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Lupus pain
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
LUPUSLADY60
in
NRAS
17 days ago
Some useful info (although most of member may already know)
Get support for Parkinson’s by focusing on fitness and nutrition. According to research or other evidence, the following self-care steps may be helpful. Discover coenzyme Q10 Slow the disease’s progression by taking 1,200 mg a day of this powerful nutrient Get support from C and E Help delay the
Get support for Parkinson’s by focusing on fitness and nutrition. According to research or other evidence, the following self-care steps may be helpful. Discover coenzyme Q10 Slow the disease’s progression by taking 1,200 mg a day of this powerful nutrient Get support from C and E Help delay the
Farooqji
in
Cure Parkinson's
17 days ago
cortisol test
Hi I have had a 9am cortisol blood test which the doctor has marked as normal the results are 148mnol/L and range is 133-537. I know it says in range but have it also says <320 should be in interpreted for a pretest. My FT4 is low 10.9 range is 12-22 all other tests seem ok My folate was 2.6 normal
Hi I have had a 9am cortisol blood test which the doctor has marked as normal the results are 148mnol/L and range is 133-537. I know it says in range but have it also says <320 should be in interpreted for a pretest. My FT4 is low 10.9 range is 12-22 all other tests seem ok My folate was 2.6 normal
ConfusedH
in
Thyroid UK
17 days ago
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My labs after TT: Grave’s
Hi new here. Also in the US. I had TT 4/23/24 and was started on 137 mcg levo right after. Fast forward to May I was having numbness to my feet and arms like tingling and had already gotten my Calcium where it needed to be so was able to stop supplements and calcitriol. So 5/24 had my labs drawn and
Hi new here. Also in the US. I had TT 4/23/24 and was started on 137 mcg levo right after. Fast forward to May I was having numbness to my feet and arms like tingling and had already gotten my Calcium where it needed to be so was able to stop supplements and calcitriol. So 5/24 had my labs drawn and
Reginarn73
in
Thyroid UK
17 days ago
hypothyroidism - problems with GP
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Oatlove
in
Thyroid UK
18 days ago
The latest news ( part 3 )
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Angelicspirit
in
Bone Health and Osteoporosis UK
18 days ago
Mental health issues associated with low b12
Hi, so this is a slightly off piste post so I apologise if its not for this board. My son for several years has needed b12 injections, not to the extent some of you guys but certainly its very noticeable if he hasnt been taking them for more than 3 weeks...the effects are obvious for his family. He
Hi, so this is a slightly off piste post so I apologise if its not for this board. My son for several years has needed b12 injections, not to the extent some of you guys but certainly its very noticeable if he hasnt been taking them for more than 3 weeks...the effects are obvious for his family. He
Worksop1
in
Pernicious Anaemia Society
18 days ago
NHS stopping B12
Why are they doing this???
Why are they doing this???
Donny21
in
Pernicious Anaemia Society
18 days ago
HU side affects
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the Hydroxycarbamide that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the Hydroxycarbamide that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Birdlady2021
in
MPN Voice
18 days ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
18 days ago
High Ferritin - suspected Graves
Hi I have posted before. Please click on profile for past posts I'm being investigated for Graves disease, I'm type 2 diabetic ( in remission) only med I take is 10mg daily Carbimazole since January 2024. I wanted to keep a check my Thyroid levels but mainly vitamin levels. These are the results of
Hi I have posted before. Please click on profile for past posts I'm being investigated for Graves disease, I'm type 2 diabetic ( in remission) only med I take is 10mg daily Carbimazole since January 2024. I wanted to keep a check my Thyroid levels but mainly vitamin levels. These are the results of
Gutsy2
in
Thyroid UK
18 days ago
Good News
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Elsabounre
in
British Heart Foundation
18 days ago
At A Loss
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Dottie44
in
Thyroid UK
18 days ago
Serum ferritin too high?
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Krysagnes
in
Pernicious Anaemia Society
18 days ago
absorbing b12 in cells with liquid sublingual on days not injecting
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
JesusMercy60
in
Pernicious Anaemia Society
18 days ago
Lack of Information
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
JESUSHASGOTTHIS
in
Kidney Dialysis
19 days ago
B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
19 days ago
hopefully getting somewhere!!
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
AtoZ24
in
Thyroid UK
19 days ago
A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
19 days ago
Could a member please explain the T3 feedback loop?
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
BlueGreenHealer
in
Thyroid UK
19 days ago
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