Hi all, I wonder if I could maybe just vent a little and also maybe get some advice for which direction to go next.
I feel like I have been round the houses, as I'm sure many of you have also felt. Having paid to see a private thyroid doctor, who then referred me to an endocrinologist - who both said thyroid levels look 'normal', the endo suggested I may have PCOS due to some of my symptoms, but all my bloods for that also came back 'normal', so I have just been told in a letter that cost me £60 that I am fine.
I have gone strictly gluten free since the start November but with no noticable improvements yet.
And I have recently seen a nutritional therapist. Now she at least agreed that I'm not fine; she recommended a long list of expensive supplements (in addition to the large handful I've already started taking), gave me a £50 herbal concoction which has made me violently sick, and has recommended an adrenal saliva test and a stool test (both coming in together at around £350).
I guess I'm just feeling a bit exasperated and not sure what to do next. To be honest my gut instinct doesn't feel right about spending all my (and my mother-in-law's) money on all these things. It's actually making me feel increasingly stressed, which I know can't be good. Some days I just want to shout; I have done so much to adjust my diet, it has never been so healthy, I'm spending more money on buying organic veg & natural cleaning & beauty products - and yet none of it has made any difference. I'm just at the point where I'm really feeling anxious about spending more money (my partner and I are by no means wealthy) while all my symptoms go on unabated.
I was hopeful that the Nutritional Therapist could help, and she said she believed I would be able to lower my antibodies - and therefore my Levo meds - which would be great. But she doesn't seem to be addressing that, she is really slow at getting back to me, and always seems to give me the minimum amount of information possible. Obviously she isn't cheap - and neither is anything she has recommended, I don't want to continue down that route, spending more money, unless I really know it will be worth it.
I really do want to get better, and I believe that natural ways will help me, but I'm just at one of those brick wall moments if you know what I mean?! I'm taking a vertitable cocktail of vitamins & supplements each day now, but still I feel no better at all.
I feel like I will go back to my GP soon, as I have had chronic constipation for so long now, with one laxative after another (the NT has told me to take some natural supplements called Coloclear for this, which cost £10 a bottle, and at 8 tablets a day will only last about 10 days - I feel like this is just another version of a laxative and that if I stop taking them I'll just block up again - at least the stuff from the GP was free).
I also know that by February, when my husband & I will have been trying to conceive for 18 months my GP will at last be able to refer me to a fertility specialist, which I can only hope will reveal more info.
In the meantime my hair continues to fall out (even after cutting most of it off because I was getting so frustrated). My periods are still not normal, with early spotting and extremely light flow, although according to all tests my hormones are within range.
Sorry, I know this is a bit of a rant, and I try daily not to get into a pit and feel sorry for myself, but I just wondered if anyone had any advice of what I should do next?
(FYI these were my latest blood results
DHEAS level 6.1 umol/L
Serum FSH level 4 iu/L
Serum LH level 4 iu/L
Serum Prolactin level 419 mu/L
Serum testosterone 1.2 nmol/L
Blood glucose level 4.6 mmol/L
Serum Vitamin D 76 nmol/L
I also got the set of bloods from the last time I had them done:
Thyroid Peroxidase AB 185 kiu/L
Serum TSH level 2.29 mu/L
Serum calcium 2.39 mmol/L
corrected serum calcium 2.21 mmol/L
Serum albumin 49 g/L
Total alkaline phosphatase 55 u/L