking vit d🤮
I stopped the B12 long before January because both we're causing awful symptoms and because my pth was over range I was advised to keep taking the vitamin D to try to lower the pth🤦♀️ it doesn't work like that, if your calcium is already at mid to top end then taking loading doses of vitamin D is not recommended 🤷♀️
I do have absorption problems, but my GP just ignores this
So here's a bit of a story about me being in hospital these last few days...Thursday I'm given blood thinners 4 tablets in my local A&E..took by ambulance to city hospital given 3 anti dizzy pills which I take for the next 3 days, then on the 3rd day given a statin table.
I'm home from hospital late Saturday nite where I continue the medication regime.
Today I've had the most awful stomach pains with bubbling noises my guts are flipping over , I've just managed to have some solid food and it came rite through me💩, I look at the ingredients in the meds ..both contain LACTOSE [I'm lactose intolerant] and a plethora of other nasty fillers 😡 I know it's these tablets doing it, I'm bothered if I continue [ which I reckon I wont] my ndt will just come right through me..so even less absorption 🤦♀️
Your issues sound so familiar because I’ve been in and out of specialties office since September of last year for random deafness and struggling with bouncing vision which makes walking difficult. I was just recently diagnosed with Bilateral Vestibular Hypo-function and Vestibular Migraine which Im told don’t necessarily create migraines but can cause hearing loss … Next month I go in for genetic testing to see if I have a variant of Wolfram syndrome.
When I thought I could see the end of the tunnel I’ve been plunged right back into it.
ho sorry to hear [ no pun intended] what your going through, I know ..just when you think you've got it sorted you get kicked in the teeth.
I'm waiting on ENT appointment 🤦♀️ won't hold my breath it being soon.
but it's not like I haven't gone to the doctors office complaining of this issue, my GP just gave me an earing aid which just whistled all the time , dam dangerous trying to cross roads, I took it out it did nothing for my earing 🤷♀️
Many years ago on T4 only my T3 levels were low and my cholesterol was over range. GP dismissed the low T3 but advised statins. I refused and looked at natural ways to reduce cholesterol through diet. I started having porridge every morning and the cholesterol came down and has stayed down ever since. Maybe worth a try.
I was on Atorvastatin for many years at 10mgs for the high cholesterol that being Hypo produces as well as my genetic propensity. After a year or so (my memory is really failing me these days) a stabbing pain in my right thigh began. It was as if a large knife was plunged into my thigh. I would yell out because there was no warning for this. It just came on. It stayed for a couple of minutes, but the pain memory would last for about 10 minutes. GP's solution was to take the pill every other day. The "knifing" remained. I was lowered to 5 mgs every other day and the knifing remained. I stopped the statins on my own and went to supplements: Berberine, Cholesteroff, and Garlic. My next labs were way off of the charts--bad--and caused my GP to place me on Repatha which is an injectable steroid for cholesterol. It's $$$$ here in the States. New blood labs have my cholesterol levels all leveled off in the normal range. My GP is happy (that I'm not going to stroke out on his watch🤞😑). I'm not getting the stabbing pain. The injection is easy. It's an injection every 14 days. My husband is now on statins. He's 72 and has the gait of a man in his 80's. His thigh muscles are cramping on him and he's getting the stabbing pain in a different part of his thigh. (Why the thigh?)
Is the Spring bloom happening in the UK? Our fruit trees are blooming in Tennessee and everyone is complaining about headaches, stuffiness, coughing, and itchy sore throats. Could it be that you have mega-sized seasonal allergies? I'm 66 and will be 67 in July. I've never been hit as badly as I have been this year with the seasonal allergies. Will it continue to get worse as I'm aging? Is my aging causing my allergies to become worse? That's a good question.
I hope that you get to the bottom of this. And let's hope that your general practitioner learns about the connection between the Thyroid and Cholesterol. 🙏🙏🙏🤞🤞🤞
I'm sorry you're going through all this Birkie. I've got my thyroid, though the right lobe is a full goitre; I'm not on Levo. However, I have tinnitus and when it is high level I feel way off; I've also had BVPP (and the associated projectile vomiting - which multipled when I tried the GP's damned exercises). I've realised it is when my Active B12 is 'low'.
At its worst was March24 when Active B12 was 74 - yes, above the 'low' this forum highlights - and Serum B12 was 290: I was dropping into dementia mode (far worse than brain fog). That equates to 75% inactive B12. For me to function I now realise Active B12 must be well over 55% of range, thoughI feel much better at 70% of range.
As you know, gut issues wreck B12 absorption. The Pernicious Anaemia Society has already been suggested. I offer perniciousanemia.org/ Despite it being a USA site, its meds are made in the UK. Have a read.
Do you have any chance of getting a second opinion? Especially with him giving you such blatantly incorrect information about thyroid disease and cholesterol? Statins might be a good course of action (short/medium/long term), along with proper thyroid medications, but he doesn't seem very trustworthy. Unfortunately, poorly treated thyroid disease can put us into a situation of having to take medications we could have otherwise avoided. You need someone trustworthy and with sufficient knowledge to help you figure out the pros and cons of different treatment methods (which so many doctors won't do sadly). I definitely understand wanting to avoid statins, but if you're at high risk for strokes, you want more information (and even more information on your risk levels!)
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stopping levo for a time before test and statins?
