Evening All - my first post but I've been reading around the forum for a few weeks now. I am equally depressed by the endless horror stories and lack of care, but also cheered up by the camaraderie and help provided to others on here. My situation seems very common - I've had two sets of blood tests done, first my own by Blue Horizon and the second by my GP. The GPs view is that I'm in normal range, despite my range of horrible hypo / sometimes slightly hyper symptoms. I was aghast to be refused thyroid medication point blank, but very casually offered anti-depressants. I declined!! I have asked to be referred to an endo but am having to do this privately.
As per the excellent advice from others on here, I've been reading up madly and have learned a lot from Elle Russ' Paleo Thyroid Solution, Izabella Wentz's Root Cause of Hashimoto's and Amy Myers' Autoimmune Solution. I'm on an elimination diet, organic body care products, yoga / walking / managing stress, recommended supplements (D3, Magnesium, Selenium) etc. But while I'm fixing the root cause (in theory) I'd really like some thyroid meds to stop feeling like I'm dying!!! Is that really so outrageous.
I'm seeing my Endo in Derby tomorrow and will report back...here are my results for reference. Does a pituitary issue look a possibility? I have neuropathy every morning and often wake in the night with a hard, elevated heart rate (adrenalin feeling). On waking, I feel like I'm dying and have been awake all night. I've lost all interest in friends, socialising, hobbies, ambitions because I have zero left in the tank after busting out my job.
Once upon a time we'd have been diagnosed by clinical symptoms alone. - no blood tests then.
He is going by your TSH only. He has ignored completely your low FT4 and FT3. He has also not diagnosed you as having an Autoimmune Thyroid Disease called 'Hashimoto's' and that you have antibodies attacking your gland till you become hypothyroid.
email louise.roberts@thyroiduk.org and ask for a copy of the Pulse online article wherein Dr Toft (ex President of the British Thyroid Association) says if we have antibodies, we have to be prescribed levothyroxine.
richar03 Good luck with your endo appointment tomorrow.
You do need thyroid meds, you have Hashimoto's as your high TPO antibodies show. Dr Toft, past president of the British Thyroid Association and leading endocrinologist, suggests starting Levo to 'nip things in the bud'.
Your Vit D is OK but really needs to be 100-150.
B12 is recommended to be at the very top of the range, even 900-1000, so you have a way to go there. Anything under 500 can cause neurological problems. Are you supplementing?
Point out to your endo your over range ferritin and folate to the endo and ask for them to be investigated, particularly the ferritin being that much over range.
As others have said, you really need thyroid hormones. I felt terrible with t4 and t3 similar to yours.
Regarding the high ferritin, I have this problem. I think it might be due to inflammation (sttm site) , but although doc said nothing to worry about, I got mine back in range by giving blood. A thought for when you feel better-not now!
Thank you all so much for your incredibly supportive and practical help. It's so reassuring - it sounds ridiculous but I had started to lose confidence in my own symptoms and test results and was almost trying to rationalise that they were all normal to fit my GPs reaction. It can feel very lonely to be so bluntly dismissed by the 'experts'.
I have started supplementing Jarrow Methyl B12...fingers crossed it will help.
Thank you for the Dr Toft reference, I'll print and use that.
I had thought about donating blood but note your comments about getting well and stable first, that makes sense.
My GP barely registered the anti-bodies and seemed to take the position that it was best to wait until TSH was elevated before doing anything, as that's how we'll know my thyroid is in trouble. We went round in circles from that point with my symptoms and ended up at anti-depressants. Argh!!
Have a good day folks, and thanks again for welcoming me into the group.
As you're supplementing B12, hopefully you know to also take a B Complex to balance the B vits. Best to get one with methylfolate (natural) rather than folic acid (synthetic) which the body needs to convert to folate.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
New Bloods
Trying to understand test results, please can anyone advise how to read them? 
Blood Test Results
Results with T3 and 50mg T4
