The latest news ( part 3 ): Dearest... - Bone Health and O...

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The latest news ( part 3 )

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Dearest friends,

You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts!

Dear Sunseaandsand, Fruitandnutcase & WELLNESS1,

We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had sent another message to the consultant, asking him to get in touch with us. The tone of the letter was polite but to the point and a little less friendly maybe? The reply wasn’t from Margaret’s consultant but from a member of the Rheumatology team who had passed on our message the previous day. His letter informed us that the consultant had sent a letter last Friday but as we clearly hadn’t received it yet, he would outline the contents. ( we still haven’t received the letter) The letter was informing us that Zoledronic acid could not be continued and as Margaret’s other conditions have excluded other treatments, she should follow a high protein diet and take Vitamin D and Calcium supplements. It also stated that a follow up appointment would be made in due course. Oh! I nearly forgot. Do balance exercises too.

So there we have it. After waiting 3 weeks for a phone call , still no conversation but tell the patient the medicine box is empty give advice on what to eat and take and be careful not to fall over. All this after being ‘forgotten by a previous doctor and two perfectly good molars extracted.

I wonder how many, diagnosed with osteoporosis actually run out of treatment options and are just left to their own devices?

Today we received wonderful service from a lady GP who we’ve not met. Margaret now has a big cyst on her right shoulder blade that has been getting bigger and more painful over the last 3 weeks. It is inflamed and giving her even less sleep than normal. The GP asked for photos which we sent and within a very few minutes had set up a plan for what to do now and what to do if plan A doesn’t work. Great service and went out of her way to allay any fears Margaret might have. The cyst is probably due to a poor immune system and being knocked sideways by the acid.

On the same day that we received the portal communication. Margaret got an NHS message asking if she still wishes to go ahead with a partial knee replacement. Perhaps an early indication that she’s moving up the list? Our next concerns are going to be anaesthetic and pain relief !

Thank you all sincerely from both of us for all your caring and support.

Steve & Margaret XXX XXX

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