Did anyone read about the women who died from CFS/ME?
news.sky.com/story/woman-wi...
Why didn't anyone try B12 and see if it could help her?
If you look online there is masses of information about how B12 can help CFS/ME.
For example
drmyhill.co.uk/wiki/B12_-_r...
IMO doctors still think a diagnosis of CFS/ME is just something they use on women when they haven't got a clue what's wrong with them but suspect it is mental/depression related.
Hi,
From personal experience, I can really relate to your comment
"IMO doctors still think a diagnosis of CFS/ME is just something they use on women when they haven't got a clue what's wrong with them but suspect it is mental/depression related."
Many forum members have diagnoses of ME/CFS/Fibro in their medical history.
I've read stories of people being diagnosed with ME/CFS when it was actually B12 deficiency.
Misdiagnosis of B12 deficiency as other conditions
Thread about Patient Safety, has useful links for those having difficult health experiences with B12 deficiency in UK.
HI Charks,
Such a sad story of a young life lost due to lack of understanding of the condition. I were diagnosed many years ago with CFS / M.E.
It was a dificult time for me with two young children yet such little energy to be able to cope. Even now with the injections my energy and stamina is lacking.
I feel that young lasses Drs have a lot to answer for. I bet her B12 was low and a course of injections would have helped her. They seem to have no trouble dishing out antidepressants what so ever. It's disgraceful to think such an incident has taken place.
Scientist, not medic.
Here we go... I quote from the Sarah Myhill site, where it states
"The "normal" levels of B12 have been set at those levels necessary to prevent pernicious anaemia"
Badly written and poorly argued; suggesting that B12 prevents pernicious anaemia? How does that work, then? Did it really mean 'megaloblastic anaemia, rather than pernicious anaemia? Even that's not 100% of the truth either. The word 'rubbish' springs to mind.
Any advice offered, by sites that are out to sell us something, needs to be treated with care!
[Rant over.]
But I feel the advice offered is correct, IMO all people with CFS/ME should be given B12 as a first line of treatment. It is cheap and non toxic.
The standard scientific approach is to accept nothing at face value, but seek evidence. It may well be right, but is there evidence that it is? The following statement is clearly incorrect. In fact, it's rubbish.
"The "normal" levels of B12 have been set at those levels necessary to prevent pernicious anaemia"
'Pernicious Anaemia' is not caused by low level of B12, nor can it be prevented by maintaining a higher level. It is an autoimmune condition which results in B12 deficiency due to failure to absorb B12, due to changes that have taken place in the stomach.
“When I use a word, it means just what I choose it to mean—neither more nor less” is a famous line from Lewis Carroll's Through the Looking Glass (1871). The character Humpty Dumpty says this to Alice in a scornful tone during an exchange about the meaning of words.
I thought similar. Very sad.
B12 deficiency, thyroid issues, other deficiencies...easy to stick on a label of CFS/ME. Then suddenly when deficiencies corrected and thyroid corrects people claim their lives back. The medical neglect is unreal.
There are some doctors who believe all psychiatric patients should be offered B9 and B12 before any drug. But I doubt this insight is common. Most CFS patients are also chronically low in magnesium
Hi
briefly, i had ME in the late 80s to the mid 90s. I took all sorts of vitamin and mineral pills. Recently I tried with Magnesium again but found i could not swallow the pills; much too big, and they got stuck in my throat. i chucked one in a glass of water and in no time at all it dissolved into a gritty chalky drink. I can deal with that!!
I followed this inquest a little, and given how well-educated Maeve’s parents are about ME/CFS (as she was herself), I find it impossible to believe they wouldn’t have given her B12. It’s one of the first interventions tried by most ME/CFS patients who’ve done any reading into their diagnosis .
Her disease was sadly too severe for it to have made the kind of difference I think you were hoping for, though imo her death was due to negligence. The hospital chose to ignore the top ME/CFS specialist’s recommendations for Maeve’s care.
This is an appalling case, and as I’m writing this, there are at least two other young women with ME/CFS facing similar situations in different British hospitals. It’s scandalous and terrifying that some patients are safer at home than they are in hospital.
Unsure
B12 made symptoms go away
Medichecks Results Advice Please
A long history of me either having B12 difficeny or CFS/ ME
Re: high Folate levels & diminished returns from b12
