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Vanishing White Matter (VWM) disease
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Adalimumab and covid vaccine
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
Amb1xkr
in
NRAS
9 months ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
9 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
9 months ago
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Contrast echocardiogram booked
Hi there, My appointment has finally come through after a 6 months wait. Which I don't mind because I was told this at the beginning, so expectations have been met. Is there anyone out there that has had one? I know it's like an 3cho and they inject a contrast. They are looking for a whole in my heart
Hi there, My appointment has finally come through after a 6 months wait. Which I don't mind because I was told this at the beginning, so expectations have been met. Is there anyone out there that has had one? I know it's like an 3cho and they inject a contrast. They are looking for a whole in my heart
Af8b_futter
in
AF Association
6 months ago
Overwhelming thoughts of death/dying
Hello, I really need some good reassurance. Today is the new year and since yesterday, I've had a feeling that I am going to die soon. I have NO reason to believe this health wise, but I've had multiple attacks about it today and I've cried a few times too. I have a 3 year old little boy I'm terrified
Hello, I really need some good reassurance. Today is the new year and since yesterday, I've had a feeling that I am going to die soon. I have NO reason to believe this health wise, but I've had multiple attacks about it today and I've cried a few times too. I have a 3 year old little boy I'm terrified
Krissy1991
in
Anxiety Support
6 months ago
Hiccups update.
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
FoieGras
in
Cure Parkinson's
9 months ago
new on Flecainide
My afib started 11 years ago with one episode and then went silent for nearly six years . So for the first six years I was on low dose diltiazem and one standard aspirin. for the last four years I was put on Multaq and Eliquis. Multaq kept me in NSR for about a year and then progressively became ineffective
My afib started 11 years ago with one episode and then went silent for nearly six years . So for the first six years I was on low dose diltiazem and one standard aspirin. for the last four years I was put on Multaq and Eliquis. Multaq kept me in NSR for about a year and then progressively became ineffective
execz1
in
AF Association
6 months ago
Sinus tachycardia
Laying on a gurney now for past 7 hours after presenting to ED with heart rate in 120-150 but in sinus rhythm associated with some mild fatigue, accompanied by a bump in my troponins level fom 15-40. Had similar episode 4 weeks ago. Each time no a fib detected. Everything else completely wnl and
Laying on a gurney now for past 7 hours after presenting to ED with heart rate in 120-150 but in sinus rhythm associated with some mild fatigue, accompanied by a bump in my troponins level fom 15-40. Had similar episode 4 weeks ago. Each time no a fib detected. Everything else completely wnl and
Aegean56
in
AF Association
6 months ago
Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
7 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
7 months ago
thyroid results need advice
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
elwins
in
Thyroid UK
7 months ago
NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
bisoprolol
put on bisoprolol 5mf diagonised with AFib now my pulse rate 46 is this normal?
put on bisoprolol 5mf diagonised with AFib now my pulse rate 46 is this normal?
layla3
in
Arrhythmia Alliance
6 months ago
Flying whilst having an episode of AF
Morning This is my first post on this forum but I have found it really resssuring. I just wondered whether people had been on a flight whilst having an episode of AF? I am paroxysmal at the moment but have found that my episodes are lasting at least 2 days and then only getting 1 day respite before
Morning This is my first post on this forum but I have found it really resssuring. I just wondered whether people had been on a flight whilst having an episode of AF? I am paroxysmal at the moment but have found that my episodes are lasting at least 2 days and then only getting 1 day respite before
Amhan
in
Atrial Fibrillation Support
6 months ago
Horrible way to start 2024
😞I was picking up something from the floor and as I turned around to put it back down, I felt a weird, constricted (knot) feeling in my upper tummy and chest. It felt strange in my throat too. I placed my fingers on the carotid artery and this is what I felt: beat, beat, beat, two quick beats, then
😞I was picking up something from the floor and as I turned around to put it back down, I felt a weird, constricted (knot) feeling in my upper tummy and chest. It felt strange in my throat too. I placed my fingers on the carotid artery and this is what I felt: beat, beat, beat, two quick beats, then
DoveofPeace
in
Arrhythmia Alliance
6 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
9 months ago
liver biopsy- what does it mean.
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
MouseAddams
in
Advanced Prostate Cancer
9 months ago
Confused about cancer
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
pussycat66
in
British Liver Trust
9 months ago
“Strategies for the Treatment of Parkinson’s Disease: Beyond Dopamine”
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
Gioc
in
Cure Parkinson's
9 months ago
Clopidogrel
Had what was deemed was a minor TIA of left eye in June 2022 as lost part vision 5 maybe 10 mins , spoke to gp he sent me to get checked out at A&E who referred me to stroke department. 5 days later had the appointment at hospital and they performed ecg, ultrasound of neck and echo cardiograph everthing
Had what was deemed was a minor TIA of left eye in June 2022 as lost part vision 5 maybe 10 mins , spoke to gp he sent me to get checked out at A&E who referred me to stroke department. 5 days later had the appointment at hospital and they performed ecg, ultrasound of neck and echo cardiograph everthing
Handg
in
Pain Concern
6 months ago
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