savella/Ixel: Hi Everyone, Have... - Fibromyalgia Acti...

Fibromyalgia Action UK

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savella/Ixel

focus888 profile image
14 Replies

Hi Everyone,

Have suffered for at least 5 years undiagnosed Fibromyalgia symptoms until now as I have now been diagnosed by my Rhematologist.

Please I really wish to try Savella or Ixel does anyone know how I can source this in the UK - do I need private prescription or private?

I would be really grateful for any information.

I am so ill - it's unbelievable how one can feel so awful...

many thanks ladies and gentlemen

Focus888

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14 Replies
Kasha profile image
Kasha

Hi Focus888

I dont think Either of these drugs are licensed in the UK so I believe you would have trouble getting them prescribed. From what I have just read on the UKFibromyalgia site Cymbalta available in the UK is similar to Savella.

focus888 profile image
focus888 in reply toKasha

Thank you so much Kasha. Does Cymbalta have any side effects of weight gain?

Kind wishes

Focus888

Kasha profile image
Kasha in reply tofocus888

I'm not sure to be honest, I've just had a quick Google and it seems very much like pregabalin, quite mixed reviews it works for some people and not for others. Hope you can find something that works for you :-)

focus888 profile image
focus888

Thank you Kasha. Have you experienced successful respite from Fibromyalgia and if so did you take medication?

Kind wishes

Focus888

focus888 profile image
focus888

Thank you so much Dan9878. Is Duloxetine = Cymbalta?

kind wishes

Focus888

TheAuthor profile image
TheAuthor

I am so soryr to read that you also have Fibro and I want to genuinely wish you all the best of luck. If these medications are not licensed in the UK then it will be a private prescription I am afraid.

All my hopes and dreams for you

Ken

focus888 profile image
focus888 in reply toTheAuthor

Hi Ken,

Thank you for your good wishes. Regarding a private prescription, what is the process?

Also, does this mean I can obtain Savella medication in the UK with this prescriptive

TheAuthor profile image
TheAuthor in reply tofocus888

Hi again

Your GP or any other private GP can issue you with a private prescription. There is usually a fee for the cost of the GP issuing the prescription and a secondary cost for the dispensing of the prescription from the pharmacy. The medications that you are interested in will be available on a private prescription if the GP will issue it for you.

I have pasted you an excerpt from the Boots Online information regarding prescriptions so I hope that you find it useful:

*What is a Private prescription?

A private prescription is issued by a private doctor or by your GP for a medicine that is not available on the NHS. The charge for dispensing a private prescription includes the cost of the medicine and can vary. If you have a private prescription you will always be required to pay; there is no exemption.

*Excerpt From Boots.

I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

focus888 profile image
focus888 in reply toTheAuthor

Hi Ken,

Thank you for your reply.

Do you know if I obtain a prescription from my GP for Ixel/Savella whereupon dispensed in Paris as my brother-in-law works there.

many thanks

Focus888

TheAuthor profile image
TheAuthor in reply tofocus888

Hi again, yes that is okay. I have pasted you an excerpt from ''Your Europe'' which explains how it works:

*A prescription delivered by a doctor in your country is valid in all EU countries. However, medicine prescribed in one country might not be available in another, or it may bear another name.

As of 25 October 2013 you are able to ask for a cross-border prescription which is intended for use in another EU country: these are designed to help the pharmacist understand the prescription easily, the ingredients of the medicine and their dosage.

*Excerpt From Your Europe.

focus888 profile image
focus888 in reply toTheAuthor

Thank you so much for this useful information. I asked my G.P. for this prescription to take to France she adamantly said " No". She explained it could only be done through a private doctor - private prescription..?

Uhmmn.. apparently they have different rulings or legislation.?

I'm not sure.

Anyway, I just wanted to say thank you for your help to date.

focus888

LaurieLee profile image
LaurieLee

Hi, duloxetine is Cymbalta. Please note that it doesn't make you put on weight, Imhave bee using it for a few years. BUT, because of previous experience with it, I went onto it VERY SLOWLY, insisted on it with my GP, who agreed. iT took me about

3-4 Months, starting on 10mg, until I got used to it, then up to 20mg and increased by 10mg each time. tHis way you won't get the side effects in one whole dose. iF you start with 60mg which is the recommended dose, you feel like hell,for a month. This worked for me when I did it this way. I found it very helpful. gOod luck.

focus888 profile image
focus888 in reply toLaurieLee

Hi LaurieLee

Thank you so much for your reply.You have reassured me a lot in as much as I will strongly consider taking them.

Kind wishes

Astara

focus888 profile image
focus888 in reply toLaurieLee

Hi LaurieLee,

I am truly grateful for your information. It's really helpful.. I will perhaps consider this drug as I am unable to obtain Savella at the moment.

kind blessings

focus888

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