At A Loss

[Dottie44]

Hi,

I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working.

I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I just bumped it up to 75 mcg due to having bad symptoms:

Ringing in left ear only

Painful bottom of feet

Muscle pain

Fatigue

My latest labs were:

Free T4 Range 0.8-1.8 My number: 0.2

Free T3 Range 2.3-4.2 My number: 3.9

Vitamin D Range 30-100 My number 37

What could be causing these symptoms? I am supplementing with D3 5,000 u daily.

Any help/insight is greatly appreciated!!

[greygoose]

Could very well be that your FT3 is still too low for you needs. Have you ever tried taking it all at once rather than splitting it?

No B12, folate or ferritin results? They could also be low and causing symptoms.

[Dottie44 in reply to greygoose]

Hi greygoose,

Thank you for responding! My B12 and Ferritin were normal from my labs drawn in Feb. I didn't list them since they were within range for hypo.

I have always split my dose since I tend to peter out in the afternoon. It gives me a little boost.

This is so frustrating. And the usual weight gain. Tired of that as well!

I will increase my T3 in a week, as I just bumped myself to 75 mcg.

Thank you so much!

[greygoose in reply to Dottie44]

Yes, I meant to say, it will take time for that increase to take effect, so don't be in any hurry to increase again. Ideally, wait six weeks and retest, and see how you feel then.

Just being in-range is not the same as being optimal. And 'normal' is meaningless and should be erased from the dictionary! Best if you give the numbers - results and ranges - and let people take a look. :=

[Dottie44 in reply to greygoose]

Thanks so much! In Feb 2024, My B12 was 405. Range is 200-1100.

Ferritin was 194, Range is 16-232.

Are these optimal?

[greygoose in reply to Dottie44]

ferritin is a little on the high-side. was crp high?

b12 should be higher, at least over 550.

[Dottie44 in reply to greygoose]

Interesting! I'm sorry, but what does crp mean? I will continue to supplement with b12. Thank you so much for your help!

[greygoose in reply to Dottie44]

CRP is C-Reactive Protein, and inflammation marker. If inflammation is high you will get a false high ferritin result so the two should always be tested together.

Are you taking a B complex? The Bs all work together and need to be kept balanced. So, just taking one B vit in isolation is not going to help much.

[Dottie44]

My MD has me take P5P only. Should I be adding a different B?

I appreciate your help so much!

[humanbean in reply to Dottie44]

We usually suggest that people take a B Complex supplement containing the active B vitamins that don't need conversion to something else before being useful to the body. People with thyroid disease often can't do these conversions very well.

This link is helpful :

jigsawhealth.com/blogs/news...

Edit : The above link wants to sell you something. Ignore that, and just read the info.

[Dottie44 in reply to humanbean]

Thank you humanbean! I read the article. I was only taking P5P but now know I have to do a complex supplement. I appreciate you sending this!

[serenfach]

Low Vit D -muscle pain. Try doubling your D3 for a week. A loading dose is 25000 so there is plenty of room to up it for a while.

[Dottie44 in reply to serenfach]

Thank you serenfach. I started taking 10.000 of D3, so I'll add more to help boost it. All of this is exhausting!

[serenfach]

I agree! I recently had to clue myself up about Vit D as the GP had given me a prescription for 4000 a day - I would never get anywhere on that! It took me 4 months for the lab to agree with my GP to do the test! And in the meantime things go downhill. Hug.

[Dottie44 in reply to serenfach]

Thank you! Hugs back to you! I'm so grateful for this wonderful group!!