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Vanishing White Matter (VWM) disease
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What the Heck? I thought boosting Short Chain Fatty Acids (SCFAs) was a Good Thing?
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
Bolt_Upright
in
Cure Parkinson's
9 months ago
passionflower
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
Passionflower
in
NRAS
7 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
9 months ago
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Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
6 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
9 months ago
When's the "best" time to do the scan?
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Cackalacky_cyclist
in
Advanced Prostate Cancer
9 months ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
7 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
6 months ago
Proctitis ? 🙏
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Carl33150
in
Colon Cancer Connected
9 months ago
First dialysis.... not for a wuss
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
Bassetmommer
in
Kidney Dialysis
9 months ago
Intrinsic factor antibody
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
9 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
6 months ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
6 months ago
The Holidays can be hard!
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Jesmcd2
CommunityAmbassador
in
My MSAA Community
7 months ago
Still true that using same scan type is preferable to changing scan type?
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
spouse21
in
Advanced Prostate Cancer
9 months ago
Seeking support
Hello, I spent 4 weeks in ICU following mediastinitis/pleural and pericardial effusions/septic shock requiring thoractomy surgery. I had collapsed lung lobes therefore was supported by a ventilator. I have been home for 7 weeks now and am slowly recovering. My pending issues are pain at the surgical
Hello, I spent 4 weeks in ICU following mediastinitis/pleural and pericardial effusions/septic shock requiring thoractomy surgery. I had collapsed lung lobes therefore was supported by a ventilator. I have been home for 7 weeks now and am slowly recovering. My pending issues are pain at the surgical
Leenk8
in
ICUsteps
9 months ago
Feeling Sad and scared.
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
very
in
CLL Support
7 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Adalimumab and covid vaccine
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
Amb1xkr
in
NRAS
9 months ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
9 months ago
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