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Zollinger-Ellison syndrome
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Tried EVERYTHING, and now...
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
auntiesioux
in
Restless Legs Syndrome
6 years ago
Need advice
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Samy3
in
Thyroid UK
6 years ago
Black cohosh - have you tried it?
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
FakeHappy
in
Fertility Network UK
6 years ago
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New medication
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Holiday concerns
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
C316
in
IBS Network
6 years ago
Returning to work advice
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Angelamarston1963
in
LUPUS UK
6 years ago
Long protocol
Hi all I am due to start long protocol later this month, having had an unsuccessful short protocol/FET in 2017. I am somewhat concerned about the impact of medication (Prostap and Norethisterone) on me, before I go on to ovarian stimulation (Bemfola/Menopur), and the general ups and downs of the treatment
Hi all I am due to start long protocol later this month, having had an unsuccessful short protocol/FET in 2017. I am somewhat concerned about the impact of medication (Prostap and Norethisterone) on me, before I go on to ovarian stimulation (Bemfola/Menopur), and the general ups and downs of the treatment
Esme78
in
Fertility Network UK
6 years ago
Restart pramipexole?
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
Yakester
in
Restless Legs Syndrome
6 years ago
Horizant
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
tweedy66
in
Restless Legs Syndrome
6 years ago
Vascular EDS and Angina Bullosa Haemorrhagica
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been getting loads of ABH and I'm hypermobile in many joints, along with other EDS symptoms present. Does anyone have any information on this at all please? Thank you.
Saassii
in
Ehlers-Danlos Support UK
6 years ago
Butec 5
Morning everyone. My doctor has prescribed me the above pain patches. I am going into my fourth day but my pain is still there and I feel like a zombie. Not myself at all. Previously I was on dihydrocodeine and recently I they weren’t quite cutting the pain but I felt ok in the head. Now my doctor
Morning everyone. My doctor has prescribed me the above pain patches. I am going into my fourth day but my pain is still there and I feel like a zombie. Not myself at all. Previously I was on dihydrocodeine and recently I they weren’t quite cutting the pain but I felt ok in the head. Now my doctor
Patjamber
in
Pernicious Anaemia Society
6 years ago
Taking Lyrica 300mg mornings with Lyrica 150mg nights
Hi I'm Steve a first-timer here! For past 3 months I have been taking Lyrica 150mg at night and 150mg mornings. I have had RLS for 12 years. Partial benefits with RLS symptoms; also getting some relief with trapeze nerve pain associated with childhood whiplash injury and nowadays degeneration of spinal
Hi I'm Steve a first-timer here! For past 3 months I have been taking Lyrica 150mg at night and 150mg mornings. I have had RLS for 12 years. Partial benefits with RLS symptoms; also getting some relief with trapeze nerve pain associated with childhood whiplash injury and nowadays degeneration of spinal
Schwaerts55
in
Restless Legs Syndrome
6 years ago
Help
Help I forgot to get my pramipexole today can'take sleep at all not quite climbing the walls as usual but damn legs won't settle completely tried hot and cold showers massage cocodamol ibruphen it's bad enough that I can't sleep I'm up at 08.00 for work but it looks a sick day for me I'm at my wits
Help I forgot to get my pramipexole today can'take sleep at all not quite climbing the walls as usual but damn legs won't settle completely tried hot and cold showers massage cocodamol ibruphen it's bad enough that I can't sleep I'm up at 08.00 for work but it looks a sick day for me I'm at my wits
Modaly
in
Restless Legs Syndrome
6 years ago
Hand joints
Hi all. Really painful little joint between wrist and hand. It seems the DAS score is based on just a few joints ie knuckles but I don’t know about anyone else but all sorts of tiny joints get inflamed and hurt. Is that the same for you? Thanks
Hi all. Really painful little joint between wrist and hand. It seems the DAS score is based on just a few joints ie knuckles but I don’t know about anyone else but all sorts of tiny joints get inflamed and hurt. Is that the same for you? Thanks
Elmo333
in
NRAS
6 years ago
Hashimotos and irritated eyelid abo
Hi all, I am newly diagnosed with hashimotos. About 3 months prior to being diagnosed, I began to have eye trouble. I just woke up one morning and my eyes felt gritty, like I had a piece of sand stuck in my eyelid whenever I would move my eyes around. I went to the eye doctor, and he treated infection
Hi all, I am newly diagnosed with hashimotos. About 3 months prior to being diagnosed, I began to have eye trouble. I just woke up one morning and my eyes felt gritty, like I had a piece of sand stuck in my eyelid whenever I would move my eyes around. I went to the eye doctor, and he treated infection
Mommy_of_2
in
Thyroid UK
6 years ago
IUI waiting times?
Hello First time messaging on here but at a loss really. We started this journey back in January 2017 and I knew we would have problems. Roll forward we have now done 5 cycles of clomid which all have worked in the fact I’ve ovulated but still not pregnant. Husbands sperm is fine so the problem lies
Hello First time messaging on here but at a loss really. We started this journey back in January 2017 and I knew we would have problems. Roll forward we have now done 5 cycles of clomid which all have worked in the fact I’ve ovulated but still not pregnant. Husbands sperm is fine so the problem lies
Jaygee
in
Fertility Network UK
6 years ago
Augmentation
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Egg quality improvements with supplements- feeling low
Been taking pregncare for months just bought royal jelly 1000mg gel caps and CoQ10 100mg. Will start tomorrow. I have added these two in due to what this forum and others threads say about them potentially improving egg quality. Any experiences? How long? I am starting Clomid the end of next month.
Been taking pregncare for months just bought royal jelly 1000mg gel caps and CoQ10 100mg. Will start tomorrow. I have added these two in due to what this forum and others threads say about them potentially improving egg quality. Any experiences? How long? I am starting Clomid the end of next month.
Hopeful82
in
Fertility Network UK
6 years ago
Bartonella causes restless leg
Hi, my son was just diagnosed with Bartonella in addition to lyme. The doctor said bartonella can cause restless leg (and it’s autoimmune neuropathy). He is currently being treated for this on antibiotics for two weeks and the restless leg is better. There are a bunch of Facebook groups about Bartonella
Hi, my son was just diagnosed with Bartonella in addition to lyme. The doctor said bartonella can cause restless leg (and it’s autoimmune neuropathy). He is currently being treated for this on antibiotics for two weeks and the restless leg is better. There are a bunch of Facebook groups about Bartonella
Elizab32
in
Restless Legs Syndrome
6 years ago
Hair dye and IVF meds
Hi Ladies I am on day 4 of buserelin and having a mild anxiety attack as I’d forgotten about my hair appt next week. Getting my roots done (greys are sprouting!) - will it impact the ivf meds? I can’t seem to find much on google, can anyone help? Thanks Barbara xx
Hi Ladies I am on day 4 of buserelin and having a mild anxiety attack as I’d forgotten about my hair appt next week. Getting my roots done (greys are sprouting!) - will it impact the ivf meds? I can’t seem to find much on google, can anyone help? Thanks Barbara xx
Barbara1012
in
Fertility Network UK
6 years ago
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