This was my initial post a couple of months ago...Hello, I'm a 36yr coeliac female struggling with fatigue, low b12, low iron, poor cognitive function & myalgia. Pretty much at my wits end with exhaustion/stress/anxiety from it all. Waiting to see endocrinologist on NHS but looking for recommendations to go private (West Yorkshire area). My dietician said it looked like I have a thyroid problem. My gp said I don't. Something isn't right! I can't go on like this. I've even started forgetting people's names. I take b12, Adcal d3 & iron tablets.
Bloods - In May my b12 was 183. Prior to that (Nov 2014) it was 263 and regarded as 'normal, no action'.
When my dietician was concerned, TSH was 5.0 in October 2014, but then 3.4 when gp tested a month later. Subsequent tests came back 'normal' according to my gp....
Further to my previous post, I went to see a private endo who said I didn't have a thyroid problem at all (just based on previous results also listed in this thread) and he requested tests for glucose (x3) and adrenals/cortisol as well as acetylcholine receptor antibodies. I was told all of these came back 'normal'. Was due to go back to see private endo but he has retired before I could get a follow up in!
My NHS endo appointment has come round now (first week in Oct) so I thought I would go armed with as much info to help my case as possible. I sent off for Blue Horizon thyroid blood tests myself (in case the NHS endo doesn't test me for anything related too) and these were the results... (I took the sample at approx 7.50am prior to eating anything)...
CRP: 0.30 range <5.0
Ferritin: 130.9 range 20-150 (I have been taking iron supplements from my gp but was since told to stop without them taking any further level tests)
TSH: H 6.19 (0.27 - 4.20)
T4 Total: 75.8 (64.5 - 142.0)
Free T4 16.40 (12-22)
Free T3 4.46 (3.1-6.8)
Anti Thyroidperoxidase abs <5.0 (<34)
Anti Thyroglobulin Abs <10 (<115)
Vitamin B12 L 149 (Deficient <140)
Serum Folate 22.48 (10.4 - 42.4)
So from these results, my B12 has fallen further. I have practically begged my GP for B12 injections and depending what happens with the NHS endo, I will be going back armed with a letter for my GP (from me, strongly requesting a B12 injections trial).
I don't know if my NHS endo will accept these results, but I am at least hoping they will trigger further investigation? My cognitive state is very difficult to deal with and I haven't had a proper conversation with anyone for ages (I keep drifting off and can't concentrate on what anyone says if they speak for longer than a sentence)! It is also affecting my work badly which is something I have told my GP.
Can anyone offer any advice please?
Thanks for your help.
I have since stopped taking cyanocobalamin tablets as it was a very small dose and my gp told me to stop taking ferrous fumerate a few weeks ago.