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Are there ways to stay active, productive and socially involved as Ataxia symptoms gradually get worse?
About fifteen years ago, I was an active person selling various insurance and investment products. Then, I started noticing balance problems. At first, I underestimated how much my ability to maintain balance had decreased and, as a result, had no concern walking over a garden hose in my garage. The
About fifteen years ago, I was an active person selling various insurance and investment products. Then, I started noticing balance problems. At first, I underestimated how much my ability to maintain balance had decreased and, as a result, had no concern walking over a garden hose in my garage. The
jneilw51
in
Ataxia UK
9 years ago
Mrs s
My daughter who is a young thirty year old has been suffering from ankylosinng spondylitis and she is I getting worse day by day . She has tried all sorts of treatment , she is seeing a chiropractor now . Is there anything out there to help her manage this illness . Does hydrotherapy help. She has not
My daughter who is a young thirty year old has been suffering from ankylosinng spondylitis and she is I getting worse day by day . She has tried all sorts of treatment , she is seeing a chiropractor now . Is there anything out there to help her manage this illness . Does hydrotherapy help. She has not
Sharad1
in
Pain Concern
9 years ago
savella/Ixel
Hi Everyone, Have suffered for at least 5 years undiagnosed Fibromyalgia symptoms until now as I have now been diagnosed by my Rhematologist. Please I really wish to try Savella or Ixel does anyone know how I can source this in the UK - do I need private prescription or private? I would be really
Hi Everyone, Have suffered for at least 5 years undiagnosed Fibromyalgia symptoms until now as I have now been diagnosed by my Rhematologist. Please I really wish to try Savella or Ixel does anyone know how I can source this in the UK - do I need private prescription or private? I would be really
focus888
in
Fibromyalgia Action UK
9 years ago
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Re Leg Discomfort
It was interesting to read the replies to the recent post on leg discomfort, and especially to learn that our "Volunteer" had driven almost all the way through France without discomfort. I was diagnosed with pmr at the beginning of this year, and am just tapering down via the ultra slow method from 10mg
It was interesting to read the replies to the recent post on leg discomfort, and especially to learn that our "Volunteer" had driven almost all the way through France without discomfort. I was diagnosed with pmr at the beginning of this year, and am just tapering down via the ultra slow method from 10mg
Charlie1boy
in
PMRGCAuk
9 years ago
Pip tribunal
Has anyone ever been to a tribunal for pip award and been successful?.I have a date in October and really worried about it.,as I wasn't awarded my appeal,I have lupus and work is a real struggle some days,if awarded this I could reduce a day to rest,therefore sustain at my job more,lost so much time
Has anyone ever been to a tribunal for pip award and been successful?.I have a date in October and really worried about it.,as I wasn't awarded my appeal,I have lupus and work is a real struggle some days,if awarded this I could reduce a day to rest,therefore sustain at my job more,lost so much time
Jeffscott69
in
LUPUS UK
9 years ago
Well Gals & Guys, here we all go once again ?
This latest "post" is intended to inform, and share my medical experience's with all of my fellow UK Cmt sufferers, via the 'Health-Unlocked' UK's website ! We are always being repeatedly told by our own individual 'Health-Professionals' (Doctors-Neurologists etc), that Cmt only effects, and results
This latest "post" is intended to inform, and share my medical experience's with all of my fellow UK Cmt sufferers, via the 'Health-Unlocked' UK's website ! We are always being repeatedly told by our own individual 'Health-Professionals' (Doctors-Neurologists etc), that Cmt only effects, and results
John1945
in
Charcot-Marie-Tooth UK
9 years ago
Persistent stomach issues
Hey everyone. I am so depressed! I am 19 and have very bad anxiety disorder, panic attacks and major depressive disorder. For the past few weeks, I was suddenly struck with stomach problems. Anxiety has always affected my stomach but this time had been different. I woke up one day and suddenly felt
Hey everyone. I am so depressed! I am 19 and have very bad anxiety disorder, panic attacks and major depressive disorder. For the past few weeks, I was suddenly struck with stomach problems. Anxiety has always affected my stomach but this time had been different. I woke up one day and suddenly felt
rushaine
in
Anxiety Support
9 years ago
Bloody eye
I have PMR, diagnosed in 2013. Taking pred, and holding for past 5 months at 5 mg. two weeks ago, I decided it's time to try to reduce a bit, so began to take 4 mg every other day, alternating with the 5 mg. Things are going well, no indication of flare! I'm happy! Until 4 evenings ago, I took one
I have PMR, diagnosed in 2013. Taking pred, and holding for past 5 months at 5 mg. two weeks ago, I decided it's time to try to reduce a bit, so began to take 4 mg every other day, alternating with the 5 mg. Things are going well, no indication of flare! I'm happy! Until 4 evenings ago, I took one
1Purplecrow
in
PMRGCAuk
9 years ago
Information
Hi everyone I hope you all have a good weekend painfree I hope...... I went to see my consultant on thusday and she has referred me for another CT Scan bloods and barium swallow but she seems a little Confused with the amout of chest pain i get and also lung pain (i had pneumonia april 2014) does anyone
Hi everyone I hope you all have a good weekend painfree I hope...... I went to see my consultant on thusday and she has referred me for another CT Scan bloods and barium swallow but she seems a little Confused with the amout of chest pain i get and also lung pain (i had pneumonia april 2014) does anyone
Dobermanndale
in
LUPUS UK
9 years ago
Dulera
It is so frustrating to work with DRs when you have a lung disease. I was told that IF I have COPD, it's probably mild, but Dr thinks it's now asthma. Switched my meds again, this time to Dulera. Still do not feel any benefits. Does anyone else here use Dulera? And if so, do you suffer side effects
It is so frustrating to work with DRs when you have a lung disease. I was told that IF I have COPD, it's probably mild, but Dr thinks it's now asthma. Switched my meds again, this time to Dulera. Still do not feel any benefits. Does anyone else here use Dulera? And if so, do you suffer side effects
beeperoni
in
Lung Conditions Community Forum
9 years ago
Nothing fishy!
The Australian Taxation Office suspected a fishing boat owner wasn't paying proper wages to his deckhand and sent an agent to investigate him. ATO AUDITOR: "I need a list of your employees and how much you pay them". Boat Owner: "Well, there's Clarence, my deckhand, he's been with me for 3 years
The Australian Taxation Office suspected a fishing boat owner wasn't paying proper wages to his deckhand and sent an agent to investigate him. ATO AUDITOR: "I need a list of your employees and how much you pay them". Boat Owner: "Well, there's Clarence, my deckhand, he's been with me for 3 years
Nikkers
in
Lung Conditions Community Forum
9 years ago
Citronella Oil
Good morning all I recently invested the princely sum of £7.98 to get two garden candles on the obviously ridiculous assumption that it might stop raining at some point & we could sit outside for 10 minutes one evening. Anyway in spite of my ludicrously optimistic & fundamentally flawed thinking I've
Good morning all I recently invested the princely sum of £7.98 to get two garden candles on the obviously ridiculous assumption that it might stop raining at some point & we could sit outside for 10 minutes one evening. Anyway in spite of my ludicrously optimistic & fundamentally flawed thinking I've
Minushabens
in
Lung Conditions Community Forum
9 years ago
PIP RECONSIDERATION....
Got my reconsideration for Pip a few days ago, was another zero points of daily and mobility. This time the DM said in summary I opened a door with right hand...I am left handed with left hand and lead with the left. And as far as I can remember my daughter opened all doors for me. My diary and
Got my reconsideration for Pip a few days ago, was another zero points of daily and mobility. This time the DM said in summary I opened a door with right hand...I am left handed with left hand and lead with the left. And as far as I can remember my daughter opened all doors for me. My diary and
Liz62
in
Pain Concern
9 years ago
Waiting for diagnosis
Hi everyone I've had a horrible few years and have had one thing after the other and never any positive diagnosis. I'm 58 now and have battled with persistent joint pain for a number of years. Despite numerous tests and appointments with a rheumatoid consultant, the conclusion was that they had no
Hi everyone I've had a horrible few years and have had one thing after the other and never any positive diagnosis. I'm 58 now and have battled with persistent joint pain for a number of years. Despite numerous tests and appointments with a rheumatoid consultant, the conclusion was that they had no
EdinaClouds
in
LUpus Patients Understanding and Support
9 years ago
Hospital for over a week-no answers.
Hi, I've been suffering from bouts of diarrhoea and stomach pain since February after having gastroenteritis-which my GP diagnosed as IBS. This past month it all got worse, stomach pain, diarrhoea alternating with constipation, leg pain, joint pains, blurred vision,bloating,fatigue and just feeling generally
Hi, I've been suffering from bouts of diarrhoea and stomach pain since February after having gastroenteritis-which my GP diagnosed as IBS. This past month it all got worse, stomach pain, diarrhoea alternating with constipation, leg pain, joint pains, blurred vision,bloating,fatigue and just feeling generally
LauraS18
in
IBS Network
9 years ago
Thyroid Nodules but gp says blood tests normal........
Hi all I've just joined this forum as I'm discovering that I need to self inform to get somewhere with my health as gp/hospital seem to have let me down so much I'm losing faith. To cut a long story short, for the past few years I've been suffering from recurrent throat infections which have increased
Hi all I've just joined this forum as I'm discovering that I need to self inform to get somewhere with my health as gp/hospital seem to have let me down so much I'm losing faith. To cut a long story short, for the past few years I've been suffering from recurrent throat infections which have increased
Annaw9
in
Thyroid UK
9 years ago
Langerhans cell histiocytosis
Hello everyone Iv'e been diagnosed with L C H. I wonder if anyone here has this
Hello everyone Iv'e been diagnosed with L C H. I wonder if anyone here has this
winterrose-23
in
Lung Conditions Community Forum
9 years ago
Tongue disorder.
Hi. Wonder if anyone as heard of this. My husband as just had a video barium swallow due to 12 infections since November. All H influenza. The video showed up deformed tongue waiting to see neurologist. Weak muscles in the chest through years of coughing with copd. Silent reflux. Waiting to see ent specialist
Hi. Wonder if anyone as heard of this. My husband as just had a video barium swallow due to 12 infections since November. All H influenza. The video showed up deformed tongue waiting to see neurologist. Weak muscles in the chest through years of coughing with copd. Silent reflux. Waiting to see ent specialist
barst1950
in
Lung Conditions Community Forum
9 years ago
Renal Bone Disease after Kidney Transplant
Has anyone got renal Bone Disease after Kidney Transplant. I have terrible pain in my right hip when I am sitting and walking. My walking is very slow to what it was before. I have an appointment in july to see a doctor at the renal Bone disease clinic. Has anyone had any experience of having the
Has anyone got renal Bone Disease after Kidney Transplant. I have terrible pain in my right hip when I am sitting and walking. My walking is very slow to what it was before. I have an appointment in july to see a doctor at the renal Bone disease clinic. Has anyone had any experience of having the
sandwiches
in
LUPUS UK
9 years ago
NRAS Group Meetings Next Week
Dear All Please find details of the NRAS Group meetings taking place next week: Wrexham NRAS Group 2015 meetings will be held monthly on the third Wednesday at Tesco Wrexham, Crescent Road, Wrexham, LL13 8HF from 7-8:30pm. (Please make your way to the customer service desk where someone will be on
Dear All Please find details of the NRAS Group meetings taking place next week: Wrexham NRAS Group 2015 meetings will be held monthly on the third Wednesday at Tesco Wrexham, Crescent Road, Wrexham, LL13 8HF from 7-8:30pm. (Please make your way to the customer service desk where someone will be on
Kim-NRAS
NRAS
in
NRAS
9 years ago
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