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still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
5 months ago
Vitamin C babies, anyone?
Has any mothers and mothers-to-be here supplemented with high doses of vitamin C in their pregnancy? How did/has your pregnancy and/or labour go/been? A couple of weeks ago I came across stories of vitamin C babies, reporting shorter labours, robust and alert babies, no/little tears and less stretch
Has any mothers and mothers-to-be here supplemented with high doses of vitamin C in their pregnancy? How did/has your pregnancy and/or labour go/been? A couple of weeks ago I came across stories of vitamin C babies, reporting shorter labours, robust and alert babies, no/little tears and less stretch
konyaga
in
Pregnancy and Parenting Support
2 months ago
8 Day Trial.
Current trial 1 mg hydroxocobalamin, 1.5 mg of adenosylcobalamin, 1.5 mg of methylcobalamin. Day one. No other supplements other than 50 mg of B6 twice a day in the form or P-5-P as symptoms do not indicate a need for any other supplements. Without supplementing B6 I experience peripheral neuropathy
Current trial 1 mg hydroxocobalamin, 1.5 mg of adenosylcobalamin, 1.5 mg of methylcobalamin. Day one. No other supplements other than 50 mg of B6 twice a day in the form or P-5-P as symptoms do not indicate a need for any other supplements. Without supplementing B6 I experience peripheral neuropathy
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
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I'm always confused
I don't understand if you should or shouldn't take folate if you have low b12
I don't understand if you should or shouldn't take folate if you have low b12
Popcorn12345
in
Pernicious Anaemia Society
2 months ago
MTX, fatigue and brain fog
Hi all.I've an annual (actually 16 months) review next week. First one since being diagnosed and I want to try and get the most out of it. I take MTX, 20mg weekly (orally) and folic acid 6 days a week. The MTX seems to be working in terms of joint pain and CRP is usually close to zero. I get mild
Hi all.I've an annual (actually 16 months) review next week. First one since being diagnosed and I want to try and get the most out of it. I take MTX, 20mg weekly (orally) and folic acid 6 days a week. The MTX seems to be working in terms of joint pain and CRP is usually close to zero. I get mild
Sebastian247
in
NRAS
2 months ago
Needle size for Surgery injections?
Yesterday I had my 3 monthly B12 jab and was rather taken aback to be injected in the shoulder with a 21G 1 1/2 “needle which was quite painful unlike when I self inject with 25G x 1” needle. I don’t remember needles being this large in the past and wondered if this is common practice to draw from ampoule
Yesterday I had my 3 monthly B12 jab and was rather taken aback to be injected in the shoulder with a 21G 1 1/2 “needle which was quite painful unlike when I self inject with 25G x 1” needle. I don’t remember needles being this large in the past and wondered if this is common practice to draw from ampoule
Libuse
in
Pernicious Anaemia Society
2 months ago
Vegan breast-feeding and supplements
My daughter is currently breast feeding. The baby can’t tolerate dairy so my daughter, who is already vegetarian has had to cut out dairy. So she’s now vegan. I asked her if she’s supplementing b12 and she said she’s been advised to take this multi supplement. Looking at it it includes an impressive
My daughter is currently breast feeding. The baby can’t tolerate dairy so my daughter, who is already vegetarian has had to cut out dairy. So she’s now vegan. I asked her if she’s supplementing b12 and she said she’s been advised to take this multi supplement. Looking at it it includes an impressive
Bearo
in
Thyroid UK
2 months ago
New GP is considering to give me B12 pills instead of injections - would that be the same in the long run?
Started having B12 injections two yeas ago and worked fine. Now moved to a new village and the new GP ordered blood tests to see if I should continue. Fought back and said that without the injections my B12 levels are going down. He asked me to take vitamin pills and have another blood test. If levels
Started having B12 injections two yeas ago and worked fine. Now moved to a new village and the new GP ordered blood tests to see if I should continue. Fought back and said that without the injections my B12 levels are going down. He asked me to take vitamin pills and have another blood test. If levels
AnnaVaso
in
Pernicious Anaemia Society
2 months ago
Adding calcium in order to strengthen bones
Hi. I have Stage IV Pca and on year 3 with Eligard and Xtandi (age 59)I've had a DEXA scan and my bones are not in the best shape due to Eligard. Getting zolendronic acid every 4 months I've just had a heart scan, and it seem like one of the blood vessels are starting to calcify. The doctors want me
Hi. I have Stage IV Pca and on year 3 with Eligard and Xtandi (age 59)I've had a DEXA scan and my bones are not in the best shape due to Eligard. Getting zolendronic acid every 4 months I've just had a heart scan, and it seem like one of the blood vessels are starting to calcify. The doctors want me
GreatDane1979
in
Advanced Prostate Cancer
2 months ago
Production of Vitamin B12 via Fermentation -Process Modeling and Cost Analysis
Some very interesting details on the production of B12 via fermentation. https://www.researchgate.net/profile/Demetri-Petrides/publication/378846463_Production_of_Vitamin_B12_via_Fermentation_-_Process_Modeling_and_Techno-Economic_Assessment_TEA_using_SuperPro_Designer/links/65ec7fecb1906066b2859c58
Some very interesting details on the production of B12 via fermentation. https://www.researchgate.net/profile/Demetri-Petrides/publication/378846463_Production_of_Vitamin_B12_via_Fermentation_-_Process_Modeling_and_Techno-Economic_Assessment_TEA_using_SuperPro_Designer/links/65ec7fecb1906066b2859c58
Technoid
in
Pernicious Anaemia Society
2 months ago
Duff batch of B12?
Have any self-injectors ever found their symptoms coming back big-time over a period of several weeks and wondered if they've been using a duff batch of B12? I have been self-injecting every other day for 18 months because of persistent neurological symptoms (paraspinal muscle spasm). I was doing great
Have any self-injectors ever found their symptoms coming back big-time over a period of several weeks and wondered if they've been using a duff batch of B12? I have been self-injecting every other day for 18 months because of persistent neurological symptoms (paraspinal muscle spasm). I was doing great
migi2z
in
Pernicious Anaemia Society
2 months ago
Back to square one
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
BethH77
in
Thyroid UK
2 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
2 months ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
2 months ago
B12 Injection dose
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Spick
in
Pernicious Anaemia Society
2 months ago
Methylfolate dose for B12 injections
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
MindfulSquirrel
in
Pernicious Anaemia Society
2 months ago
high folate
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
Sophia1968
in
British Liver Trust
2 months ago
Heart Arrhythmia
Hello All. I've posted in the past and remember that some have said that I could increase my dose of T3 to perhaps alleviate the arrhythmia I have been experiencing for many years. I take 75 MCG LEVO (for 35+ years with varying dosages) and 5 MCG Lio each morning. Any comments at this time would be greatly
Hello All. I've posted in the past and remember that some have said that I could increase my dose of T3 to perhaps alleviate the arrhythmia I have been experiencing for many years. I take 75 MCG LEVO (for 35+ years with varying dosages) and 5 MCG Lio each morning. Any comments at this time would be greatly
saritadelmar
in
Thyroid UK
2 months ago
Should I be asking for an increase in Levo?
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
Feelingrubbish
in
Thyroid UK
3 months ago
Vitamin C + Omega 3 Fish Oil Combo
Though not directly associated with PD, PWPs take a lot of drugs and supplements, which may affect the Liver. From that perspective, posting a rat study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9045995/ Combination Treatment of Omega-3 Fatty Acids and Vitamin C Exhibited Promising Therapeutic
Though not directly associated with PD, PWPs take a lot of drugs and supplements, which may affect the Liver. From that perspective, posting a rat study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9045995/ Combination Treatment of Omega-3 Fatty Acids and Vitamin C Exhibited Promising Therapeutic
JayPwP
in
Cure Parkinson's
2 months ago
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