Langerhans cell histiocytosis

[winterrose-23]

Hello everyone Iv'e been diagnosed with L C H. I wonder if anyone here has this

[O2Trees]

Sorry you've had this diagnosis winterrose. Ive heard of it but that's all, i know nothing about it. Hope someone comes along who can connect on this.

[winterrose-23 in reply to O2Trees]

Thank you 02Trees

[Hidden]

Do you have diabetes insipidus as part of the LCH? (This is NOT sugar diabetes)

[Hidden in reply to Hidden]

Hi winterrose...sorry to hijack your post and I do wish you all the best with your diagnosis/treatment.

This is for Hick...I have diabetes insipidus and wonder if you could tell me of a possible link between this condition and LCH.

Thanks...Lovelight

[winterrose-23 in reply to Hidden]

Hi Hick no I don't have diabetes insidus Iv'e heard of It though

[Hidden in reply to winterrose-23]

Not many people have heard of it - or they assume it's to do with sugar/insulin.

Sorry

I can't help you with the LCH

[Hidden]

Hi Lovelight, There's a closed group on Facebook that is for people with DI and I have seen LCH mentioned on there a few times.

Hick

[scotty2533]

Hi i just was diagnos with PLCH too. This all so new. Would be nice to talk to some people dealing with the same issue